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[children's results]
Author: Rhonda (---.sc.charter.com)
Date: 09-22-02 20:35
Hi all....once again,
My two kids, 3 and 7, had their echos,etc. done 3 weeks ago. My husband has hocm and just had a myectomy last week. My question is about the kids' echos. 7 year old's was perfectly fine. 3 year old's heart was a little different than her big brother's. Her heart was a little thicker all around and a minute amount of thickening at the top of the septum. The Ped. Card. said he wanted to do another check in one year on her to see if there was any more thickening, and if so, then he would "upgrade" his concern and watchfulness. If it looks exactly the same, he said it could just be the way her heart "looks". He said that if he did not know anything about her family, he would say that her heart loooked normal, but since it is different than her brother's (per doctor-"siblings hearts generally tend to look the same") , and since he knows about her father's condition, he wanted to watch it.
I am just wondering if anyone has had a similar experience with their children's check-ups? And does hcm start out this way in a small child? Is there anything I should be looking for....SOB,etc. At this time the doctor said no restrictions for her because she is appears to be a perfectly healthy normal little girl.
Thanks , Rhonda
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[Re: children's results]
Author: Reenie Smith (---.snbrca.adelphia.net)
Date: 09-22-02 20:39
Rhonda,
My son had a "high end normal" septal measurement when he was 4. He recently had another echo and all is normal. They think his was a little thicker because he's very active and your heart thickens some with exercise like any other muscle. Not hypertrophied, just on the high end of normal. I hope this makes you feel better. By the way, he had no restrictions on his activity either.
Reenie
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[Re: children's results]
Author: Rhonda (---.sc.charter.com)
Date: 09-22-02 20:46
Thanks Reenie! My daughter does tend to be at the "high end " of active most the time!
More so than her big bro!
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[Re: children's results]
Author: Amy N. (---.tnt3.seymour.in.da.uu.net)
Date: 09-23-02 01:24
Rhonda,
With my son, the pediatric cardiologist originally wanted him to have a repeat echo at 6 months when he showed signs of HCM. My family doctor explained it in a similar way your doctor did, saying it just may be the way his heart looks. But we ended up going to see the pediatric cardilogist because of a possible family link. They put my son on some medicine and now the pediatric cardiologist says come back in a year. He is on no restriction and is really active also. The doctor said trying to limit his activity at his age (19 months) would just upset him and would be impossible. And they really haven't diagnosed him at this point. The doctor said it's just one set of test results.
The waiting is the hardest part. When I had to take my 5 year old to get her echo, I was fine going and doing it - but afterward, it was difficult. Just waiting for the results. Her results were fine, but still I hate the waiting, not knowing, and not understanding. I don't want to be offend anyone, but I also want to make sure my children are getting the best care.
So good luck and hang in there!
Amy
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[Re: children's results]
Author: Rhonda (---.sc.charter.com)
Date: 09-23-02 15:30
Thanks, Amy!
Author: Rhonda (---.sc.charter.com)
Date: 09-22-02 20:35
Hi all....once again,
My two kids, 3 and 7, had their echos,etc. done 3 weeks ago. My husband has hocm and just had a myectomy last week. My question is about the kids' echos. 7 year old's was perfectly fine. 3 year old's heart was a little different than her big brother's. Her heart was a little thicker all around and a minute amount of thickening at the top of the septum. The Ped. Card. said he wanted to do another check in one year on her to see if there was any more thickening, and if so, then he would "upgrade" his concern and watchfulness. If it looks exactly the same, he said it could just be the way her heart "looks". He said that if he did not know anything about her family, he would say that her heart loooked normal, but since it is different than her brother's (per doctor-"siblings hearts generally tend to look the same") , and since he knows about her father's condition, he wanted to watch it.
I am just wondering if anyone has had a similar experience with their children's check-ups? And does hcm start out this way in a small child? Is there anything I should be looking for....SOB,etc. At this time the doctor said no restrictions for her because she is appears to be a perfectly healthy normal little girl.
Thanks , Rhonda
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: children's results]
Author: Reenie Smith (---.snbrca.adelphia.net)
Date: 09-22-02 20:39
Rhonda,
My son had a "high end normal" septal measurement when he was 4. He recently had another echo and all is normal. They think his was a little thicker because he's very active and your heart thickens some with exercise like any other muscle. Not hypertrophied, just on the high end of normal. I hope this makes you feel better. By the way, he had no restrictions on his activity either.
Reenie
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: children's results]
Author: Rhonda (---.sc.charter.com)
Date: 09-22-02 20:46
Thanks Reenie! My daughter does tend to be at the "high end " of active most the time!
More so than her big bro!~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: children's results]
Author: Amy N. (---.tnt3.seymour.in.da.uu.net)
Date: 09-23-02 01:24
Rhonda,
With my son, the pediatric cardiologist originally wanted him to have a repeat echo at 6 months when he showed signs of HCM. My family doctor explained it in a similar way your doctor did, saying it just may be the way his heart looks. But we ended up going to see the pediatric cardilogist because of a possible family link. They put my son on some medicine and now the pediatric cardiologist says come back in a year. He is on no restriction and is really active also. The doctor said trying to limit his activity at his age (19 months) would just upset him and would be impossible. And they really haven't diagnosed him at this point. The doctor said it's just one set of test results.
The waiting is the hardest part. When I had to take my 5 year old to get her echo, I was fine going and doing it - but afterward, it was difficult. Just waiting for the results. Her results were fine, but still I hate the waiting, not knowing, and not understanding. I don't want to be offend anyone, but I also want to make sure my children are getting the best care.
So good luck and hang in there!
Amy
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: children's results]
Author: Rhonda (---.sc.charter.com)
Date: 09-23-02 15:30
Thanks, Amy!