If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Anxiety attacks?

Collapse

About the Author

Collapse

HCMA FORUM ARCHIVE Find out more about HCMA FORUM ARCHIVE
This topic is closed.
X
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Anxiety attacks?

    [Anxiety attacks?]

    Author: Karla (---.proxy.aol.com)

    Date: 09-19-02 08:07

    Hi, Gang,

    I'm wondering if hubby's 'anxiety attacks" are TRULY that OR it's a worsening of his HCM symptoms?

    For those of you that suffer from anxiety attacks, how do you distinguish the difference in the pain?

    Hubby has a history of 'anxiety' - but that diagnosis came before we learned he had HCM...they used to be an occassional event, but he had them 3 days in a row last week and another yesterday. (he does take Xanax for them, which he says, "helps a little")

    Anyone care to share their experiences? Lisa, any thoughts????

    Thanks!

    Karla

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Anxiety attacks?]

    Author: Sarah B.-Board Moderator (---.client.attbi.com)

    Date: 09-19-02 10:02

    Dear Karla,

    Is hubby seeing an HCM specialist? If not, I think it is time. If the xanax is not working, he needs to find out if he is having HCM-related symptoms instead.

    While other people's experiences may be informative here, the real problem is that everyone is different and not even two panic attacks are always the same. So I think it is very important for hubby to be seen by a cardiologist asap and a specialist even sooner.

    take care,

    S

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Anxiety attacks?]

    Author: Glen (---.com)

    Date: 09-19-02 10:13

    Karla, in my case, it was almost impossible to distinguish the difference between the real symptoms and an anxiety attack.

    I suffered thru anxiety attacks for about a year when I was diagnosed 30 years ago and as far as I was concerned it was my HCM and I was going to die.

    Obviously I didn't and they finally went away as I learned to cope with HCM.

    Just for the reason that it is very hard to tell the difference, hubby must see an HCM Doc to see if they are real.

    I wish you and him good luck

    Glen

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Anxiety attacks?]

    Author: Amelia Haynes (---.proxy.aol.com)

    Date: 09-19-02 21:50

    I had both anxiety attacks and claustrophobia prior to my surgery for mitral valve replacement, no myectomy was indicated. Have not had even a hint of either since. I commented to my husband just this week on the absence of both but we don't know the reason. I thought it was the CHF and SOB and since I still have both don't know what the reason was and why I do not have them now. I did not discuss this with my cardiologist but I did notice that they were were very patient with my fears. Just one more reason to be thankful for the surgery.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Anxiety attacks?]

    Author: Karla (---.proxy.aol.com)

    Date: 09-20-02 07:39

    Hi, Gang,

    Thanks for your insight and thoughts... my thinking/opinion is that the 'anxiety attacks' are due to HCM instead. Hubby's complaints of extreme fatigue and anxiety were diagnosed as dysthymia (a mild form of depression) about 5 years ago. I never thought that diagnosis 'fit' as mentally he had a desire to do things, but was just too fatigued. The doctors just kept switching his meds; as none of them really seemed to help.

    When I had a conversation with Lisa after he was diagnosed with HCM, she had told me that depression was one of the top mis-diagnosises of HCM. BINGO! Seemed to me that we finally had a CORRECT diagnosis for his fatigue and all the othe symptoms that they had labeled dysthmia!

    The FRUSTRATING part of this is that even NOW that he has been diagnosed with HCM, his primary care physician AND the cardiologist are STILL chalking up his symptoms to the depression!! (The last 'cardo' we saw said..."I'm not convinced that your fatigue is related to your heart"..........HUH??????)

    Because of this, hubby still tends to be in denial about his HCM, and still beleives that it's just 'anxiety'. (It's interesting that yours went away after your surgery, Amelia)

    I am pushing (gently, but assertively!) for him to see Dr. Lever in Cleveland in November - yes, Sarah, it is time! It would be easier to convince hubby to go if these misinfomed doctors would quit sluffing it off and stop telling him, " Oh, what you have isn't that bad..."...yeah, right...let's just OVERLOOK that his report reads 'severe concentric hypertrophy'!! The last one made us feel like he had something as simple as stubbed toe!

    SO glad for the boards here, and the HCMA....such a life-line!!

    Karla

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Anxiety attacks?]

    Author: beth (---.nyc.rr.com)

    Date: 09-20-02 10:16

    it seems like it's very hard to distinguish between anxiety and hcm symptoms.

    my friend who died suddenly of hcm complained often about anxiety symptoms before her death and used xanax occassionally to alleviate those symptoms---

    she complained of waking at night with a pounding, racing heart, she complained of some similar anxiety symptoms during daylight hours as well --- she was convinced she was just "anxious" because she had HOCM (although she told us her diagnosis was IIHS) and was just an anxious person overall who had other stressors in her life which she continually tried to manage away to alleviate those symptoms.

    e.g., "if i change my job and choose a lower key career my symptoms will get better", "if i downgrade my lifestyle so i don't worry about money so much my symptoms will get better", etc...........

    i now believe that part of her symptoms were of course anxiety. who wouldn't be anxious thinking about living with a condition like HOCM? but ultimately, i think her anxiety symptoms were all about her condition. and not just "anxiety".

    get to a specialist. it's important.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Anxiety attacks?]

    Author: Cathy Hilley (---.171.und.NoDak.edu)

    Date: 09-20-02 13:17

    Last March, three days before my 18-month project was scheduled to go into production, my dear mother passed away...my father had died 5 months earlier. I took a week off from work to take care of funeral arrangements. The night after the funeral, I had chest pain - first time I have had such symptoms. The following week, as the project was moved to production, I had two more "anxiety attacks" - some pain, and a feeling of being paralyzed from the brain down - just not able to force myself to act. This was the beginning of a marked increase in SOB for me, and now, 6 months later, I am better, for no particular reason. I talked to my internal medicine doctor and cardiologist, asking if stress could increase the HCM symptoms, and they didn't know the answer. I spoke to Lisa about a month ago, and have been following the message board since then, and have noticed the comments about stress, and this one, about anxiety attacks. My personal opinion is that my whole experience was greatly affected by stress.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Anxiety attacks?]

    Author: Pat H (---.proxy.aol.com)

    Date: 09-20-02 23:09

    I had Anxiety attacks for over 2 years according to the doctors before I was diagnosed with HCM. Within 3 months of losing my father, I was in the hospital with an irregular EKG and the cardiologist decided it was not anxiety attacks and continued to run tests until he found the HCM. That was 7 years ago and I have what I call a stressful time before a HCM flare up. I usually have it happen within a 36 hour time frame before I experience the irregular or flutter heartbeat. Doctors have not documented one yet. Most of the doctors I have had experience with do not understand HCM. I also coutinue to hear the same thing from the doctors "I'm not convinced that your fatigue or chest pains are related to your heart". Just what do they think is causing it.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Anxiety attacks?]

    Author: Sarah B.-Board Moderator (---.client.attbi.com)

    Date: 09-21-02 01:36

    Dear pat

    Have you seen a specialist yet?

    S

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Anxiety attacks?]

    Author: Pat H (---.proxy.aol.com)

    Date: 09-21-02 22:56

    I just found a new cardiologist, I thought, that was willing to work with a HCM specialist. Because there is 3 family members in the area, we all would like to go to the same one. Last one didn’t want me to read or believe anything about HCM on the Internet. I went with my 85 year old Mother to her yearly appointment with him. He stated that Atrial fibrillation, mitral valve regurgitation, and left ventricular hypertrophy, and an ejection fraction of 55%, was not a sign of HCM. Lisa said to get a new one when I told her that.

    I spent weeks speaking to office managers before I found one that was willing to answer all my questions about the cardiologist. My first meeting went great; office visit lasted over a 2 hrs. between the nurse and the doctor. The Dr. answered most of my questions. She also stated that the more information available the better it was for both of us. She wanted a new stress-echo because it had been over 3 years since my last one and it was with the other cardiologist. I had the stress-echo last Tuesday and she was to talk to me after it was done. That didn’t happen, so I’m still waiting for her call or for a new office visit. Not sure where I stand now. The tech stated she felt I didn’t have IHSS but did have an enlarged septum. Sorry to gone on and on, so back to your question. No, the family doesn’t have a specialist as of now.

    I had talked to Lisa in August. She was looking into finding one. I know she is busy so, I thought I would give her enough time to research and recommend a HCM specialist that would be near Michigan. Have a sister in Indiana it that helps. I know that I have HCM but do not feel I have HOCM, so I felt I could wait until she had time to work on it.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Anxiety attacks?]

    Author: Karla (---.proxy.aol.com)

    Date: 09-22-02 09:02

    ..interesting to see that others experience 'anxiety'...I guess the million dollar question is if it is truly anxiety or HCM related. I can see why having this fickle, enigma of a disease could make one anxious.

    To clarify, hubby had these so-called anxiety attacks (not panic attacks) years prior to his being diagnosed with HCM this past May. I feel that the anxiety/dysthymia diagnosis he kept getting from the doctors was a MISdiagnosis....that it has been due to his heart all along...not a doctor, mind you...just my opinion.

    He just confessed yesterday that with the "anxiety" episodes he experienced last week he felt his heart 'racing' - this is a new symptom for him. The occassional xanax that he takes does not help, so he doesn't take it. His other symptoms continue...SOB, dry cough and fatigue...you know, the usual HCM stuff.....good days and not so good ones! It certainly doesn't appear that his medication - 50 mg. of Lopressor does much to alleviate his symptoms. Do some people with HCM worsen rather quickly? (His thickness is not in his septum, but severe all around his LV)

    Yes, Sarah, we have seen 2 different cardiologists here in own. Our last visit was in August. Like so many other stories I read on the boards, he's obviously not in the know about HCM and 'pooh-poohed' hubby's complaints on our visit. (read previous posting) This was the second cardiologist we had seen, as the first one was even worse. I called Cleveland Clinic and the first available appointment is in November.

    I think hubby doesn't tell me how he TRULY feels at times because these so-called 'doctors' have told him what he has is 'mild' and treat it like it's no big deal....... .

    Plus, I'm sure he's scared and still swimming in the river of DENIAL.....

    This may sound like a silly question...but, how do those of you that live with HCM (or spouses of those) know when it's time for a trip to the ER? How do you make that judgement call?

    Karla

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Anxiety attacks?]

    Author: Board Moderator-Sarah B. (---.208.71.135.Dial1.Chicago1.Level3.net)

    Date: 09-22-02 13:52

    Dear Pat,

    That tech is clueless since "IHSS" is outdated and HCM-ers can have hypertrophy in the septum or the lv or both.

    Dear Karla,

    I hope you can get hubby to a real specialist soon. It sounds like he doesn't have any anxiety attacks, only HCM episodes.

    Bad chest pain that doesn't go away after about 20 minutes, heart rates over 100 for more than 15 minutes, dizziness, extreme sob--all are good reasons to seek medical attention.

    PS not to scare you, but my dad died because he refused to acknowledge how bad his symptoms really were and 911 was called in too late to save him (he had asthma).
    NOTE: This is a post from the previous forum message board.

Today's Birthdays

Collapse

Working...
X