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Lisa and Sarah you were Right!

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  • Lisa and Sarah you were Right!

    [Lisa and Sarah you were Right!]

    Author: Mary Sharp (---.proxy.aol.com)

    Date: 09-09-02 23:19

    I am ready to here it! I TOLD YOU SO!

    Today was absolutly awful! It began by a 7 hour wait to get the procedure done. There was another lady across the way that had the septal ablation done by my cardiologist. She seemed so nice and caring to them holding the woman's hand saying everything would be great. Then she turned around and saw me there and almost looked shocked I was there. She kinda reluctantly walked over and told me that she still could not figure out why I was having chestpains. I proceeded to tell her that I had spent the last weekend in the hospital and that my local cardiologist wanted her to read his paper discussing my admit and his favorability about the ICD. She never even bothered to look at it. I also stated that they wanted me to go and get the third opinion. Her response was what " you don't want to come here for treatment". I said no that wasn't it at all I tried to joke and said I wanted a tie breaker because they can't agree on anything. She said I'll have my secretary forward your records to him. She then proceeded to ask who it was that I wanted to see. So I told her that I wanted to see M.Maron. She snidely remarked you've been looking on the internet haven't you. At that point I got a little upset and said that that seems like the only place I can find real answers to my problem. She then stormed out of the room and I didn't see her until after the procdure 6 hours later.

    Now this is where I am confused more than anything! They proceeded with the EP study and well I guess I knew it was no good from the beginning. My EP didn't even introduce himself to me. So I still don't know who did it! But during my EP aparently they did stimulate V-fib and I had to be shocked back. (THAT SUCKS MORE THAN ANYTHING IN THE WORLD) . But this is the kicker of it all my EP Study still came back NEGATIVE. Can someone please explain this to me!

    Lisa I will try and call you tomorrow I am scared more than ever now! Sorry about the long post but I'm furious!

    Mary S.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Lisa and Sarah you were Right!]

    Author: Amy N. (---.tnt1.seymour.in.da.uu.net)

    Date: 09-10-02 00:27

    Mary,

    I just want to say 'Hang In There!' My trip to the doctor with my 18 month old for 3 hours was no picnic (right during nap time), but I can't even imagine what you went through. To be somewhere for 7 hours and then what you had to go through, well you definately need a gold star for the day. I hope you get things worked out soon. I know it's hard to sit back and not get the answers you need. Don't let the stress get you down, because there's a lot of us pulling for you.

    Amy

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Lisa and Sarah you were Right!]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 09-10-02 00:43

    Dear Mary,

    I'm soooo very sorry that you had such a trial today. There is no excuse for a wait that long --they should have rescheduled you. Period.

    And that cardiologist (I refuse to write "your" cardiologist since I'm hoping you have "fired" her!) is really sad. She is clearly very insecure and defensive and is NOT putting your care first. If she thinks it is a personal insult to get a second opinion, then she shouldn't be a doctor, she should be a pharmacist.

    Anyway, I'm not going to say "I told you so." You made your choice and you learned from it. As for the EP test results, um, I actually don't understand that one either, but from everything you've said, it doesn't sound like those people know a heart from a hole in the ground.

    How's that referral coming along? ****, I'll drive you to Boston myself if this goes on much longer!!!

    Sarah

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Lisa and Sarah you were Right!]

    Author: Matt (---.disney.com)

    Date: 09-10-02 11:57

    Mary,

    Like Sarah said, I'll get you to Boston too. American Airlines has non-stop flights for $135 round-trip right now. I'll book the flight and take you to the airport myself. Heck, I may even pick you back up.

    My advice is to make the appointment with Dr. Maron ASAP and worry about the referral and financial aspects later. Knowing where you truly stand with your HCM will relieve so much stress.

    Matt

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Lisa and Sarah you were Right!]

    Author: Ellen (---.dyn.optonline.net)

    Date: 09-10-02 14:07

    Mary...you called the office today and left messag for Lisa...but you did not leave phone # . Please call back with it. Thanks...

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Lisa and Sarah you were Right!]

    Author: Mary sharp (---.net313.fl.sprint-hsd.net)

    Date: 09-10-02 17:36

    Sorry Still just a bit disoriented still! Will give you a call as soon as my cell is working! Which should be soon!

    Mary

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Lisa and Sarah you were Right!]

    Author: Mary sharp (---.net307.fl.sprint-hsd.net)

    Date: 09-11-02 08:15

    About how long does it take to recover from all of this. My leg is killing me and ribs from the shock. I had a cath done in February and I was just fine! they told me this would be easier because they used a vein. Any suggestions would be nice. I am so tired right now I don't even feel like going to school.

    Mary S.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Lisa and Sarah you were Right!]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 09-11-02 12:26

    Dear Mary,

    Tylenol and a nap are my suggestions (oh, and never letting any of those people touch you ever again) (oops, did I say that out loud?) Everyone is different and every procedure is a little different, so just be good to yourself and let yourself heal. God knows the last thing you need is for the incision to open. If you don't improve, call the doctor and see if there is something they can do for you.

    hang in there, just think "Boston, Boston, Boston" over and over...

    S

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Lisa and Sarah you were Right!]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 09-11-02 13:36

    Mary Mary Mary....

    I'm sorry you had such a bad day!

    No "told you so's" here, you did what you had to do. I cannot say anything but..please go to a specialist sooner than later, you will feel better (in your heart and your head!).

    I am not saying your doctor is a bad person or a bad doctor... you guys are just not on the same page....turn the page my dear... start over.

    BIG HUG!

    Lisa

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Lisa and Sarah you were Right!]

    Author: Mary Sharp (---.proxy.aol.com)

    Date: 09-12-02 07:39

    Thank you so much for all of your support. These past few days have been tough. Now it is time to rest as soon as I get out of school today I am heading over to the Vero Beach resort for a couple of days of R&R. A couple of friends at work had extra points from the vacation club and booked me two days so I could forget about everything just for a bit! So I'll be thinking about you guys while I am laying out by the pool and singing IT'S A SMALL WORLD JUST FOR YOU LISA!

    Talk to everyone soon!

    Mary

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Lisa and Sarah you were Right!]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 09-12-02 11:28

    Dear Mary

    Yeah! Have a good time and thanks for letting us you'll be away from the machine for a few days so we won't worry!

    S

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Lisa and Sarah you were Right!]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 09-12-02 19:35

    Mary..

    have a great time...but sing something else!! Hey I spoke to Dr. M today...change in plans for me...call me next week.

    Lisa

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Lisa and Sarah you were Right!]

    Author: Mary Sharp (---.proxy.aol.com)

    Date: 09-15-02 20:07

    Hey everyone! What a nice weekend other than clouds and rain! I so needed this! If only it could have lasted longer! Oh well I'll be taking longer breaks if I can ever stay out of the hospital and keep my vacation time . I think this last week was one of my worst. But I was able to find comfort with you guys and that makes all the world to me right now!

    My local cardiologist did order a doppler of my leg and it turned up with no clots! Good news there! But it has been almost a week and my leg is still killing me! I was supposed to return to work yesterday but could not tollarate the standing. I made it through six hours today but it was painful! Any suggestions would be a blessing right now. It is getting darker and darker and some mild swelling. Is this something I should be worried about? I guess the reason it has me so concerned is that my last catherization didn't even leave a bruise and I was walking perfectly the next day!

    Oh by the way Sarah I did tell my local cardiologist that I never want to see that wonderful cardiologist again! Enough is Enough!

    Mary S.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Lisa and Sarah you were Right!]

    Author: Sarah B.-Board Moderator (---.client.attbi.com)

    Date: 09-17-02 19:44

    Dear Mary,

    Well, not being able to stand is definitely a medical condition to recitfy if at all possible!!! I don't know what it is, but please talk to the doctor again.

    take care,

    S

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Lisa and Sarah you were Right!]

    Author: Matt (---.disney.com)

    Date: 09-17-02 23:45

    Mary,

    Any luck with getting your referral to se Dr. Maron? I hope so soon. Good news for me, my HMO approved my visit to Jackson Memorial for my evaluation. I should be hearing from the hospital any day this week (after they go over my records). Talk about "baby steps".

    Take care. Matt

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Lisa and Sarah you were Right!]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 09-18-02 13:22

    Mary--- I will call you back soon!

    Lisa

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Lisa and Sarah you were Right!]

    Author: Mary Sharp (---.proxy.aol.com)

    Date: 09-18-02 23:26

    Matt, I am so happy you are getting somewhere. I am supposed to find out anyday now! Lisa i hope to hear from you soon!

    Mary S.
    NOTE: This is a post from the previous forum message board.

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