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  • first appt with specialist next week

    [first appt with specialist next week]

    Author: Mary (---.wi.rr.com)

    Date: 09-06-02 22:14

    I have my first appointment with an hcm specialist next week. this is in response to what I considered to be a very uncaring and unprofessional response from my regular cardiologist about tee results. The results showed over-all thickening of the heart, not just the septum, and a leaky valve, but the cardio didn't go into details and didn't want to see me for another year.

    So I want some advice about any questions I should ask this doctor. I'm having a-fib almost every day, despite being on amio and flecainide and a couple of other meds. I get out of breath just doing my housework. I have very little tolerance for exercise. I would like to know what my options are--should I just come out and ask the doctor that? I've been told I should find out exactly how much leakage I'm having from the valve. Anything else? Any input would be much appreciated. Mary

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    [Re: first appt with specialist next week]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 09-07-02 01:36

    Dear Mary,

    As everything you want to know, and the doctor will tell you what your options are --yes, you should ask that, but any good doctor will offer that info after evaluating you.

    Write down all of your questions and bring the list with you --you will forget one, guaranteed, otherwise.

    You will want to know your wall measurements, your gradient, and your prognosis. And your options and if you have any more drug options available to you. Would a myectomy or an ablation help you?

    good luck

    Sarah

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    [Re: first appt with specialist next week]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 09-07-02 10:42

    Mary,

    Sarah is correct..sounds funny but study up for your dr's appointment THINK about the questions you want to ask, Write them down, Do not rush though questions and answers ...make sure you understand what you are being told...if you do not ask him/her to re word it for you.

    I know you are a very smart person so please do not mistake my suggestions for a lack of respect for you...being in a dr's office is a bit unsetteling for some and can though us of our balance...also...make sure you anticipate what some answers may be..so think of your questions like a flow chart... "IF yes than Why..IF no than What"...etc.. It really does help.

    Good luck and let us know how you do!

    Lisa

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    [Re: first appt with specialist next week]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 09-07-02 21:15

    I want to reiterate the bit about writing questions down. I'm considered a very smart person and I've seen a doctor at least every 6 months, if not more, since I was 16 (I'm 33 now) and I STILL have to write every single quesiton down every time or I guarantee I'll walk out of there and forgotten the MOST important question. You get talking about other things, you get distracted, you get test results or you hear something you didn't expect or the doctor takes a phone call or whatever, and the question goes flying out of your head. (ok, my head).

    So make a list and check it twice. ; )

    S

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    [Re: first appt with specialist next week]

    Author: Sandy (---.proxy.aol.com)

    Date: 09-07-02 23:00

    I've carried it a bit further. I create a document on my computer for all the questions, print it out to take along & write down all the answers while I'm in the Dr's office. When I get home, I can enter all the answers on the saved document & can go back to it in case I forget what the Dr said. With so many questions flying around in my head & so much new info to absorb, this really helps me.

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    [Re: first appt with specialist next week]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 09-08-02 03:07

    Dear Sandy,

    You are brilliant. Period.

    S

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    [Re: first appt with specialist next week]

    Author: Sandy (---.proxy.aol.com)

    Date: 09-08-02 10:31

    Not really! I just have too many "senior moments" lately & don't trust my memory anymore....but it would be nice if the method could help others.

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    [Re: first appt with specialist next week]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 09-08-02 11:28

    Dear Sandy,

    Yesterday, I was working on a special database project for my old job and I was told that we were exporting each data record individually. I have weak wrists and the idea of doubling or tripling the amount of keyboard time did not appeal to me, so I insisted on batch exporting and worked up a system to do it. I was lauded, but a health related work around was my only priority! So I know how you feel. But it still makes you smart!!!

    S
    NOTE: This is a post from the previous forum message board.

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