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PAINS

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  • PAINS

    [PAINS]

    Author: AMY (192.76.86.---)

    Date: 09-06-02 10:58

    MY SOON TO BE HUBBY HAS BEEN HAVING CHEST PAIN OVER THE LAST COUPLE OF DAYS, HE HAS HCMA AND HAS A CARDIO HERE IN FORT WAYNE INDIANA. HE THINKS THAT IT MIGHT HAVE JUST BEEN GAS, BUT THIS IS THE FIRST TIME EVER THAT HE HAS SAID ANYTHING TO ME WHICH MEANS IT MUST HAVE BEEN PRETTY BAD. HE CALLED HIS DOCTOR AND HE SAID OH WELL I WILL GET YOU IN NEXT THURSDAY!!! WELL STEP OVER HE SEEMS REALLY CONCERNED, IT COULD BE SOMETHING VERY SIMPLE OR SOMETHING REALLY BAD, AM I OVER REACTING??? WE HAD ALREADY HAD A APPOINTMENT SCHEDULED FOR THE 17 BECAUSE HE IS HAVING A DEFIBULATOR(SP) PUT IN SOON. HE IS 32 AND IS ALL AROUND HEALTHY BESIDE THE HCMA. DO YOU THINK THIS IS THE RESPONSE THAT A DOCTOR SHOULD GIVE YOU ABOUT SOMETHING THAT IS SO IMPORTANT? WE ARE STILL PLAYING PHONE TAG WITH LISA FOR SPECIALIST, BUT WE WILL KEEP TRYING!!!!

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    [Re: PAINS]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 09-06-02 11:08

    Dear Amy,

    Did the doctor know about the chest pains? Did you talk to him or the finance? He may have downplayed the pain or the doctor is out of it.

    If he has anymore chest pains, just go to the ER if the doctor is non response. If finance is in line for an ICD, then chest pains are a real concern and should be addressed immediately.

    Sarah

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    [Re: PAINS]

    Author: AMY (192.76.86.---)

    Date: 09-06-02 13:56

    Sarah,

    yeah we called the doctor to see what we should do and if he could get him in to see him. He is my soon to be husband and he talked to the nurse who in return called the doctor. That is what i said if he has any more pain we are going straight to the hospital, have you ever heard anything like this before? Do you know any causes?

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    [Re: PAINS]

    Author: Jerry Salzman (---.indy.rr.com)

    Date: 09-06-02 14:16

    Amy,

    He is scheduled for an ICD and is having chest pains? Doesn't sound like nothing to me? If he has HCM there are no experts in Indiana. It doesn't mean the doctors are not good, it just is there are not enough of us with complications for the local doctors to have enough experience. Talk to Lisa, but the closest for you would probably be Cleveland or Minn. It was a 6 hour drive to Cleveland from here in Indy, but worth it when it came down to surgery for me.

    Jerry

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    [Re: PAINS]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 09-06-02 14:41

    Dear Amy

    Well, I can't imagine any reason why a doctor with a patient on track to get an ICD who is having chest pains would be put off like that. I can think of some smart-*** witicisms for what is wrong with the doctor, but I can only urge you to schedule a time to talk to Lisa --I know you have tried to get in touch, but she does make phone appointments which may be what you need to do.

    Finance really needs to get to a real doctor.

    S

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    [Re: PAINS]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 09-07-02 10:53

    Amy -

    If he is ever concerned do not pass go do not collect $200...go to the ER!

    Chest pain in HCM is common and I have found that being dehydrated can make mine worse. So make sure he is drinking pleanty of fluid, If he is having chest pain have him lay down , get his feet up and just breath. THe pain is sometimes made worse whe you get upset over the pain... I know..I know Of course you are going to be upset over chest pain, but you have to work your way through it. I have been doing it since I was 12 years old and everytime it happened when I was a kid..I though..OH NO I am gonna die...Well after 100's of times and the fact I was still alive....UH I figured out that it was not going to kill me and to relax a bit.

    I AM NOT SAYING to disregard the chest pains, tell your doctor and seek treatment.

    Remember the biggest risk here is sudden death...if you feel pain it is highly likely that it is not an Arrthymia...and that you will be OK.

    REMEMBER NO NITRO if you go to the ER it can make the pain worse!

    Breath

    Lisa

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    [Re: PAINS]

    Author: Mary Sharp (---.proxy.aol.com)

    Date: 09-07-02 22:52

    I have a question! How on Earth can you get the drs. in the ER to stop giving you nitro! When I was in the hospital last weekend the first thing they did was give me nitro. Actually they gave me two I told the dr. that nitro did not help me that all it did was bottom out my bp. But of course to this person I was the patient I didn't know what i was talking about. It's only my body right? Well I actually ended up on an IV of Nitro and did not feel well at all. Any hints on how to stop this!

    Mary

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    [Re: PAINS]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 09-08-02 03:10

    Dear Mary,

    Wow. I've been to the ER a million (ok, a dozen) times and have never, ever, ever been given nitro. Must be a regional thing?

    Since they refuse to believe you, I suggest a medic alert (medicalert.org) that says NO NITRO on it. That they will believe. It takes a couple weeks to get the bracelet --if you think you need back up before then, have your doctor write you a note and keep it in your purse.

    I know how you feel though --I have had to argue over my medications so many times in the hosptial and ER. Jeez.

    S

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    [Re: PAINS]

    Author: Mary Sharp (---.proxy.aol.com)

    Date: 09-08-02 07:30

    yeah. In my EMT class they push nitro alot to. We as EMT's cannot give it to patients who do not have it prescribed but the medics do and it is standard procedure in this area. HEART CONDITON = Nitro!

    Mary

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    [Re: PAINS]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 09-08-02 11:28

    Dear Mary

    What an opportunity to spread the word!!!

    S

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    [Re: PAINS]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 09-08-02 11:44

    Mary -

    YOU HAVE RIGHTS and doctors must listen to you, failure to is called malpractice. State to the staff that you can not have nitro and it WILL drop you b/p refer them to them to the PDR where it clearly states that NITRO is contraindicated in HCM.

    You may want to take a copy of the PDR page and keep it with you and hand it to any emergency responders so they take you seriously.

    NO NITRO!!

    Lisa

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    [Re: PAINS]

    Author: Dolly W (---.proxy.aol.com)

    Date: 09-08-02 17:19

    I've had the same problem. The first thing that they want to give you when you have chest pain is nitro. I've told them that it makes my B/P bottom out and I pass out, but they insist and put nitro paste on me. They monitor my B/P, and sure enough - it happens every time! It's a shame that we have to tell them how to, or NOT to, treat us, and we are not believed.

    Lisa, thanks for the PDR info.

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    [Re: PAINS]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 09-08-02 17:37

    Dolly - -no problem!

    Lisa

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    [Re: PAINS]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 09-08-02 19:38

    To all....

    Wow... I thought my local hosptial had some problems, but the one thing they've always done is respect my "no." Most of the time, anyway. I have had a few arguments with them, but I have always been right and whenever I backed down, I got screwed, so I never back down anymore, no matter what. It is a shame it has to be that way.

    S

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    [Re: PAINS]

    Author: Debbie (---.glen-net.ca)

    Date: 09-09-02 10:26

    I'm a little confused about the no nitro. My husband was prescribed nitro for his chest pains and carries it everywhere. When he does use it he gets a terrible pain rushing to his head, but was told this could help the chest pain and tightness. Do you think that this is not a good idea

    thanks for any info

    Debbie

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    [Re: PAINS]

    Author: Bryan Lombardo (---.bos.east.verizon.net)

    Date: 09-16-02 16:36

    I was told buy my primary care physican no nitro. He said it could make it worse.. and I over heard one of the ER doctors when i was in the er room for chest pains one day say "no nitro it will make the artieries harden up" I never asked about that though. One other weird thing that I never really thought about.. When I was in the ER my blood pressure was very low so they refuse to give me my lopressor. When I asked my cardiologist why this was he said if taken a beta blocker when the heart rate is to low it can cause it to collapse. Is there any truth to this has anyone ever heard of this? Two more days till i go to the specialit!!!!!
    NOTE: This is a post from the previous forum message board.

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