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  • Additional Diagnosis

    [Additional Diagnosis]

    Author: Petra (---.dip.t-dialin.net)

    Date: 09-02-02 11:58

    Hello,

    first I hope you'll excuse my english vocabulary and grammar, I'm from Germany and schooldays are gone for more than 20 years.

    I'm very happy having found your board. There's one in Germany too, but it's frequented only by a few people, so there I find news one's a month.

    I know about my HOCM (thickening of septum and backside) since I was 15 (because of an ECG made before a tonsillitis, and additional echo, angiography and biopsy) and since then I take my Verapamil 120 mg three times a day and see my cardiologist about four to five times a year. Now I'm 39 and all I heard until May 2002 was "it's all the same, nothing changed, the septum is about 1,5; obstruction has gone, go on with your Verapamil, nothing has to be done". But since about one year I felt worse, before I was oftenly tired, now it's worse, before I had difficulties with my breath after two or three floors, now after one, I've more rhythm interferences and so on.

    In May I had my first MRT and in August an angiography and EP (besides, on your board I read for the first time, that EP doesn't tell anything on HOCM!)

    MRT showed a great area of fibrosis/necrosis at the backside, and they told me, the front side of my heart is getting thinner, angiography and EP results are like the years before.

    My cardiologist wanted to wait up for the EP before talking to me and is now at holidays.

    Now my question:

    Did you ever hear of such an evolution of HOCM?

    May that be the reason for feeling worse? Or am I hypochondriac?

    Is there anything I can do?

    Now greetings from Germany and you are doing a very great job!

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Additional Diagnosis]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 09-02-02 12:40

    Hello Germany!

    We do get a rather international crew here dont we!

    Well, what you are saying seems reasonable to a degree. Yes you can develop more "scar" tissue aka fibrosis/necrosis within your heart. This may lead top disease progression. You may want to discuss changing your medications to a beta blocker, unless your heart rate is very low.

    I can not say for sure but I do think this is possible as to why your feeling worse, no I do not think your a hypochondriac

    Your english is very good...so do not be afraid to post often, we are happy to have you here!

    Best wishes from the USA!

    Lisa
    NOTE: This is a post from the previous forum message board.

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