If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you


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To all new users - IMPORTANT


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Lisa Salberg Find out more about Lisa Salberg
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  • To all new users - IMPORTANT

    Hello to all of our new message board users.

    It has come to my attention that some of you are not getting your email confirming that you have registered. It appears that some email systems are picking this email up as SPAM aka junk mail.

    If you have registered and on the bottom of the screen it says you are not permitted to post any messages please email the office at [email protected]. Please include your name, screen name and contact information and we will over ride the system.

    Upon registation the email is sent to you within moments. If you do not get the email contact us right away, there is not need to wait a day or two.

    However, effective September 2006 those accessing the message board from outside the USA may encounter a slight delay in registration as manual verification is now neccessary. This is highly unfortunate and we are sorry for any inconvienience this may cause but due to recent hacking of this site it is required to maintain the infrastructure in working order. Registration for those outside the USA should take no longer than 2 business days. If there is a delay of more than2 business days please email us at [email protected] for further assistance, it may mean we are having a difficult time contacting you.

    Thank you for joining our community and I look forward to hearing from you all!

    Best wishes,

    Lisa Salberg
    Last edited by Lisa Salberg; 09-05-2006, 10:50 AM. Reason: Update
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

  • #2
    Re: To all new users - IMPORTANT

    Originally posted by Lisa Salberg View Post
    It appears that some email systems are picking this email up as SPAM aka junk mail.
    It's also a good idea to add "[email protected]" to your address book or "safe senders" list. This will prevent future emails from HCMA from being incorrectly identified as SPAM.
    HCM patient on a quest for access to the data collected by my implantable electronic cardiac defibrillator. Diagnosed with HCM with obstruction in October 2006, at age 40. Estimated LVOT gradient of 10-23 mmHg at rest, 147 mmHg with exercise. Passionate about connected health. Join me on my quest.

    On TEDx: http://bit.ly/ICDdata
    On Twitter: http://twitter.com/hugooc


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