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Still unclear, but doing good


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  • Still unclear, but doing good

    [Still unclear, but doing good]

    Author: Cathy (---.proxy.aol.com)

    Date: 08-27-02 16:04

    Hi all,

    Well, I've been to mayo's twice now and found out some good news and some troubling news. I've found out that I do have an enlarged heart/leaky valve on the right side. I found out how to take care of that with dental procedures or any surgery. I found out that I do have pulmonary hypertension and exercise is needed to keep in shape when coming off the prednisone. I found out that if they cannot figure something out, they blame it on deconditioning. I figure, I am somewhat overweight and still very active, but am very, very frustrated with the feeling that the pressure from my HMO had more bearing on what further tests were done and what explanations we were given. I feel that mayo's is a great hospital/clinic and was thankful for my experience up there, but felt that I was treated two ways. If your tests come back normal or within what they call "normal range", they don't pursue anything. They basically come back and say, "well, your tests are within normal range and we think you are deconditioned."

    Hello? Was I laying around eating bon bons for months and gaining an astronimical amount of weight or was I mopping/vaccuming, raking, washing clothes and chasing my daughter? I think for a doctor to put a label on someone is depressing. I came home and was in a stupor state of depression for not being believed. I didn't have the "scans" that showed I had three clots, plus a lung clot, so the doctor told me, "your clots are even suspect". that statement right there, says, "I'm sorry, I don't believe you and I think you're lying about having any clots."

    In other words, some doctors have the ability to be compassionate and understanding and some don't. I guess I'll keep looking for the right one.

    I just sent my binder out to a specialist in PA, so, I am anxiously awaiting for a chance to see him. Take care everyone and you can respond what you think about my statement. I'm open to discussion at this point. I'm very Anti-medical and after two years, I think I deserve the chance to be ANGRY!


    [Re: Still unclear, but doing good]

    Author: Amy (192.76.86.---)

    Date: 08-28-02 16:20

    I understand what you said about getting tired of insurance and the medical community. There was one statement that my mom told me a long time ago and it was "Doctors are not always right" She has been a nurse for about 30 years and her advice seems to be right 99.9% of the time. There is only so much you can do with insurance companies and you are right it is not fair and you have the right to be angry, also remember LIFE IS NOT FAIR!! It plain stinks sometimes. I started reading and writing on this board because my soon to be husband has HCM. He is 32 and I am 23 and I hope that we have a lifetime of memories to share. I try to be involved in what ever I can to make sure that I am supporting him through all his troubles. My advice, "BE STRONG AND LIVE LIFE TO THE FULLEST!"
    NOTE: This is a post from the previous forum message board.