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  • joint pain

    [joint pain]

    Author: heather (---.salrm.uaf.edu)

    Date: 08-26-02 21:06

    my husband, who was diagnosed with HOCM a few weeks ago, has been complaining of joint pain, especially in the wrists and elbows lately. Is this a common symptom?

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    [Re: joint pain]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 08-26-02 23:04

    Dear Heather,

    No, I don't think that joint pain is typically associated with HCM. He could be developing arthritis or repetivitve motion syndrome depending on his job or age.

    He should talk to his GP/PCP about it. Are you talking to Lisa about getting an HCM specialist? How is he doing?

    Sarah

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    [Re: joint pain]

    Author: heather (---.salrm.uaf.edu)

    Date: 08-27-02 13:37

    Thanks for your response, Sarah.

    How about muscle aches, especially the calves and forearms?

    My husband is 26 and he works as a counselor. Since starting Toprol he no longer has the persistent chest pains that made him first seek a doctor, but he does have these other aches and pains. Also, a few times now he' s had sharp chest pain that he describes as a hard pinch at his heart. It seems to only be occasional and temporary.

    I've looked into specialists up here a bit, and have been essentially told by a head nurse in Anchorage that 1)a cardiologist is a specialist and they don't really get more specialized than that in Alaska. 2)all of the cardiologists here are equally competent to treat this condition and 3)treatment for this condition usually consists of only drug treatment; she stated that she had not heard of surgery or any other procedures being used for this condition.

    The nurse did say I was free to cancel my husband's appointments here if I wanted, but that treatment out of state would be prohibitively expensive and more than likely not covered by insurance.

    Thanks again for the reply.

    Heather

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    [Re: joint pain]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 08-27-02 14:02

    Dear Heather,

    Well, one of Toprol's rare side effects is joint and back pain. It is also rare for drug treatment to eliminate all symptoms whatsoever.

    Please e-mail [email protected] your doctor's mailing address so the HCMA can send him or her a packet on HCM info.

    That nurse is not uptodate on HCM. The treatment for HCM depends on what kind you have and how bad. You should read your insurance policy and see what recourse you have about seeing someone out of state. There are a lot of people on the mainland who have to travel out of state in HMOs and get most of it covered, so it is not unlikely to be covered in some way --but you may have to argue a bit.

    Obviously, hubby does need to be seeing a doctor and getting what treatment he can, but keep plugging away and hopefully we will get them informed over there and get hubby over here too.

    take care

    Sarah

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    [Re: joint pain]

    Author: Cynthia (---.cap.east.verizon.net)

    Date: 08-28-02 13:14

    Heather,

    It is almost scary to hear of a head nurse who has never heard of surgery for HCM.

    Good luck in finding the proper care.

    Cynthia

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    [Re: joint pain]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 08-28-02 19:18

    My my... what is going on in Alaska!...I think it is time to take a trip to the lower 48! I think you would be well advised to seek out a specialist for a consult. I can say in my experience (with nearly 1800 families!) that all 3 statements made by this nurse are anything but true!

    CALL the office we can talk.

    Lisa
    NOTE: This is a post from the previous forum message board.

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