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  • exercise?


    Author: Ken (---.cvx01.kgm.az.frontiernet.net)

    Date: 08-26-02 02:15

    I'm 19 years old and I was diagnosed with hypertrophic cardiomyopthia in September of 01, along with a heart murrmur that had a rating of three and high blood ressure. I'm taking 100 mg of Toprol Xl for this. I'm away from my cardiologist for the next several months due to living elsewhere until november, and his nurses are the most unreliable people for call backs. I was just wondering what kind of exercise all of you guys are capable of doing, besides walking of course. My cardiologist told me no competitive sports or running/jogging, so I'm just curious as to what the rest of you with this do.


    [Re: exercise?]

    Author: Glen (---.com)

    Date: 08-26-02 08:51

    Ken, Whatever exercise you decide to do be sure to clear it with your HCM specialist. HCM varies so much from person to person right from absolutely no exercise to moderate exercise.

    I am able to exercise moderately, with my HCM doctors blessing. I am 53 and the mid range for my heart rate at that age is about 110-120 and I don't allow it to go beyond that.

    I ride bikes as I also have arthritis in my hip so cannot jog or even walk great distances. Bike riding does not hurt my hip, so I am getting double benefit from doing it.

    Through the week, I ride 2-3 times about 30-45 minutes and than on the week-end I may ride 1-2 times and go about one to one and half hours.

    It also helps to control my weight.

    When I was first diagnosed 30 years ago, my HCM doctor didn't say one way or the other.

    However my family doctor who is a fitness nut kept telling me to jog and jog more, At age 21/22 I was running 5 miles a day, I would run at near my maximum heart rate, I would get tightness in my chest and think hey this can only help my condition by getting in better shape.

    Wrong, When I mentioned it to my HCM doctor he had a fit.

    I had to stop all exercise right away.

    Since then and with better knowledge he allows me moderate exercise.

    So be careful and good luck.



    [Re: exercise?]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 08-26-02 11:25

    Dear Ken,

    Glen is exactly right. There are no set guidelines for HCM except no competitive sports as everyone is so different and the range of symptoms and abilities is across the board.

    Yoga, walking, tai chi, and golf are a few things that most people are able to do without a problem. The decision about what you can and can't do needs to be based on your ability and your doctor's approval.

    take care



    [Re: exercise?]

    Author: Lisa Salberg (208.47.172.---)

    Date: 08-26-02 13:12

    I ditto Sarah for now...I will add more later.



    [Re: exercise?]

    Author: Tom (---.eosinc.com)

    Date: 08-26-02 20:19

    I think the general guideline appears to be anything "without exertion". I have been told that even mowing your yard is considered to be exerting yourself. I have a flat yard and if the weather is cool, I still mow every few weeks just because I love it. I'm probably going to get a self-propelled mower next year so I can mow more often.

    Sports that require you to exert yourself are obviously out of the question. It bites, but that's the way it is. I'm still learning to deal w/ it myself after playing competitive-level sports my entire life and just giving them up since March.

    Good luck, and stay safe!



    [Re: exercise?]

    Author: Sonja (203.32.169.---)

    Date: 08-26-02 20:29

    Hi Ken

    My husband (who has HCM) finds walking difficult but enjoys moderate bike riding and also swimming.

    NOTE: This is a post from the previous forum message board.