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Electrophysiology Studies

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  • Electrophysiology Studies

    [Electrophysiology Studies]

    Author: Mary Sharp (---.proxy.aol.com)

    Date: 08-23-02 09:39

    Are EP studies really effective in HCM? I am seeming to question everything about my Drs. right now. If I am not mistaken they really don't tell alot about the risk of sudden death but are they a useful tool?

    I am not to enthusiastic about another catherization as I am working full time and doing 11 credit hours in school I cannot afford to miss a whole day if it is not beneficial in my treatment.

    Mary S.

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    [Re: Electrophysiology Studies]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 08-23-02 12:51

    Dear Mary,

    Lately, the EP has really come under fire and is not considered a fail safe test for determing any risk for sudden death. There is a small risk of dying on the table during an EP study, as well. I don't know of any other use they really have except for the doctors to have some research results, which is not a reason in my book.

    Is this an HCM specialist who wants you to have one? If not, I'd get a second opinion.

    Sarah

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    [Re: Electrophysiology Studies]

    Author: Lisa Salberg (208.47.172.---)

    Date: 08-23-02 14:21

    EP In HCM has not proven to bwe a useful tool... see other postings on this topic.

    In a rush now...I'll comment more later.

    Lisa

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    [Re: Electrophysiology Studies]

    Author: Matt (---.disney.com)

    Date: 08-23-02 15:01

    Mary,

    The EP study I had in 99 was one of the major reasons my doctors at the time (as well as subsequent ones) felt I was not a candidate for an ICD. Boy did we prove them wrong! So I will have to say that for me, it was useless at best. Actually dangerous.

    Also, I'm going to try and drop in on you at work this weekend to say hi. Look forward to meeting you in person.

    Matt

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    [Re: Electrophysiology Studies]

    Author: Reenie Smith (---.snbrca.adelphia.net)

    Date: 08-23-02 15:51

    I am so happy that you and so many others are able to meet in person. I know it must be great to know someone who is like yourself. Besides the people on this board, who I feel I know through the postings, I don't know anyone besides my husband who has HCM. Have a great chat!!!

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    [Re: Electrophysiology Studies]

    Author: Bryan Lombardo (---.bos.east.verizon.net)

    Date: 08-23-02 23:06

    I hated my EP test!!!!!!

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    [Re: Electrophysiology Studies]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 08-24-02 00:29

    Bryan...I can not say I have ever met anyone who likes an EP test....but why do you "hate" them?? Just the idea of another lovely procedure the docs toss into the ring or did something happen?

    Lisa

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    [Re: Electrophysiology Studies]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 08-24-02 01:23

    I knew that my EPS would turn up nada but I was bullied into it by my ex-husband (good riddance) and the first thing I said when I was out, after they told me the results were negative (which is good) was "I told you so." I am such a sweet patient, I gotta tell ya!! (*grin*)

    I suspect that Bryan didn't get enough drugs and was too awake for it --am I right Bryan? I told them to make me oblivious and they did a good job of it. I remember nothing --which is the way it ought to be.

    later,

    S

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    [Re: Electrophysiology Studies]

    Author: Bryan Lombardo (---.bos.east.verizon.net)

    Date: 08-24-02 12:04

    They had to defribulate me back, which if anyone has ever had the external defribulation done they know how that feels. Then after the cream they gave me for the burns on both my back and my chest I had an allergic reation to, so I broke out in hives. It was the worst worst week of my life. But in other ways I look at that week as the best week of my life seeing my AICD has had to save me once

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    [Re: Electrophysiology Studies]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 08-24-02 12:25

    Dear Bryan

    Having had several cardioversions and being allergic to medical tape and the adhesive they use for the electrodes --I know EXACTLY how you felt. My EP burns, if any, are not as memorable as several other straight cardioversions in my mind. Big sigh.

    ICDs--what a miracle!

    take care

    Sarah

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    [Re: Electrophysiology Studies]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 08-24-02 14:09

    Bryan...with all said and done...I do think it was the best week of your life..... NO pain NO gain, I think someone once said and in your case SO true!

    I am glad you have your ICD and very glad that it did its job!!!!!!!!!!!!!

    Lisa

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    [Re: Electrophysiology Studies]

    Author: Mary Catania (---.proxy.aol.com)

    Date: 08-25-02 16:22

    Sarah,

    Now I'm very confused. I had an EP study done, not to determine whether I needed an ICD (we already knew that), but to determine how to set the ICD. Isn't that one of the reasons it's done? Is that reasoning also under fire? Although I can't say that my EPS was a nightmare, I would rather not have subjected myself to the risks involved if it wasn't absolutely necessary.

    Mary

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    [Re: Electrophysiology Studies]

    Author: Tom McVeigh (---.lbcpe.cableone.net)

    Date: 08-25-02 19:08

    Bryan,

    I know just how you may have felt. Anyways here's my two cents on a EP study.Mine was performed at the Houston VA center. The Doctors told my wife and me that I would probaly be in the study for about two hours because they did not think they could produce V-tach. HA!!! After a minute and a half I could feel it coming, straining to breath and pretty much in full V-tach. So they hit me with 380 joules, (oh did I mention that no sedative was administerd and I was fully awake). By the way I become very infuriated after someone just about electrocutes me. Needless to say, I became very aggressive and cursing the Doc told him to let me hook him up. (he was not intrested in the offer and kept his distancefrom me)

    This was just my experiance and for those of you that have to have one do not be scared this is not the normal procedure. Just chalk up another one for the VA.

    Tom

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    [Re: Electrophysiology Studies]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 08-25-02 20:30

    Tom... GEE sounds like a party! I can relate..many years ago I had a "tilt" test...they stand you straight up then lay you down..then stand you up again to see if you pass out...a party in itself! So anyway I began to feel like I am passing out..and my doc and dear friend (Dr. Winters..you all know him from the meetings) says to me.."just go Lisa let yourself pass out"...WELL in no uncertian terms I told him to ..well I think it was "go to He--" or words to that effect. I get VERY VERY angry when I feel like I am going to pass out or feel an arrthymia...my adreniline kicks in and in most cases it brings me back around.

    But anyway...Dr. W. was doing his notes as I was getting my self together and he said "... the patient became aggitated"...I said "NO STEVE I WAS PISSED OFF get it straight"

    So Tom I hear you clearly!

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    [Re: Electrophysiology Studies]

    Author: Julie E (---.proxy.aol.com)

    Date: 08-26-02 14:55

    Wow is all I can say. I cannot believe you were awake for that. My dr had me in lala land and I knew nothing was going on. I too had itchy burn marks for 2 weeks!My Dr. told me after they produced whatever it was they were trying to do, it took me 65 seconds to pass out. They kept waiting for me to pass out before I got the big SHOCK and for that I am very happy. So sorry you had such a bad experience.

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    [Re: Electrophysiology Studies]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 08-26-02 15:38

    Dear Tom

    That is one of the worst stories I've ever heard. I can't believe that guy has a license.

    Dear Mary

    ICD placement is a whole different ball of wax.

    S
    NOTE: This is a post from the previous forum message board.

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