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[ablation was done]
Author: Susan Tyrrell (208.35.56.---)
Date: 08-21-02 09:11
hello again. just wanted to let you know had my alcohol ablation done last friday aug. 16. Dr Lakkis said it worked. Hmm, thats is the best news i have heard in a very long time. but i would like to know why i still am having palpitations and still experience what i think they call sinus tachacardia, or something like that.
Doc has put me on Lopressor 50 mgs twice a day for 2 weeks, then 25 mgs twice a day for two weeks, then 25 mgs once a day for two weeks and then no meds at all after that. My body still doesn't feel right. I was just wondering if this was normal feelings after having this procedure. I am just wanting and needing some input. They said my gradient went from 88 to 0 right when procedure was done. Still have alot of unanswered questions, and doc says i need to see a shrink.
So anyone out there that can enlighten me please do so.
Once again thank you for all your time and concerns.
Susan Tyrrell
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[Re: ablation was done]
Author: Dolly W (---.proxy.aol.com)
Date: 08-21-02 09:27
Well, now, I'm confused. How can the gradient go to zero right away?
I'm assuming that there was obstruction. I thought that it took time for the septum to shrink once the procedure was done. If this is so, that would probably explain why you're still experiencing some sypmtoms, but I am in no way an expert on this subject! (By the way, I have NOT had ablation, or any other procedure for that matter, just trying to understand everything just like everyone else).
I'm sure that Lisa or Sarah will be better suited to answer questions for you and I wish you all the best!
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[Re: ablation was done]
Author: Lisa Salberg (---.dyn.optonline.net)
Date: 08-21-02 10:12
Hi-
first of all an ablation is not going to remove all symtoms of HCM nor is any other procedure known to man. If you are still having symptoms it is highly likely it is in your heart...not in your head. While the center you had your ablation at is very well respected for the procedure...I can not help but wonder if there is a true appreciation for the entire disease. You have abnormal cell structure throughout your heart and obstuction was only a piece of the puzzle when it comes to symptoms. If you are having palpitations and sinus tach - -I would really suggest a second opinion from an HCM specialist before you remove all your meds.
The meds allow your heart to relax between beats and you may well still need this after your ablation.
Dolly - Yes you can remove gradient from 88 to 0 with an ablation and with a myectomy. It is common to see a very small gradient reappear a few months down the road, these little gradients do not normally cause symptoms. Interestingly some patients with ablation leave the procedure with a small gradient that continues to drop over the next few months.
Like always...we are here if you need us!
Lisa
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[Re: ablation was done]
Author: Sarah B--Board Moderator (---.client.attbi.com)
Date: 08-21-02 12:35
Dear Susan
Lots of people with ablations still need a bit of medication to round things out. They can't ablate out every quirk or arrhythmia or there wouldn't be anything left to pump.
I second Lisa's suggestion to get a second opinion on your continuing treatment. Betablockers are good drugs, but Lopressor is an older one and you may benefit more from something newer/stronger.
take care
Sarah
Author: Susan Tyrrell (208.35.56.---)
Date: 08-21-02 09:11
hello again. just wanted to let you know had my alcohol ablation done last friday aug. 16. Dr Lakkis said it worked. Hmm, thats is the best news i have heard in a very long time. but i would like to know why i still am having palpitations and still experience what i think they call sinus tachacardia, or something like that.
Doc has put me on Lopressor 50 mgs twice a day for 2 weeks, then 25 mgs twice a day for two weeks, then 25 mgs once a day for two weeks and then no meds at all after that. My body still doesn't feel right. I was just wondering if this was normal feelings after having this procedure. I am just wanting and needing some input. They said my gradient went from 88 to 0 right when procedure was done. Still have alot of unanswered questions, and doc says i need to see a shrink.
So anyone out there that can enlighten me please do so.
Once again thank you for all your time and concerns.
Susan Tyrrell
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: ablation was done]
Author: Dolly W (---.proxy.aol.com)
Date: 08-21-02 09:27
Well, now, I'm confused. How can the gradient go to zero right away?
I'm assuming that there was obstruction. I thought that it took time for the septum to shrink once the procedure was done. If this is so, that would probably explain why you're still experiencing some sypmtoms, but I am in no way an expert on this subject! (By the way, I have NOT had ablation, or any other procedure for that matter, just trying to understand everything just like everyone else).
I'm sure that Lisa or Sarah will be better suited to answer questions for you and I wish you all the best!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: ablation was done]
Author: Lisa Salberg (---.dyn.optonline.net)
Date: 08-21-02 10:12
Hi-
first of all an ablation is not going to remove all symtoms of HCM nor is any other procedure known to man. If you are still having symptoms it is highly likely it is in your heart...not in your head. While the center you had your ablation at is very well respected for the procedure...I can not help but wonder if there is a true appreciation for the entire disease. You have abnormal cell structure throughout your heart and obstuction was only a piece of the puzzle when it comes to symptoms. If you are having palpitations and sinus tach - -I would really suggest a second opinion from an HCM specialist before you remove all your meds.
The meds allow your heart to relax between beats and you may well still need this after your ablation.
Dolly - Yes you can remove gradient from 88 to 0 with an ablation and with a myectomy. It is common to see a very small gradient reappear a few months down the road, these little gradients do not normally cause symptoms. Interestingly some patients with ablation leave the procedure with a small gradient that continues to drop over the next few months.
Like always...we are here if you need us!
Lisa
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: ablation was done]
Author: Sarah B--Board Moderator (---.client.attbi.com)
Date: 08-21-02 12:35
Dear Susan
Lots of people with ablations still need a bit of medication to round things out. They can't ablate out every quirk or arrhythmia or there wouldn't be anything left to pump.
I second Lisa's suggestion to get a second opinion on your continuing treatment. Betablockers are good drugs, but Lopressor is an older one and you may benefit more from something newer/stronger.
take care
Sarah