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My mother's restrictive cardiomyopathy problem

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  • My mother's restrictive cardiomyopathy problem

    [My mother's restrictive cardiomyopathy problem]

    Author: Joanne Lisiewski (---.proxy.aol.com)

    Date: 08-18-02 20:54

    Is there anyone out there who can help me find a hospital or hospitals that specialize strictly in restrictive cardiomyopathy? My mother has the disease with complications, and we are in dire need of some help. We are seeking a second opinion regarding her condition. Time is of the essence. If anyone has any information please email me, Joanne Lisiewski, at [email protected] as soon as possible. Thank you.

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    [Re: My mother's restrictive cardiomyopathy problem]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 08-18-02 21:15

    Joanne,

    Treatments for restrictive Cardiomyopathy are rather limited. You should go to a large center. You must check with your ins. plan and get to a center that is covered or ask for a referal out.

    If your mother is seriously ill, transplant may be an option. Many centers can help it depends on where you live and if you can travel to a larger center (mayo - cleveland - methodist (tx) your situation is different than most on this board if it is restrictive, therefor I suggest caution when reading other posings as they may well not apply to your mother.

    let me know where you live and if there is ins and I can help find something.

    lisa

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    [Re: My mother's restrictive cardiomyopathy problem]

    Author: Janice (---.mik-mn-2-210.rasserver.net)

    Date: 08-19-02 11:12

    What is restrictive HCM? This is what my cardiologist writes on all of my disability papers, but everyone has treated my condition so lightly that if they were not that concerned about it, I must be worrying needlessly.

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    [Re: My mother's restrictive cardiomyopathy problem]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 08-19-02 11:42

    Dear Janice,

    Here is a link to a very good description of RCM:

    http://www.nlm.nih.gov/medlineplus/e...cle/000189.htm

    If your symptoms are controled well, then I wouldn't worry too much.

    take care

    Sarah

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    [Re: My mother's restrictive cardiomyopathy problem]

    Author: Midge Rollins (---.obmo.socket.net)

    Date: 08-19-02 14:22

    Thanks, Sara for that web site as by HCM has developed in to RCM and there is not a lot of information. Janice, I go to Mayo Clinic for my health care and I must say they are very informative and are keeping a close eye on me. Midge
    NOTE: This is a post from the previous forum message board.

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