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  • Asymmetric Septal Hypertrophy in Myself & Mild Hyp...

    [Asymmetric Septal Hypertrophy in Myself & Mild Hypertrophy in 18 month old son]

    Author: Amy Nierman (---.tnt2.seymour.in.da.uu.net)

    Date: 08-17-02 01:39

    I wrote an early message about my 18 month old son having an echo that came back mild hypertrophy. Last September I had a gall bladder attack and went to the emergency room. When they hooked me up to the EKG because of the pain I was having it looked like I was having a heart attack. They kept me overnight and then did an ultrasound the next day and found gall stones. As a result of the funny EKG they had me come back to the hopital and have an echo. It came back and my family physician told me that I had something that could be genetic. It wasn't a big deal for me because what I had was slight, but the rest of my family (sibling and parents) should be checked. I asked about my children and he said if they come up with a murmur they should be checked. When my son developed a murmur at his 18 month check-up (didn't have it at 15 month check up), the doctor scheduled the echo and the results came back. I didn't think that what he had and what I had were the same until today (actually yesterday - I've just not slept yet). I asked for copies of the reports from my echos. My report says that I have evidence of asymmetric septal hypertrophy with the septum being 1.5 cm. with no obstruction. No one ever said anything about being rechecked or this changing. I was under the impression that I had this, but because of my age it wouldn't change. My son's says that the findings are consistend with mild (early?) hypertrophic cardiomyopathy. Does my history change things for my son? The pediatric cardiologist in Indy didn't want to see him and just wanted to repeat the echo in 6 months to see if there were changes. Should I being seeing a specialist or am I in an o.k. range? My doctor is scheduling me to have another echo since it's been almost a year. He's also scheduling us an appointment to talk with a doctor at Riley about my son. Once I realized that what they think he has and what I have was the same, I freaked out. I don't want to be a pushy mom or patient, but I also want to make sure that I'm doing everything I can to make my sons life the best it can be - no matter if he has HCM or not.

    Thanks,

    Amy

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Asymmetric Septal Hypertrophy in Myself & Mild Hypertrophy in 18 month old son]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 08-17-02 10:58

    Amy -

    I understand your confusion and can say I am sorry that your doctor did not give you a complete explaination of the findings last year. I would go back a few steps here before we move forward.

    1. Has the rest of your famliy been screened? Mom,Dad, sisters, brothers other children?

    2. Has anyone in this or past generations died early (pre age 50) of unusual reasons? (even car accidents if they were alone in the car)

    3.Have you ever had any symptoms related to HCM...or now thinking back may be HCM related (see symptoms page)?

    4.What testing have you had other than ecg and echo?

    Regarding being a "pushy" mom/patient...do not give that a second thought! you have every right to ask questions and have them answered. Further, maybe it is best for you to seek out a new local cardiologist who better understands HCM, and consider having an evaluation from a specialist for you and your son.

    Take this all step by step ...otherwise it can be very overwhelming.

    Best wishes,

    Lisa

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Asymmetric Septal Hypertrophy in Myself & Mild Hypertrophy in 18 month old son]

    Author: Jerry Salzman (---.indy.rr.com)

    Date: 08-17-02 15:01

    Amy,

    I tried writing to you directly, but it got returned. I live in Indy and have done some doctor research if you like please write me and I will give you what I know. By the way, a couple of years ago my oldest son was in Riley. It is a fabulous place.

    Jerry

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Asymmetric Septal Hypertrophy in Myself & Mild Hypertrophy in 18 month old son]

    Author: Amy Nierman (---.tnt3.seymour.in.da.uu.net)

    Date: 08-17-02 16:17

    Lisa,

    1.My parents have not been checked or my sister. I told them last fall they needed to, but they just haven't got to it yet. My dad has had an ecg (I think) before and they said his reading is not regular. My parents are planning to have some kind of heart scan when they have their physicals this fall. I also have a daughter who is 5, no one has mentioned her being checked.

    2. I don't know of anyone who has died before they were 50, but I would have to ask my parents. My great-grandfathers died at ages 59 and 55. And my grandfathers died at 75 (had numerous strokes) and 67 (heart attack). My mom's family has high blood pressure, but mine has always been consistently lower than the average.

    3. & 4. I have never met with a cardiologist. A technician did my echo and a cardiologist read the echo and sent the report to my local family doctor. The cardiologist didn't see a need to see me unless I was having other symptoms. So the ecg and the echo are all that I've had done - heart wise. As for symptoms, I'm not sure. I've had shortness of breath accompanied by wheezing, but I've always attributed it to my allergies. I've done some test at the allergy doctor about 2 years ago and my air flow was good. So when I have one of these attacks, I just assume that I've gotton into something that's flared up my allergies. In the last few weeks there's been a couple of times where my hearts beat really hard like it was jumping out of my chest. I attributed that to nerves over my son having his echo. My echo did also say something about a borderline mitral valve prolapse, with no thickening or redundancy. It also said there was a questionable 1/2 to 1 cm anterior pericardial effusion without cardiac compromise. Cannot exclude the possibiity of an anterior fat pad. Clinical correlation recommended, if patient has had pericardial symptoms. Since they attributed my pain to my gall bladder, I didn't see a cardiologist. And I haven't had any of those pains since I've had my gall gladder out. But I first had the pains 5 years ago when I was pregnant with my daugher. I called it heart burn, but I now know it wasn't. I was given some medicine after I had my daughter and didn't have any more problems until after I had my son - they started up again. Should I make an appointment to see a cardiologist?

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Asymmetric Septal Hypertrophy in Myself & Mild Hypertrophy in 18 month old son]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 08-17-02 21:18

    Hello again -

    YES please see a cardiologist, sooner than later. And call the HCMA office we can talk more about this. There are a number of issues to go over and it is hard via a message board.

    Call the office at 973-983-7429, if nobody is in leave a message I will get back to you ASAP.

    Best wishes,

    Lisa

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Asymmetric Septal Hypertrophy in Myself & Mild Hypertrophy in 18 month old son]

    Author: Amy Nierman (---.tnt5.seymour.in.da.uu.net)

    Date: 08-19-02 01:09

    I've calmed down now. It's so helpful to read the messages on the board. It helps put things in persecptive. I'm going to make an appointment to see a cardiologist. And the family doctors office has left a message for me to get with them about appointments they have scheduled (I'm assuming it's the echo for me and the visit to the pediatric cardiologist to talk about my son). I also talked with my parents and sister, they're going to have the echo. I also will be contacting you, Lisa.

    Thanks,

    Amy

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Asymmetric Septal Hypertrophy in Myself & Mild Hypertrophy in 18 month old son]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 08-19-02 07:57

    Amy,

    Great sounds like you have gotten things in order, now is the follow through. You in good shape, if you need us please call.

    Lisa
    NOTE: This is a post from the previous forum message board.

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