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  • #31
    Thanks, all!

    Prayers are the best!

    I am now in full fledged congestive heart failure with lots of fluid in my lungs, but the doc says we cannot address that question until we at least begin to make headway against this infection. Every breath is a gurgle when lying down and sometimes even sitting or standing.

    Rhoda

    Comment


    • #32
      Hi Rhonda

      There has got to be something someone can do! Since I've been a member of HCMA you have had some obsticles along the road. You are such a nice and caring person. My heart goes out to you.

      I will continue to pray for a miracle for you. You have so many people here praying for you. Please don't get discouraged. God will lead you down the right path.

      Take care and please keep us informed.
      Esther

      Comment


      • #33
        Rhoda, you have more prayers coming your way from me and all my family who I can get in contact with tonight. I hope this is a turning point for you and all will be better tomorrow.

        Reenie
        Reenie

        ****************
        Husband has HCM.
        3 kids - ages 23, 21, & 19. All presently clear of HCM.

        Comment


        • #34
          Rhoda

          Hang in there and prayers are coming from Ken and I and my entire family ok

          Shirley
          Diagnosed 2003
          Myectomy 2-23-2004
          Husband: Ken
          Son: John diagnosed 2004
          Daughter: Janet (free of HCM)

          Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

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          • #35
            rhoda,

            best wishes for a recovery. i hope the hospital experience will be a good one. is there anything the us embassy there can do to help? do they have any facilities for diplomatic staff?

            mongo

            Comment


            • #36
              Thoughts and prayers to you, Rhoda.
              Get well soon dear.

              ((hugs))
              Pam
              It's not what you gather, but what you scatter that tells what kind of life you have lived.

              Dx in Feb/99. Obstructed. No ICD, no surgeries, no family history. 2 sons ages 14 and 6.

              Comment


              • #37
                Hi Rhoda,

                I am sorry to hear you are not feeling any better I am praying hard that this bug will go away. I don't know all details of your situation but it sounds like it might be best to get back to the states. I'm worried about you. Keep us updated.

                John
                41 years old. Diagnosed with HOCM in Feb 2005. Myectomy at Mayo on June 8, 2005

                Comment


                • #38
                  Rhoda.

                  May you experience all tha Great One has in store for your life, especially during this tie of sickness.

                  Peace,

                  Leon
                  God Squad co-moderator
                  Nothing is as gentle as strength and nothing is as strong as gentleness

                  Comment


                  • #39
                    Rhoda,

                    I've been thinking of you, and hope that you can get to the best treatment possible very soon. Most of the current literature seems to suggest that a multiple-drug approach is best, using two or more proven antipseudomonal antibiotics.

                    "The antipseudomonal antibiotics for P. aeruginosa pneumonia include piperacillin, ticarcillin, ceftazidime, cefepime, aztreonam, imipenem, meropenem, ciprofloxacin, levofloxacin, and the aminoglycosides (gentamicin, netilmicin, tobramycin, and amikacin)... For pneumonia in which P. aeruginosa is documented as the etiologic agent by cultures of blood or invasive diagnostic methods, we recommend combination antipseudomonal antibiotic therapy."(Weingarten, 2003)

                    "Although most cephalosporins are not active against P aeruginosa, ceftazidime, a third-generation agent, and cefepime hydrochloride (Maxipime), a fourth-generation agent, have excellent and about equivalent activity... We favor the use of two agents in serious infections such as nosocomial pneumonia, infective endocarditis, bacteremia in patients who are neutropenic, and sepsis. Although this practice may or may not prevent the emergence of resistance, it increases the likelihood that the patient will receive at least one agent to which his or her isolate remains susceptible even if resistance does develop." (Hauser, 2005)

                    Hauser has a nice table here which lists the most common antipseudomonal antibiotics and dosages.

                    Hang in there,

                    Jim
                    "Some days you're the dog... some days you're the hydrant."

                    Comment


                    • #40
                      Thanks, all!

                      Thanks, especially, Jim for the table from Hauser. I had not seen that article, although I was very familiar with the Weingarten one. I had a drug sensitivity done and most of these are on the list. However, several are not available in China and I have a history of allergies to some of these categories. Years ago a doctor told me that drug allergies were no big whoop, that if I ever really needed one, they would just give it to me in the hospital and see if my reaction was sufficiently serious to stop it.

                      I saw another article about protocols for admissions and drug treatments that said that with chf complications, ICU admission was often recommended with pseudomonas pneumonia. Sort of scary as I sit propped here on my couch because I cannot breathe lying down.

                      I had finally decided that maybe I could come home for treatment if I went on oxygen the entire way. However, tonight I called airlines and got the disappointing news that some do not have oxygen from Beijing and the one that did cannot arrange it before Friday. That is really not going to fix my problem, so it looks like I will have to fight it from here.

                      Don't panic if you don't hear from me for awhile. If I have to go into a Chinese hospital, I am sure I will not have access to a computer!

                      Thanks again!

                      Rhoda

                      Comment


                      • #41
                        R

                        Can you not get oxygen from another source to bring with you? I'm sure it must be pricey, but might be worth looking into. See what the doctor says.

                        Hang in there, we are all pulling for you to beat this.

                        hugs,

                        Sarah

                        Comment


                        • #42
                          Prayers are still continued from here.

                          Reenie
                          Reenie

                          ****************
                          Husband has HCM.
                          3 kids - ages 23, 21, & 19. All presently clear of HCM.

                          Comment


                          • #43
                            Rhonda

                            I was thinking the same question as Sarah.

                            I pray that your doctors find an antibiotic for you or that you can find a resource to acquire oxygen to get back home.

                            Can your husband inform us as to your health? Even if it is just getting better, little change or the same.

                            I know we will all be worried about you should you be hospitalized and not hear anything for awhile.

                            I will continue to pray for you.

                            Take care
                            Esther

                            Comment


                            • #44
                              Rhoda,

                              You're quite welcome.

                              Listen, you know what's best for you, and it's not our place to try and tell you what to do. But you also know us well enough to realize that we're going to go ahead and tell you what we think anyway.

                              We need to get you home and get you proper treatment for this. Good grief! In a country as severely polluted as that one, you'd think there would be oxygen tanks available on every street corner. I can't believe this is even an issue. Like Sarah suggested, could you arrange to get some locally and then take it with you? I know the normal procedure is that the oxygen must be supplied by the airline... but they don't have it!

                              Is there anything any of us can do for you? Phone calls or whatever to try and find help for you from this side without you having to spend a fortune on the calls. Any advocacy groups over here that can expedite things in cases of medical necessity? Or anything at all we can do to help, however big or small?

                              Please let us know,

                              Jim
                              "Some days you're the dog... some days you're the hydrant."

                              Comment


                              • #45
                                Rhoda - Jim's right, Call in your resources. You've been a resource for so many, it's your turn to be helped and cared for. Linda

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