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  • Pregnancy and Hypertrophic Obstructive Cardiomyopa...

    [Pregnancy and Hypertrophic Obstructive Cardiomyopathy]

    Author: Judith Swanson (---.dsl.earthlink.net)

    Date: 08-08-02 03:19

    I was diagnosed with HOCM at 5 years old and I am now 37. Actually it used to be called IHSS (Idiopathic Hypertrophic Subaortic Stenosis). I was wondering if anyone has been pregnant while having this condition? Also, are there any beta blocker drugs one can take during pregnancy that will not harm the baby? My husband and I are thinking of having children.

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    [Re: Pregnancy and Hypertrophic Obstructive Cardiomyopathy]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 08-08-02 05:47

    Dear Judith,

    HCM/HOCM has had about 75 names (see the history section in this web site) over the years!

    Many, many HCM patients have had babies very successfully and been on beta-blockers and even some other medications as needed (one doctor reported to me that she had had patients on Norpace who had babies). My mom had 4 kids and I know of several other women here who have had at least one, sometimes two or more. (some say they are better in sets and I don't know but what I agree.)

    Please read as much of the old threads on this board as possible, there are some recent ones on pregnancy and delivery. (I tried to find the headings for you, but can't --sometimes discussions start about one thing and morph into another or the heading is non-specific. Lisa may remember under which heading she posted about epidurals?)

    THe KEY is to have a high-risk ob/gyn and an HCM specialist and have them talk to each other. Lisa, our President, has a daughter, so on top of giving you referrals, she can give you some practical advice as well. (me, I'm on coumadin, so I'm not eligible.)

    The office number is 973-983-7429.

    take care

    Sarah

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    [Re: Pregnancy and Hypertrophic Obstructive Cardiomyopathy]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 08-08-02 09:50

    HCM and pregnancy are well tolorated together. Many of the meds will cause no problem to the baby, and in some cases you must take the meds even with the risk of the effects on the baby. We have one mom that had to go on Amio while pregnant, the baby (and Mom) are doing great 2 years down the road!

    Epidurals can be dangerous and have even been linked to the death of HCM patients. Talk to your doctor there are other options during child birth to help with pain management.

    If you want more info. call the HCMA.

    Lisa Salberg

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    [Re: Pregnancy and Hypertrophic Obstructive Cardiomyopathy]

    Author: Mary (---.wi.rr.com)

    Date: 08-08-02 13:51

    I got pregnant with my 2nd daughter about 2 months after being diagnosed with HCM. I did have a high-risk ob/gyn, and the pregnancy went well. My cardiologist put me on propanolol during my pregnancy. The problem for me was afterwards. I truly feel that the pregnancy affected my overall strength, and my health has steadily declined since (i'm now on permanent disability). The doctors haven't told me that it's the fault of the pregnancy, but it's too close of a coincidence in my mind. Of course there is also the fact that I was 36 when I had her--not exactly a youngster--but that has been my reality. I wish you luck. Mary

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    [Re: Pregnancy and Hypertrophic Obstructive Cardiomyopathy]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 08-08-02 14:07

    Hi

    I'm not trying to discourage anyone from having kids and it is always a judgement call, and this is not necessarily the average or typical response, but here is a personal testimonial...

    My aunt had 1 child and while her son is healthy (except for HCM) and the pregnancy itself was ok, she says that she wouldn't do it again if she knew then what she knows now. She does feel as though the pregnancy compromised her health. She is not on disability, but she only works part time in an office at a desk.

    S

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    [Re: Pregnancy and Hypertrophic Obstructive Cardiomyopathy]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 08-08-02 17:40

    This is an area that is so personal and each of us must figure it out for ourselves. While HCM can vary greatly from person to person so can attitudes towards having children in an HCM family. Not only must the mothers health be taken into consideration, but the change of passing down the gene. This is a real family issue.

    Best to all!

    Lisa

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    [Re: Pregnancy and Hypertrophic Obstructive Cardiomyopathy]

    Author: Amanda (---.direcpc.com)

    Date: 08-08-02 23:03

    i was currently diagnosed with hcma and found out i was pregnant all in the same week. they have me on lopresso and i have to go see a doctor in cleveland. but i am also seeing a high risk doctor during this pregnancy. this is my second child but with my first i did not have this problem so i am just now going thru all of this. good luck.

    amanda

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    [Re: Pregnancy and Hypertrophic Obstructive Cardiomyopathy]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 08-09-02 09:54

    Amanda - and the rest of you -

    If you would like to help your doctors take better care of you during pregnancy and otherwise...send your doctors name and address to the HCMA, we will send them an information packet with the latest on HCM.

    Help your doctor help you!

    Lisa

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    [Re: Pregnancy and Hypertrophic Obstructive Cardiomyopathy]

    Author: susan (---.240.OVG.vol.com)

    Date: 08-10-02 22:23

    ok i have had two children and stayed on my atenol during both pregnancies. now my doctors made me have my tubes tied, no more babies, they thought the next one might kill me. i am 100 percent disabled and my doctors have told me this is because i had my babies. i was asked both times did i want an abortion and both times i said no. i would not trade my children for the world, i wouldn't trade them for better health. i was 31 years old my last pregnancy. i also had a wonderful obgyn who was very intrested in hcm and a wonderful internal medicine doctor who got me through both pregnancies and deliveries. i think it really depends on the individual, if you want children or not and are you willing to take the risk of making your hcm worse. who knows maybe it doesn't effect every woman the same way. just get info from you specialist and your obgyn and make you discision from there.

    good luck

    susan

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    [Re: Pregnancy and Hypertrophic Obstructive Cardiomyopathy]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 08-14-02 15:01

    Susan,

    In 1981 my sister, Lori, told her cardiologist she was pregnant and his first reaction was 'ok I can get a doctor to take care of that for you', she said oh thats ok I have a good ob/gyn and her said 'OH you WANT to have this baby?, I thought you would abort because of your heart'. His reason was that there are so many babies in the world why would you want one that might have IHSS/HCM. She said I am doing just fine as is my sister, I am happy to be alive and I am having my baby...HCM or not..and that was the end of that. 2 years later she said... I am pregnant again ...then quickly said 'and your happy for me right!" and said Yes.

    When I told my cardiologist..which at that point was the same as Lori's... I did it a little different...I said the only comment you may make is "great I am happy for you"...I am pregnant... he responded "I am happy for you"

    I went on to have a nice pregnancy,,,tricky delivery,,, and was then told that I had until I was 32 to have one more after that he did not feel it would be safe with everything I had already been through.

    I am 34 now and have one wonderful daughter.

    I would not trade her for anything...even better health.

    Just be careful everyone... hey wouldnt it be great if men could have the kids for a while!

    take care!

    Lisa

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    [Re: Pregnancy and Hypertrophic Obstructive Cardiomyopathy]

    Author: susan (---.217.OVG.vol.com)

    Date: 08-14-02 20:38

    lisa,

    lol, it would be great if the men could have the babies. thank you so much for that comment i needed a great laugh.

    susan

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    [Re: Pregnancy and Hypertrophic Obstructive Cardiomyopathy]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 08-15-02 08:39

    Susan... You know the truth...without the laughs I think this whole thing could just be unbearable...So you will notice from time to time I toss in an odd comment/joke...it keeps me tickin'

    NOTE: This is a post from the previous forum message board.

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