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  • septum size

    [septum size]

    Author: Ryan (199.245.220.---)

    Date: 08-02-02 11:03

    Let me start by saying thanks to the people who organize this forum. I have a question about septum size and when is it indicative of disease. I had an episode of atrial fibrillation about six months ago and the follow up echocardiogram revealed some thickening of the septum. It measured 15mm. At the time my cardiologist did not even mention it. Since then I have moved to another city and I see another cardiologist. My new doctor mentioned the HCM and asked if I had ever been diagnosed with high blood pressure, but overall did not seem to think it had much to do with Afib. After reading about HCM on the net, it seems that HCM can have a lot do to with Afib. I guess my question is, when do most people begin to develope symtoms and why are my cardiologists so unconcerned about HCM? Any thoughts on the subject would be greatly appreciated.

    -Ryan

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    [Re: septum size]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 08-02-02 11:33

    Dear Ryan

    About 20% of HCM patients have atrial fibrillation as a chronic problem, according to what I've been told.

    Most regular cardiologist don't see a lot of HCM and may only be familiar with out of date information as the research is moving pretty quickly in this area, all things considered.

    HCM can "appear" at any time, but it usually shows up in the teens and 20s. It is genetic and can seem to skip generations on rare occaisions.

    How your afib is treated should depend on what is causing it, so I think that this is something you need to pursue. Please call the office at 973-983-7429 to get the name of an HCM specialist --who should also have some insight on the afib, too.

    take care

    Sarah

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    [Re: septum size]

    Author: Glen (---.com)

    Date: 08-02-02 13:53

    Ryan, my doctor told me 11mm is about normal, mine is 22mm, so 15mm although above normal is not large, some people are over 30.

    However any thickness can cause a problem with your hearts electrical system and cause A-fib.

    Go see an HCM specialist and get that measuement confirmed and they will probably have you wear a Holter Monitor for 24 or 48 hours to detect any irregular heart action.

    Taking any medication?

    Good Luck

    Glen

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    [Re: septum size]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 08-04-02 20:14

    Ryan,

    It is rather agreed upon that anything over 1.5 is HCM, normal range in an adult is .9 to 1.2 a slight increase of .1 or .2 mm can be related to hypertension anything over that is HCM therefore that leaves you in the "club" (sorry bad attempt at HCM humor)

    How old are you and have you ever had high blood pressure problems?

    are you on anticoagulation drugs??

    If we can help with anything please call the HCMA.

    best wishes,

    Lisa Salberg

    President

    HCMA

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    [Re: septum size]

    Author: Ryan (199.245.220.---)

    Date: 08-05-02 20:14

    I've been reading more of this board and I almost feel guilty for posting. I realize that many people here have much more serious problems than mine. Thank you so much for the follow ups.

    Glen: I'm curious... the first time you were diagnosed with HCM, how thick was your septum then? Has it progressed over time? Is there a typical case scenario?

    I'm a little puzzled... Since my first post, results from a second 24hr holter monitor and echo came back. (thats why I was posting the first time) The 24hr monitor came back with some PACs and PVCs but nothing thats a problem. The echo was wacky. My septum 'apparently' shrunk to 13mm, but the right atria was borderline slightly oversized, and there was border line mytral valve regurgitaiton. I'm so confused. I think that test results depend on the tech conducting the exam. I meet with my doctor in two weeks. Hopefully he can shed some light on this. Should I considering seeing and HCM specialist just to verify test results?

    Anyway, I'm 29 years old, my blood pressure is usually around 110/60. No history of high blood pressure. I've been taking 25 mg/day toprol and 100 mg/day flecaenide. No anticoagulants except for aspirin. The beta blocker slows my heart rate sometimes and makes me feel terrible. I work out 4-5 times a week. No symptoms whatsoever except for one bout with Afib. Thanks again for the replies.

    -Ryan

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    [Re: septum size]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 08-06-02 00:47

    Dear Ryan

    Very little in HCM is typical --everyone's experience varies as there are so many genetic variations of the disease.

    It is very important --regardless of how "minor" your HCM may seem in comparrison to others-- to see an HCM specialist and be fully evaluated and have a treatment plan tailored to your particular situation and needs. This will help prevent any bumps in the road later and your specialist can coordinate care with a local doctor so you don't have to travel all the time.

    the HCMA will help you find someone.

    Sarah

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    [Re: septum size]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 08-06-02 20:00

    Hi again -

    Please do not feel that you must be extremely ill to post on the message board, most of us do fine and have only minimal problems.

    Your numbers appear to be within HCM limits, the Mitral Valve involvment is also common in HCM, as it the dilated Left Atria. So if it walks like a duck...and quacks like a duck...chances are it is a duck.

    Seeing a specialist in HCM is a great idea at this point.

    Best to all!

    Lisa

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: septum size]

    Author: Glen (---.com)

    Date: 08-19-02 09:37

    Ryan, I just got back from vacation so that is why I have not replied to re your question to me.

    30 years ago when I was diagnosed I did not know what my septum size was, only that it was abnormal.

    On my last visit to my doctor about 4 months ago he told me current size 22mm.

    I asked if it had changed over the years and was told no and basically my condition has not gotten any worse over the years.

    However I am sure after you have read postings from this forum you realize that all cases are not alike and in many cases the condition does get worse in some people over time.

    That is why it is especially important to see a proper HCM specialist and establish a proper base line from which they can compare all future testing.

    I go back annually to make sure there are no changes.

    Good Luck

    Glen
    NOTE: This is a post from the previous forum message board.
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