Tweet
[Ab-Energizer's]
Author: Midge Rollins (---.obmo.socket.net)
Date: 08-02-02 10:29
Just returned from May( my every 90 day follow up with my HCM ). They asked me to participate in a quick study. There are 4 medical institutions across the country trying these out. The Ab Energizer being advertised on TV. They are doing a study to see if it interferes with ICD's and pacemakers. First of all why anyone would put themselves through one of these exercise gadgets is beyond me. They hurt especially turned up to 10. I try to be as brave as possible. The message is if you have an ICD and/or pacemaker do not run out and buy an Ab-energizer. It did not cause mine to fire or do V-fib or tach but it did cause some extra beats. I am sure this thing only works because you are doing isometric exercises to suck in to get back from the electrical shock feeling. It feels like electrical pins sticking into you. The results are not in as of yet. I would not reccomend getting one. Another study I did was DNA testing to check for common threads in persons with HCM. If anyone has not had that done and it is offered please do so as we may all have this common thread and will be easier to pick up on future generations. Midge.
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[Re: Ab-Energizer's]
Author: Lisa Salberg (208.47.172.---)
Date: 08-02-02 10:47
Hello,
I can not imagine why anyone would use one of those stupid things either! They have been a few reports that say they are useless, I am shocked to hear that someone is doing this study..what a waste of time, money and resources!
Re Genetic testing - this is still "research", and in stark contrast to the above mentioned "research" this has real potential to help us. It will not be today...and maybe not next year but in the future it will be a help to all with HCM. At this time the only value to genetics, in the few families that have been genotyped is the fact they can screen the children of the family to know if the do or do nt carry the gene...beyond that there is not much to be done with the data...NOW...
Please remember that having the gene does not mean that you will "express"it or have HCM, just that you carry the gene for it. In the near future the testing will be available on a fee based system, but for now it is only research and I believe very important work.
Best to ALL!
Lisa
Author: Midge Rollins (---.obmo.socket.net)
Date: 08-02-02 10:29
Just returned from May( my every 90 day follow up with my HCM ). They asked me to participate in a quick study. There are 4 medical institutions across the country trying these out. The Ab Energizer being advertised on TV. They are doing a study to see if it interferes with ICD's and pacemakers. First of all why anyone would put themselves through one of these exercise gadgets is beyond me. They hurt especially turned up to 10. I try to be as brave as possible. The message is if you have an ICD and/or pacemaker do not run out and buy an Ab-energizer. It did not cause mine to fire or do V-fib or tach but it did cause some extra beats. I am sure this thing only works because you are doing isometric exercises to suck in to get back from the electrical shock feeling. It feels like electrical pins sticking into you. The results are not in as of yet. I would not reccomend getting one. Another study I did was DNA testing to check for common threads in persons with HCM. If anyone has not had that done and it is offered please do so as we may all have this common thread and will be easier to pick up on future generations. Midge.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Ab-Energizer's]
Author: Lisa Salberg (208.47.172.---)
Date: 08-02-02 10:47
Hello,
I can not imagine why anyone would use one of those stupid things either! They have been a few reports that say they are useless, I am shocked to hear that someone is doing this study..what a waste of time, money and resources!
Re Genetic testing - this is still "research", and in stark contrast to the above mentioned "research" this has real potential to help us. It will not be today...and maybe not next year but in the future it will be a help to all with HCM. At this time the only value to genetics, in the few families that have been genotyped is the fact they can screen the children of the family to know if the do or do nt carry the gene...beyond that there is not much to be done with the data...NOW...
Please remember that having the gene does not mean that you will "express"it or have HCM, just that you carry the gene for it. In the near future the testing will be available on a fee based system, but for now it is only research and I believe very important work.
Best to ALL!
Lisa