[tee]

Author: Mary (---.wi.rr.com)

Date: 08-02-02 10:04

Hi all. I'm going in to have a transesophogeal echo today. My docs think that instead of just thickening in the septum my whole heart might be thickening. Does anybody else know much about this, and what if any surgical options are left afterwards. I'm trying not to think much about it, but I am concerned about what it means if the thickening truly is global. Any advice is appreciated. Mary

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[Re: tee]

Author: Sarah B--Board Moderator (---.client.attbi.com)

Date: 08-02-02 10:42

Dear Mary

Good luck with your echo today. Emerson said worrying is like paying interest on trouble, so the best thing you can do is put aside your fears until they know something definitive. I know this is hard, but it is the best thing for you and for your heart. I'm afraid I don't know what the options are if the entire heart is thickening up, but heart transplant and heart therapies have really taken off in the last year and they have all kinds of devices and things now they never had before, and they are getting better all the time.

Regards to the TEE: make sure they plan on drugging you up really, really well. I've had three and the first one they ripped my throat up by not giving me enough muscle relaxer. You have to be conscious, but you don't have to know what is going on --you know what I mean?

let us know how it goes and we are pulling for you,

Sarah

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[Re: tee]

Author: Chuck (---.WLDF.splitrock.net)

Date: 08-02-02 22:47

Mary,

What is a TEE and how does it differ from the standard echocardiogram or is this strictly for the esophagus?

Thanks in advance for the reply,

Chuck

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[Re: tee]

Author: Lynn S. (---.dsl.dytnoh.ameritech.net)

Date: 08-03-02 10:27

Hi Chuck,

I thought I would chime in on the TEE as I had one back in April of this year (which is when my HOCM was diagnosed). A TEE is basically an internal echo (versus the kind that is more common in which the echo is done externally) that allows the doctors to get close to the heart to view it without having to do a heart cath.

Here is the website that I referred to prior to having mine conducted which best helped me to understand it.

http://www.advocatehealth.com/health.../tranecho.html

Hope this helps!

Lynn

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[Re: tee]

Author: Mary (---.wi.rr.com)

Date: 08-03-02 11:21

Lynn,

Thanks for explaining that for me I was too knocked out most of yesterday to even get online, let alone explain what a tee is. Things went well, btw. All I remember is gagging when they wanted me to swallow, then apparently they gave me more drugs and next thing I know I woke up in a different room, 2 hours later. Now that's my idea of how to do a procedure!

Mary

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[Re: tee]

Author: Lynn S. (---.dsl.dytnoh.ameritech.net)

Date: 08-03-02 11:51

Hey Mary,

I'm so glad to hear it went well and that you remember nothing; I had you in my thoughts all day long!

Unfortunately I was like Sarah and was not given enough sedation. My doctor usually gave Versaid nd Demoral (along with that fabulous numbing spray) but I'm allergic to Demoral. So in place of the Demoral he gave me...nothing! I remember every single moment of the test and afterwards. I was quite frustrated when in recovery I saw another TEE patient rolled out of the room and she was still sound asleep. I swore from that moment forward that if I ever had another one that I would insist on enough meds to make sure I didn't care what they were doing!

So glad it went well and thanks for not minding that I responded on what the TEE was - I thought you might still be 'sleeping things off'!

Lynn

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[Re: tee]

Author: Chuck (---.WLDF.splitrock.net)

Date: 08-03-02 12:39

thanks Lynn,

The web site was very informative.

Chuck

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[Re: tee]

Author: Lisa Salberg (---.dyn.optonline.net)

Date: 08-04-02 20:09

Mary,

Glad to hear the TEE went well..but what did they find??

Best wishes,

Lisa

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[Re: tee]

Author: Mary (---.wi.rr.com)

Date: 08-05-02 10:55

Lisa,

I don't know yet what they found. I have to go in to see the doctor. This is the part I'm really nervous about. What are my options if the thickening really is global? I know they're really reduced, at least as far as ablation is concerned, but I know very little otherwise. I will keep you all informed.

Mary

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[Re: tee]

Author: Lisa Salberg (208.47.172.---)

Date: 08-05-02 13:04

Mary -

Ablation and myctomy are only used to reduce obstruction. If you are not obstructed there are different medications that can be used to limit symptoms and help relax the heart. There are some other treatments depending on your symptoms and risk factors including pacers and ICD's.

Again I would say...see a specialist, they can often help far more than a local cardiologist.

Best wishes,

Lisa