If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you


No announcement yet.

Belated report.


About the Author


Art Geddes Find out more about Art Geddes
  • Filter
  • Time
  • Show
Clear All
new posts

  • Belated report.

    I'm so sorry it has taken me so long to post following my surgery, no problems medically, just extremely busy. Surgery at Mayo was on April 13, Wednesday and I flew home the following Monday, only five days post surgery. Surgery went well, though I did surprise them when they found a vsd after doing the myectomy. Dr. Zehr's first reaction was that he had created it but after putting me back on the heart/lung machine and going back in he noticed the hole had a mebrame around the edges and had been there since birth. He put several stitches in it and closed the major part of it off but it still needs to be watched just to be sure. The thickness of the septum evidently would close off the hole making it non-functional, so with years of echos, nuclear studies and heart caths it was never caught. Now, a question for those considering ablation over surgery, what would have happened when the alcohol reached that hole?

    Anyway, recovery has been good, I was back at work in 6 weeks, for which my wife has been very thankful, and productivity at work is great. I spent last week up in MO helping to open up a new market for the company which a year ago I never thought would have happened. The daily episode of chest pain have disappeared and there has been no shortness of breath, even when I am out training my retriever, which used to be a major issue. Everyone comments on how much better my color is and the normal things of life are normal again.

    I still get some sternal pain when I do certain motions IE, a sit up in bed, but nothing like after surgery. At St Marys the nurses kept telling me I wasn't using enough pain killer, but honestly, I did not need it. They gave me Oxycontin for use at home but I only used one each night to get to sleep and still have a full bottle left from May that I haven't touched.

    Life after surgery is vastly superior to life before surgery. I Thank my God in heaven that he led me through this path. I also am now a firm believer in using a specialist to confirm your course of treatment. Thank you all for your prayers , they do work and once again, I am sorry it took me so long to get back on line to post.

    On another line, my son Jeremy's defib was recalled in the medtronics fiasco. The ep who installed it left town in the interim so we returned him to my ep, who was extremely upset when he found out how Jeremy and the family had been treated. Said he would never have installed a defib the way the pediatric surgeon did and apologized for sending us to that hospital where the ped icu was. He did it for icu and he did not have privileges there. Jeremy was supposed to go back to the orig hospital when he was ready but the hospital took us to the medical ethics committee because we were against doing it there way. They made hundreds of thousands from the insurance co but we will not return to that hospital. Jeremy is currently doing fine, no more v-fib. His current defib is once again a guidant.

    My guidant was part of the recall but only needed software changes which took about three minutes. Hope everyone is doing good, talk to you later.

  • #2
    Art. so happy things are going well. Thanks for the update

    Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
    ICD&Pacemaker 1996
    Heart transplant March 19, 2004 @ Mayo Rochester
    Mom of Kaye.


    • #3
      Wonderful report! Thanks for getting back with us.



      • #4
        Hi Art

        Good report! I'm glad you're doing so well.

        Thank you for keeping us updated.

        Take care


        • #5

          It is indeed good to hear such great news.

          Continued healing.

          God Squad co-moderator
          Nothing is as gentle as strength and nothing is as strong as gentleness


          • #6
            Good to hear from you! I would like to talk to you - can you call the office this week.

            Knowledge is power ... Stay informed!
            YOU can make a difference - all you have to do is try!

            Dx age 12 current age 46 and counting!
            lost: 5 family members to HCM (SCD, Stroke, CHF)
            Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
            Therapy - ICD (implanted 97, 01, 04 and 11, medication
            Currently not obstructed
            Complications - unnecessary pacemaker and stroke (unrelated to each other)


            • #7

              What great news! sounds like you are doing great. That was an awesome update.

              Best wishes,

              41 years old. Diagnosed with HOCM in Feb 2005. Myectomy at Mayo on June 8, 2005


              • #8
                Thank you for sharing your success with the myectomy. It is very encouraging, for me as I consider my next path of treatment, to read that you now have a better quality of life. May you continue to improve.

                Best wishes ,
                \"We are not human beings having a spiritual experience. We are spiritual beings having a human experience.\"
                Pierre Teilhard de Chardin


                • #9

                  I'm glad everything is going good for you it is about time huh, How is your son doing these days, good luck in the future

                  Diagnosed 2003
                  Myectomy 2-23-2004
                  Husband: Ken
                  Son: John diagnosed 2004
                  Daughter: Janet (free of HCM)

                  Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9


                  • #10
                    Hi Art

                    I am so happy that you are doing very well after your surgery and your quality of life has improved.

                    I wish you continued wellness and happieness.

                    Hugs to you and your family,

                    49 yrs. old
                    Diagnosed at 31.
                    Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
                    First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
                    Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
                    Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
                    My brother passed away suddenly at 34 yrs old from HCM.
                    2 teenage children, ages 17 and 15.


                    • #11

                      What a great update , continue to do well and keep us posted.

                      Dx @ 47 with HOCM & HF:11/00
                      Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                      Lead failure,replaced 12/06.
                      SF lead recall:07,extracted leads and new device 2012
                      [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                      Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                      Genetic mutation 4/09, mother(d), brother, son, gene+
                      Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin


                      Today's Birthdays