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    need some more input

    [need some more input]

    Author: Susan Tyrrell (208.35.56.---)

    Date: 07-30-02 20:54

    Hello again. Have been experiencing some things that I would like to know about.

    Found out two weeks ago that my septem has grown back. I had a myectomy in 1986, which at that time was still kind of the "unknown".

    Anyways lately I have been having alot of problems with pressure in my chest, my shoulders and back ache quite frequently, and my neck feels like it always is under pressure. The cardiologist seem to say sometimes that they don't know why

    I am having these problems. I take 200 mg of Toprol Xl a day. They have tried Verapamil, Inderal, and an anti-arrymtic drug--i forgot the name of it--which I couldn't take due to it causing severe headaches. I can feel my heart flutter at least 8-10 times a day and having great difficulty with being short of breath. Some days I can't even walk across the room without getting winded. I am extremely "TIRED" all the time and blah blah blah...

    SORRY--I have hypertrophic cardiomyopathy/IHSS. Anyone who can offer some feedback for me would be greatly appreciated.

    I am getting to the point that this "DIESASE" is ruling my life, and I want my life back.

    Thanks for your time.

    Sincerely yours,

    Susan Tyrrell

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: need some more input]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 07-31-02 15:31

    Susan,

    A few issues need to be looked at here. First, are you being followed by an HCM specialist? You said you had a myectomy now have regrowth, - How old were you at the time of the procedure and what is your current gradient?

    If you wish call the office and we can talk or post your reply here.

    Best wishes,

    Lisa

    HCMA

    973-983-7429
    NOTE: This is a post from the previous forum message board.
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