Tweet
[Family history]
Author: Christopher Casper (---.dialups.lni.net)
Date: 07-30-02 11:34
Hi my name is Chris and this is my first time doing this.
I was diagnosed with HCM in 1992. I have a family history of the disease, my father, uncle's, my brothers and my sons. It mainly runs in the men of the family. Is this pretty common?
I had a Septal Myomectomy done in 1999. Felt good, for about 2 months. Have been short of breathe, with little affort, after my surgery.
They have quit treating me for HCM and are now treating me for heart failure.
Is this common?
Thanks Chris
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Family history]
Author: Lisa Salberg (208.47.172.---)
Date: 07-30-02 11:45
Chris,
Welcome to the HCMA!
HCM is an equal oppurtunity condition, men and women are effected evenly.
RE your treatment, have you been evaluated by an HCM specialist? Please explain how they have stopped treating your HCM and how they are treating you now.
also feel free to contact the HCMA office at 973-983-7429
Best wishes,
Lisa Salberg
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Family history]
Author: Christopher Casper (---.dialups.lni.net)
Date: 07-30-02 14:50
Hello Lisa,
Thanks for replying so fast.
I use to be on Verapamil (240 MG) twice a day, now I'm on Coreg (12.5 MG), twice a day, Lasix, (40 MG), Lanoxin, (.25MG), Prinivil, (40MG), Potassium chloride, (20 mEq) once a day.
The Verapamil was for my HCM and I no longer take it, But the rest of these medicines are for my CHF.
No I have not gone to a HCM specialist, Just a local Cardiologist. Not sure what to do anymore with all this mess.
Thanks Chris
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Family history]
Author: Sarah B-Board Moderator (---.ipt.aol.com)
Date: 07-30-02 18:27
Dear Chris,
Dude, you absolutely need to be calling Lisa at 973-983-7429 to get the name of a specialist so you can get the proper treatment.
The Coreg is also used for HCM patients, but Lanoxin is a drug that most HCM specialists would shy away from using.
Your HCM hasn't gone away just because you have CHF, so please call.
Sarah
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Family history]
Author: Lisa Salberg (---.dyn.optonline.net)
Date: 07-30-02 20:23
Chris,
Sarah is right (again), we need to talk. Please call the office and set up an appointment.
Best wishes,
Lisa
973-983-7429
Author: Christopher Casper (---.dialups.lni.net)
Date: 07-30-02 11:34
Hi my name is Chris and this is my first time doing this.
I was diagnosed with HCM in 1992. I have a family history of the disease, my father, uncle's, my brothers and my sons. It mainly runs in the men of the family. Is this pretty common?
I had a Septal Myomectomy done in 1999. Felt good, for about 2 months. Have been short of breathe, with little affort, after my surgery.
They have quit treating me for HCM and are now treating me for heart failure.
Is this common?
Thanks Chris
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Family history]
Author: Lisa Salberg (208.47.172.---)
Date: 07-30-02 11:45
Chris,
Welcome to the HCMA!
HCM is an equal oppurtunity condition, men and women are effected evenly.
RE your treatment, have you been evaluated by an HCM specialist? Please explain how they have stopped treating your HCM and how they are treating you now.
also feel free to contact the HCMA office at 973-983-7429
Best wishes,
Lisa Salberg
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Family history]
Author: Christopher Casper (---.dialups.lni.net)
Date: 07-30-02 14:50
Hello Lisa,
Thanks for replying so fast.
I use to be on Verapamil (240 MG) twice a day, now I'm on Coreg (12.5 MG), twice a day, Lasix, (40 MG), Lanoxin, (.25MG), Prinivil, (40MG), Potassium chloride, (20 mEq) once a day.
The Verapamil was for my HCM and I no longer take it, But the rest of these medicines are for my CHF.
No I have not gone to a HCM specialist, Just a local Cardiologist. Not sure what to do anymore with all this mess.
Thanks Chris
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Family history]
Author: Sarah B-Board Moderator (---.ipt.aol.com)
Date: 07-30-02 18:27
Dear Chris,
Dude, you absolutely need to be calling Lisa at 973-983-7429 to get the name of a specialist so you can get the proper treatment.
The Coreg is also used for HCM patients, but Lanoxin is a drug that most HCM specialists would shy away from using.
Your HCM hasn't gone away just because you have CHF, so please call.
Sarah
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Family history]
Author: Lisa Salberg (---.dyn.optonline.net)
Date: 07-30-02 20:23
Chris,
Sarah is right (again), we need to talk. Please call the office and set up an appointment.
Best wishes,
Lisa
973-983-7429