If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

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  • Family history

    [Family history]

    Author: Christopher Casper (---.dialups.lni.net)

    Date: 07-30-02 11:34

    Hi my name is Chris and this is my first time doing this.

    I was diagnosed with HCM in 1992. I have a family history of the disease, my father, uncle's, my brothers and my sons. It mainly runs in the men of the family. Is this pretty common?

    I had a Septal Myomectomy done in 1999. Felt good, for about 2 months. Have been short of breathe, with little affort, after my surgery.

    They have quit treating me for HCM and are now treating me for heart failure.

    Is this common?

    Thanks Chris

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Family history]

    Author: Lisa Salberg (208.47.172.---)

    Date: 07-30-02 11:45

    Chris,

    Welcome to the HCMA!

    HCM is an equal oppurtunity condition, men and women are effected evenly.

    RE your treatment, have you been evaluated by an HCM specialist? Please explain how they have stopped treating your HCM and how they are treating you now.

    also feel free to contact the HCMA office at 973-983-7429

    Best wishes,

    Lisa Salberg

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Family history]

    Author: Christopher Casper (---.dialups.lni.net)

    Date: 07-30-02 14:50

    Hello Lisa,

    Thanks for replying so fast.

    I use to be on Verapamil (240 MG) twice a day, now I'm on Coreg (12.5 MG), twice a day, Lasix, (40 MG), Lanoxin, (.25MG), Prinivil, (40MG), Potassium chloride, (20 mEq) once a day.

    The Verapamil was for my HCM and I no longer take it, But the rest of these medicines are for my CHF.

    No I have not gone to a HCM specialist, Just a local Cardiologist. Not sure what to do anymore with all this mess.

    Thanks Chris

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Family history]

    Author: Sarah B-Board Moderator (---.ipt.aol.com)

    Date: 07-30-02 18:27

    Dear Chris,

    Dude, you absolutely need to be calling Lisa at 973-983-7429 to get the name of a specialist so you can get the proper treatment.

    The Coreg is also used for HCM patients, but Lanoxin is a drug that most HCM specialists would shy away from using.

    Your HCM hasn't gone away just because you have CHF, so please call.

    Sarah

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Family history]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 07-30-02 20:23

    Chris,

    Sarah is right (again), we need to talk. Please call the office and set up an appointment.

    Best wishes,

    Lisa

    973-983-7429
    NOTE: This is a post from the previous forum message board.

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