[secondary pulmonary hypertension]

Author: Nancy (---.access.naxs.com)

Date: 07-26-02 12:42

I was diagnosed with mild to moderate hypertension the last time I was in the hospital. I was having terrible SOB. I was diagnosed with HOCM 5 years ago.I had a pacemaker in 1999. This pulmonary hypertension is a new (and unwelcome) development.Do any of you struggle with this also? How common is it inHCM?

Could this be a unwelcome side effect of pacemaker therepy for HCM? I guess it can develop any way in HCM but I didn't have any sign of it until the pacemaker had been in place for a while. Just a thought.

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[Re: secondary pulmonary hypertension]

Author: DENNIS J.BASSETT (---.ts04.qui.ma.net1plus.com)

Date: 07-26-02 21:24

Hi, NANCY I have been treated for high pertension for as many years as i,ve had HCM. I,m not saying it makes it any easier to cope with one more thing, but I,ve found that the lower my blood pressure the better I feel. I,ve been living with disease for more than 33 years and this web site has been very helpful for me and my family. Good Luck Dennis

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[Re: secondary pulmonary hypertension]

Author: karen (---.dyn.optonline.net)

Date: 07-27-02 07:32

Hi Nancy,

My husband also has moderate pulmonary hypertension. It's been for a few years now. He also has OHCM as you do. I believe the pulmonary hypertension has a good deal to do with the obstruction.

The left ventricle is the highest pressured chamber of the heart to begin with since it must contract against a high pressured systemic circulation in the body. The obstruction increases the pressure even more in left ventricle to try to squeeze the blood past the obstruction into the body. Now the blood coming down from the left atrium into the left ventricle has to pump at a slightly higher pressure due to the increased pressure in the left ventricle to pump past the obstruction. The higher pressure continues to work backwards to the pulmonary arteries.

As the blood moves thru the heart, the pressure each step of the way has to be slightly higher to push the blood into a chamber/artery or vein which is already at a higher pressure. Everything leading up to the obstruction and every step before it gets to this point has to be just alittle bit higher than what comes next ......leading up to the pulmonary hypertension. The pressure in the pulmonary arteries now must be that much higher to move the blood on its journey.

We were told this is a reason for my husbands moderate pulmonary hypertension. I'm sure it's not the only reason, but it's part of the problem. I hope you can figure out what I am trying to say!?! It wasn't easy to put down in words!

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[Re: secondary pulmonary hypertension]

Author: Nancy (---.access.naxs.com)

Date: 07-27-02 09:25

Thanks for the word picture.It seems like a pretty good description of what's going on. Do you know if having a myectomy reduces the pulmonary hypertension? Does it ever reverse after a myectomy? It progressed after the pacemaker, but the pacemaker didn't take away the obstruction. I've only had the pulmonary hypertension for about 6 months. I'm hoping at this point the damage may not be irreversible if I can get a myectomy. I see Dr. Lever in Sept. My doctor here doesn't

seem very concerned about it but it concerns me!!! When I do a puzzle I prefer to have all the pieces available. Maybe my doctor is not very good at puzzles and that is why he went into cardiology?!? He would not make the "rock" list!

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[Re: secondary pulmonary hypertension]

Author: Louise Head (---.lov-ky-3-253.rasserver.net)

Date: 07-30-02 08:28

I was also dx'd with moderate pulmonary hypertension in Feb,2000 right before I had my ICD upgraded to dual chamber ICD. I just found this message board a few weeks ago and have been keeping up with the all the posts since. I had been wandering if any one else had been told this. I found out I had HCM in 1992 and had 1st ICD inplanted 8/1997. My cardio sent me to a pulmonary specialist and she said I had mild asthma and put me on some inhalers that made me feel worse, so I stopped using them, as I felt shaky all the time. I really think that it is all caused from the HCM as it was discribed from a post here.

I feel like I understand more about HCM since finding this board.

Louise

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[Re: secondary pulmonary hypertension]

Author: karen (---.dyn.optonline.net)

Date: 07-31-02 06:46

Good morning Louise,

Some medications can make your asthma worse and some inhalers can make your heart feel lousy. Does your cardio & pulmonary specialist work together?

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[Re: secondary pulmonary hypertension]

Author: Louise Head (---.lov-ky-1-182.rasserver.net)

Date: 07-31-02 08:12

Good Morning Karen,

I no longer see the pulmonary specialist. She told me that my primary care dr. could treat me for the asthma unless my condition got worse. I was in A-fib most of the time then and my new cardio put me on tambocor, which so far is doing the job, and upgraded my ICD to the dual chamber to keep my heart rate up which was very low. I'm not as sob and my fatigue is much better. Just have to stay away from stairs as much as possible and rest when I feel tired which is guite often it seems. Thank goodness I no longer work outside the home. I don't suppose when you are dx'd with secondary pulmonary hypertension that it will ever go away. My cardio just said it was very hard to treat. He is not a hcm specialist, but has helped me a great deal. My last cardio would tell me every time I went that I was in a-fib and like you have to live with it, just take your blood thinner and go on. I hate making changes, so my daughter stepped in and made apt. for me to see another dr. and then took me. Best thing she ever did for me.

I would like to see a HCM specialist, just to see if my meds are the ones I should be on, but as long as I feel better than I did the whole year of 1999 , I feel blessed .

Thank you for your info on asthma meds.

Louise

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[Re: secondary pulmonary hypertension]

Author: karen (---.dyn.optonline.net)

Date: 07-31-02 20:05

Louise,

Since you would like to see a doctor which specializes in HCM, why don't you call the HCMA office to find one. They'll help find one hopefully not too far from home...you never know!

I'm not certain about the pulmonary hypertension, but I think it can improve. I do know that is can come to a point when it's irreversible. But a specialist can answer all of those questions.

We have an appt with Dr. Sherrid tomorrow. He's a specialist in New York City. If I learn anything about the pulmonary HTN.......i'll let you know!

Take care Louise

PS : Your daugher sounds wonderful and very helpful. You're lucky to have her.

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[Re: secondary pulmonary hypertension]

Author: Sarah B-Board Moderator (---.ipt.aol.com)

Date: 07-31-02 20:31

Dear Louise

I second the motion. If you call the office at 973-983-7429, they can hook you up with an HCM specialist. I think there have been some concerns about tambocor not being the best choice for certain heart problems--not that you should worry, but you should get it checked out.

Sarah