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spreading the word


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  • spreading the word

    [spreading the word]

    Author: Dawn (---.cl.ri.cox.net)

    Date: 07-25-02 04:25

    Good Morning,

    And one more GP has an increased understanding of hcm. I ran into my gp at work (I work at a hosp) and took some time to explain some of the details of hcm that he had wrong. Most important, for me, he now agrees with me that my kids need an echo even with my echo being normal. He did not know that it looks like hcm can 'skip' a generation. I also used a little guilt---"and how would you feel if my kids did have it and had problems, even sudden death..." He agrees that it's better to be safe than sorry.

    So, one more doc who understands a little more than before, thanks to HCMA and this web site!!

    Kuddos to all!!



    [Re: spreading the word]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 07-25-02 21:29


    Lets all get them 1 by 1!

    EVERYONE will soon know what HCM is and how to protect themselves!



    [Re: spreading the word]

    Author: Brenda (---.external.lmco.com)

    Date: 08-01-02 16:38

    Hi everyone, I am new to this site. I have hcm (IHSS) and was diagnosed in 1981. I have been on and off of medication several different times. I have two children and had them both checked as infants and plan on having them checked again now that one is a pre-teen and one is a teen.

    I have been reading some of the traffic and it seems that a lot of people believe this disease skips a generation. This is not true and I am that statistic. My father has the disease and so do I so in our case it did not skip a generation.


    [Re: spreading the word]

    Author: Dora (---.proxy.aol.com)

    Date: 08-01-02 22:47

    Hi Brenda,

    I don't think people think it skips a generation in general, but there is a possibility that it can. MCH is a crazy disease because it can be so different for everyone yet.



    [infant death- HCM]

    Author: shelva (---.proxy.aol.com)

    Date: 08-20-02 20:07

    Hi. I am very new to this subject. I had a baby on 8/8 and he had left ventricle hypertrophy. The doc wanted to see him back in a month to make a determination to what the exact diagnosis was. At 8 days old, my precious, beautiful, healthy looking son died of massive heart failure. Post-mortem, he has been diagnosed with Hypertrophic cardiomyopathy. I am now beginning to try to gather information on the subject and havent even scratched the surface yet. Any help anyone can give me would be appreciated.
    NOTE: This is a post from the previous forum message board.