If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

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  • All new visitors please read this.

    [All new visitors please read this.]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 07-23-02 17:41

    To all those who visit this message board and share their thoughts, feeling, experiences, fears, accomplishments, hints and lives... I thank you

    You each provide a piece of the puzzle; these pieces may have been hidden from others. The magic of the Internet allows us to communicate in a way never before available in society, and we have come to take it for granted already. Each who shares gives a gift to so many.

    I do ask something of each of you, words are very powerful; use caution in your postings remembering that we are all just a little bit different.

    A medical adviser does not review this message board formally. Therefore sometimes information can be slightly incorrect and requires confirmation through the HCMA directly or with your physician. By no means does this statement suggest this board is inaccurate, it is simply commonsense to be cautious.

    I have amazing pride for all those who share their feelings with others and those who hope to teach others from their own experiences, most of them have not been pleasant experiences mind you.

    This web site and message board is only the beginning of what the HCMA must do to improve the quality of lives for those with HCM into raise public awareness. So keep talking, keep sharing, and keep learning.

    In closing, thank you all for helping make my dream come true.

    Sincerely,

    Lisa Salberg

    President and Founder

    HCMA

    PS Remember to email your names and address to the email at the top of the website to recieve a free information packet on HCM and the HCMA!!

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: All new visitors please read this.]

    Author: June Dean (---.mont.disa.mil)

    Date: 07-29-02 14:02

    Our son died of Iroipathy Cardiomyopathy August 24, 2001. He was 21, never drank or used drugs, lifted weights, was laughing and in a happy mood the night before his death. We were given the findings three weeks ago.

    We need to know what next step we all need to take to check the grandchildren, other brothers if they have this silent killing heart condition.

    THanks for your help

    June Dean

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: All new visitors please read this.]

    Author: Sarah B-Board Moderator (---.ipt.aol.com)

    Date: 07-29-02 17:52

    Dear June,

    I'm very sorry about the loss of your son. Everyone needs an ecg, an echocardiogram and a visit with an electrocardiologist. Please call the HCMA office at 973-983-7429 to get the name ofan HCM specialist near you.

    all the best,

    Sarah

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: All new visitors please read this.]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 07-29-02 20:06

    June,

    I am so sorry to hear of your loss. I have emailed you a letter. I am a little confused by the term Iroipathy, can you check that and post back, there is no definition in any medical dictionary I have found for that word, it may be a typo but I want to make sure.

    My thoughts are with you,

    Lisa
    NOTE: This is a post from the previous forum message board.

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