[ICD]

Author: Steven Bradley (---.proxy.aol.com)

Date: 07-22-02 14:25

Hi

I am a 41 year old male with obstructive cardio myopathy. I had a brother die of complications of HCM 8 years ago, which was un-diagnosed at the time. In addition, another brother had a myectomy shortly after Mikes death

I have atrial fibrillation problems, shortness of breath and chronic chest pain. I am treated primarily with Sotalol.

My cardiologist wants to have an ICD implanted. My question's are: should I, how do I know if the surgeon is competent and how do I know which defibrillator to choose (dual chamber etc).

Thanks.

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[Re: ICD]

Author: Sarah B-Board Moderator (---.ipt.aol.com)

Date: 07-22-02 20:01

Dear Steven

Please call the office at 973-983-7429 to get the names of qualified HCM specialists who know what kind of ICD you would need and how to do it.

The general criteria used to determine the need for an ICD are a personal history of ventricular tachycardia, fainting, heart attack or an adverse blood pressure response to a stress test, a septal wall of 3 or more and a family history of sudden death. Since it sounds like you may have sudden death in the family, it is worth serious consideration.

After the ICD has been installed, you can return to normal activity in about two to three weeks.

take care

Sarah

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[Re: ICD]

Author: susan (---.174-71.vldsgacbds.dial.optilinkcomm.net)

Date: 07-22-02 21:19

steven,

my doctor also suggested i get and ICD, i had the ablation, but the walls of the rest of my heart all still thickening, also have sudden death in the family. he thought these were very good reasons for the icd. also he said if the ICD only fires off once in your life time, its more than paid for itself. that gave me alot to think about. so i get the ICD on the 31 of this month.

susan

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[Re: ICD]

Author: Lisa Salberg (---.dyn.optonline.net)

Date: 07-23-02 16:31

Steve if memory serves me correct you have had more symptoms then those listed in your posting??? I KNOW ...I have no idea how I remember all your histories when I can not recall yesterdays lunch!...

Remember the risk factors for ICD include:

· prior sudden death of a family member (some docs say 1 is enough, others want 2...personally I really don’t feel like being #2 myself if you know what I mean!)

· massive thickening 3.0cm+

· syncope (normally more than once)

· adverse B/P response on Stress test

· prior cardiac arrest (that’s a no brainer!)

· Multiple NSVT or ventricular arrthymias

If you fit in to 1 or more of these areas then it is time to consider ICD - some doctors like to see 2 or more risk factors -

When picking the center and doctor to implant your ICD keep a few things in mind:

· Ask how many HCM patients they have implanted in the past (and with what devices) get #'s on the center and the doctor.

· Ask how many ICD's the center implants in a year

· Ask if they have an ICD support group

· Ask if they have an ICD clinic to have the device checked at or will you be followed at an ICD clinic closer to your home (should travel apply)

Hope the input helps!

Lisa

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[Re: ICD]

Author: Paul Murphy (---.dsl.mindspring.com)

Date: 07-23-02 21:13

Lisa,

in your response you mention as a risk factor to consider for ICDs:

-an adverse b/p response during stress test

Can you elaborate?

thanks from a friend,

Paul

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[Re: ICD]

Author: Lisa Salberg (---.dyn.optonline.net)

Date: 07-24-02 05:04

HI Paul,

B/P should rise during stress testing. If the B/P fails to rise or drops this is an adverse response and needs further evaluation.

My best to your family!

Lisa