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  • low blood pressure

    [low blood pressure]

    Author: Debbie (---.glen-net.ca)

    Date: 07-21-02 12:36

    My husband is taking atenelol and starting taking verapimil last week. I'm just wondering if anyone else has problems with low blood pressure. How low is to low and what are the risks? Thanks for any info

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    [Re: low blood pressure]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 07-21-02 18:16

    this is an individual thing. I can only say you should discuss this with your doctor. FYI low blood pressure is very common in HCM.

    Regards,

    Lisa

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    [Re: low blood pressure]

    Author: Sarah B-Board Moderator (---.ipt.aol.com)

    Date: 07-22-02 01:14

    Dear Debbie

    takeing atenolol and verapamil together is tricky b/c they both reduce your blood pressure. What benefit does he get from taking both? The risk is that you may faint. He should drink a lot of water and ask his doctor about adjusting the dose(s) to alleviate the problem.

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    [Re: low blood pressure]

    Author: karla (---.proxy.aol.com)

    Date: 07-22-02 09:20

    Hi, Debbie,

    Funny, I was just about to post the same message on the boards in reference to Low blood pressure....

    My hubby has HCM and when at the doctor the other day is pressure was 110/60 -not sure about the top number, but know the bottom was 60.

    Hubby swims in the river of de-nial and every time his BP comes out low,he blames it on a nurse that doesn't know what she's doing! (Thought you could all use a laugh this morning!)

    Best of luck to you......

    Karla

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    [Re: low blood pressure]

    Author: Debbie (---.glen-net.ca)

    Date: 07-22-02 16:17

    Thanks for the info. We actually bought a home monitoring device because his blood pressure is going as low as 90/60 and his pulse is 50. This all makes me very nervous. To be honest I don't know what benefit he is getting from taking both. When he was on the atenelol only he wasn't as tired. His dr. prescribed the verapamil after his angio. He told us that this combination seems to be working for his OTHER hocm patient. This alarmed me, so I asked him how many other hocm patients he has and he was really vague, I believe he has seen 8 people. It's only been a few months since my husband was diagnosed so this is still pretty new to us.

    thanks again

    Debbie

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    [Re: low blood pressure]

    Author: karla (---.proxy.aol.com)

    Date: 07-22-02 19:00

    Debbie,

    I'm right there with ya...my hubby was diagnosed just a few months ago, too. We are still adjusting and learning.

    I, too, asked our cardiologist how many HCM patients he had to which he replied, 'several'.....like, 2???

    Hang in there...these boards are the best info and support. I also highly recommend talking to Lisa. She was great in giving info, support and guidance.

    All the best

    Karla

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    [Re: low blood pressure]

    Author: Sarah B-Board Moderator (---.ipt.aol.com)

    Date: 07-22-02 20:02

    Dear Debbie

    Please call the HCMA office at 973-983-7429 to get the name of an HCM specialist to go see.

    Sarah

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    [Re: low blood pressure]

    Author: Brie Rodighiero (---.dialup.sndg02.pacbell.net)

    Date: 07-22-02 20:08

    Hi Debbie,

    I have experience with both these drugs. I took Atenelol for a few months but it made me too tired and didn't help me feel better....At ALL. So my doctor told me to stop taking it and gave me verapimil. Well, I'm still tired, but not as much. In addition, I too, have very low blood presure. I don't beleive it has always been this low! Since I was diagnoed about 10 months ago Doctors/nurses wouldn't say much about my BP. But latly every doc/nurse I see tells me how low it is!

    For me personally, I've decided it's the drugs that have lowered my BP and have caused my on going feeling of tiredness! Or I could have always had low BP and never noticed untill now!

    Take Care!

    Brie

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    [Re: low blood pressure]

    Author: susan (---.174-71.vldsgacbds.dial.optilinkcomm.net)

    Date: 07-22-02 21:15

    hey guys,

    i was diagnosed almost 20 years ago, my blood pressure is always low. any where from 110/70 to 90/60, with pulse anywhere from 60 to 70 bpm. also when my doctor takes my bp, he makes me lay down, sit down, stand up, squat down, stand back up and checks it the whole time, he wants to see what my bp is doing and it does change back and forth, it could be 110/70 standing up but when i squat down and stand back up it can fall down to 80/60, i belive this is just a part of hcm. its like when you stand up to fast you feel like your about to pass out, this is when you blood pressure bottoms out. hope i helped some

    susan

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    [Re: low blood pressure]

    Author: Debbie (---.glen-net.ca)

    Date: 07-23-02 13:13

    Thank you for all of the replies. Karla do you have any children? If you do, have you had them tested? How is your husband doing after 10 months of treatmen? Sorrry for sounding so nosey but I'm always interested in what other peoples experiences have been.

    Debbie

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    [Re: low blood pressure]

    Author: karla (---.proxy.aol.com)

    Date: 07-24-02 03:39

    Hi, Debbie

    Yes, we have one son- he's 15. And, yes, I had him tested (per Lisa's advice) a few weeks after hubby was diagnosed just this past May. Happy to say that his screening was 'clean'.....no sign of HCM. Have been advised to have him tested every 12-18 months until he's 20 and 2-3 years thereafter. (again, kudos to Lisa/Sarah for info)

    This is still new to us...and we haven't arrived at the best treatment options for hubby yet. Honestly, I don't believe that will happen until he is in the hands of a HCM specialist. The closest for us, we have been told, is Cleveland. Since we live in Florida, that's a bit of a trip! Trying to work it all out - finances, vacation time, etc. to get there.

    Hubby has good days/bad days - the past few have been good lately, so we take what we can get! His 'bad' days are when he's really fatigued, sleeps a lot.....which he calls a 'wash-out' day. This is really nothing new; he's been feeling that way for the past 2-3 years, but the doctors kept treating him for depression.

    I was always suspicious why those meds he took for depression never did much good! On his 'good' days, he tends to overdue; so we're working on moderation.

    The heat here is a big factor, so when it's 100 degrees with 100% humidity it gets to him - so, outdoor activities aren't on his list of things to do!

    He currently only takes one beta-blocker which has alleviated his chest pains some. I'm sure as you have read on the boards, it's a treatment plan for 'quality of life' that is the ultimate goal and we're not there yet.

    As a wife, I can empathize/sympathize with feeling 'alarmed' - it's difficult to know what is "normal" and what is not. The adjustment phase is tough...our first month was just pure ****... my anxiety level was about a "10" on a 1 to 10 scale! I don't know what I would have done without this web site (and a lot of prayers!) to comfort me during those first few weeks.

    I don't know if this e-mail will reach your personal mail box - was not able to 'click' on your name to send. Feel free to personally e-mail me anytime

    All the best...hang in there!

    Karla

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    [Re: low blood pressure]

    Author: Amanda (---.dsl.dytnoh.ameritech.net)

    Date: 07-24-02 06:12

    I am going to a specialist in cleveland also in the next few weeks but we are closer then you are.

    amanda

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    [Re: low blood pressure]

    Author: Matt (---.disney.com)

    Date: 07-24-02 09:38

    I'm heading to the specialist in Minneapolis from Florida tomorrow. Found great $150 round-trip fare with American Airlines and for about $60/night am staying at accomodations right at the hospital. Bringing my kids and sister with so we can have a mini-vacation too. It's very close to the Mall of the Americas.

    I can't wait. I've had mostly bad days lately too. Wish me luck. Take care.

    Matt

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    [Re: low blood pressure]

    Author: Debbie (---.glen-net.ca)

    Date: 07-24-02 09:45

    thanks again for the replies. My husband also has good days and bad days , this is just a fact of life now. On the days when he is very tired I try to take the kids out to let him rest as much as possible. I also don't feel that we have reached the best treatment plan yet, but I guess it will take awhile for his dr. to figure it out. Last night his blood pressure was 90/40 all night. I have a call into his dr. to find out just how low is too low.

    Debbie

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    [Re: low blood pressure]

    Author: mary sharp (---.net308.fl.sprint-hsd.net)

    Date: 07-24-02 13:14

    Wow another disney person! I wonder if it is in the water? Just kidding! I hope all goes well!

    Mary Sharp

    Innoventions Rocks!
    NOTE: This is a post from the previous forum message board.
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