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Lisa Salberg Find out more about Lisa Salberg
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  • #16
    Lisa,

    Thanks for sharing the story of Lori. It sounds like such a sad, heart-wrenching time for you and your family.

    It's amazing how times like that get so entrenched in our memories, isn't it? I, too, can still relive every moment of my mother's heart transplant and decline. I revisit that time at the oddest times, it seems.

    Your sister's passing enabled all of us to have this site, get to know each other, and to have you as our wonderful leader. All of this at a great expense, that it does well for us to remember.

    Once again, Lisa, thanks for all you do to help us all be better managers of our own healthcare, or the healthcare of someone we love.

    We are all blessed by having you in our world.

    Debbie

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    • #17
      Lisa,

      Thanks for sharing your personal story with us. You have done so much with what was such a absolute tragedy. I feel like I found an angel when I came across the HCMA and I truly believe that is Lori. Thanks again for everything you have done and "therapy" on any level is such a blessing.

      God Bless,

      John
      41 years old. Diagnosed with HOCM in Feb 2005. Myectomy at Mayo on June 8, 2005

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      • #18
        Lisa, you wrote your memory so very well, I could feel nothing but great compassion for what you relayed in your story. I know Lori will always be with you in spirit and heart. The light you have created in her memory shines bright for all of us and I know she is watching lovingly over all.

        Pam
        Dx @ 47 with HOCM & HF:11/00
        Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
        Lead failure,replaced 12/06.
        SF lead recall:07,extracted leads and new device 2012
        [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
        Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
        Genetic mutation 4/09, mother(d), brother, son, gene+
        Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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        • #19
          Thank you all so much for all of your posts and extremely kind words. Tomorrow is the day that 10 years ago changed my life forever. I can tell you all this - my sister Lori has changed the world more in her death then she ever could have dreamed. She would have loved to have known you all, and you all would have loved her.

          4:36pm June 16, 1995 is when she was declared dead, but truth be told I think it was a rebirth in a way we all have benefited from.

          I love ya Lori and I only wish I told you that more when you were here!

          Thanks again,
          Lisa
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

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          • #20
            Big hugs to you and your family Lisa.
            May you be surrounded, especially today by many warm and happy memories of the times you enjoyed together with Lori.

            Love, Pam
            Dx @ 47 with HOCM & HF:11/00
            Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
            Lead failure,replaced 12/06.
            SF lead recall:07,extracted leads and new device 2012
            [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
            Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
            Genetic mutation 4/09, mother(d), brother, son, gene+
            Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

            Comment

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