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Toogoofy317 non-obstructed hcm, AICD 11-01-02 and 10-6-05 Find out more about Toogoofy317
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  • #1

    Question for the Meeting

    Sorry I could not make it!

    I was wondering if someone could ask the BIG GUYS if Troponin leaks are common in people with HCM? Whenever I go to the hospital with chest pain the levels are up and now my docs are saying that that is normal.

    If troponin leaks are normal in HCM at what point would the levels be considered worrisome!

    Thanks,

    Mary S.
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  • #2
    Yes, the leaks are normal because the heart is always in a little bit of trouble with HCM.

    No one has ever told me a threshold for OK vs. really bad, but I know I avoid the ER since I know that if they take a level, I'm guaranteed an overnight stay because there are no medically prescribed levels for HCM patients that they would consider OK and let you go home. Any troponin elevation, at least in my experience in Illinois, means you have to stay in the hospital for 24 hours or till the level is normal.

    They haven't really gotten their minds around HCM yet.

    S

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    • #3
      I asked barry maron...

      But unfortunately he did not have much info on this, and that there have not been much in terms of studies on this. He indicated that it could be from HCM or could be from something else.

      Sorry I dont have any more info. I have not asked the other Dr's though.

      sandy

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      • #4
        I sincerly appreciate you asking for me. I've done tons and tons of research on it. We know it is not due to CAD because I'm 24 with a total cholesterol of 107.

        Just wish there were better guidlines on when one should go to the ER and when the pain is benign. Who knows maybe when I get into a university I'll make it one of my theseis. As of right now my major is health sciences. I would have graduated this summer but it just wasn't meant to be I guess.

        Mary S.

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