If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you


No announcement yet.

Shhh Dont Tell Anyone!


About the Author


Lisa Salberg Find out more about Lisa Salberg
  • Filter
  • Time
  • Show
Clear All
new posts

  • Shhh Dont Tell Anyone!

    It's Pam Alexsons Birthday next week....

    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

  • #2

    Diagnosed 2003
    Myectomy 2-23-2004
    Husband: Ken
    Son: John diagnosed 2004
    Daughter: Janet (free of HCM)

    Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9


    • #3
      Happy Birthday, Pam!!!

      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.


      • #4
        Happy Birthday Pam!!

        May your day be filled with beautiful flowers.

        "Some days you're the dog... some days you're the hydrant."


        • #5
          Happy birthday pam!! may this be a healthy & Happy year!


          • #6
            Have a great day, Pam! Linda


            • #7
              Jim, I love those flowers!


              Husband has HCM.
              3 kids - ages 23, 21, & 19. All presently clear of HCM.


              • #8
                Happy Happy Birthday Pam!


                • #9

                  I wish you the best of birthdays with many more to come!

                  Happy Birthday,

                  Age 38, dad of two young children, dx 1996, myectomy March 2005, a-fib issues, due for ICD soon.


                  • #10
                    Happy Birthday Pam!

                    Best Wishes,

                    41 years old. Diagnosed with HOCM in Feb 2005. Myectomy at Mayo on June 8, 2005


                    • #11
                      Happy Birthday To You...
                      " Real Courage Is Being Scared To Death But Saddling-Up Anyway "


                      • #12
                        Thank you everyone!! I am enjoying all your special wishes I just love all the little emoticons you are sending me.

                        I am lucky to have you all; my HCM family.

                        Dx @ 47 with HOCM & HF:11/00
                        Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                        Lead failure,replaced 12/06.
                        SF lead recall:07,extracted leads and new device 2012
                        [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                        Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                        Genetic mutation 4/09, mother(d), brother, son, gene+
                        Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin


                        • #13

                          HAPPY BIRTHDAY PAM!!!!

                          AND MANY, MANY MORE!!!!
                          49 yrs. old
                          Diagnosed at 31.
                          Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
                          First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
                          Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
                          Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
                          My brother passed away suddenly at 34 yrs old from HCM.
                          2 teenage children, ages 17 and 15.


                          • #14

                            Wishing you a very happy birthday. Remember, age is just a number, its how you feel that counts. (oh, oh.....maybe I shouldn't have typed that...lol).

                            Wishes for many more.