If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

HCM and HCMA in the news!

Collapse

About the Author

Collapse

NoCrash Find out more about NoCrash
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • HCM and HCMA in the news!

    The local newspaper here in the L.A. Harbor area, "The Daily Breeze", has an article on sudden deaths due to HCM and quotes Ms. Lisa Salberg of the HCMA!

    Here's a link to the article:

    http://www.dailybreeze.com/today/articles/1564411.html

    There's a sidebar in the print copy (but not on the website) with HCM background information from the HCMA website.

    Regards,
    Rob Thomas
    --Living life on the edge .. of a continent!
    Charter member: Tinman Club

  • #2
    THANKS! This is great news - this means that this story, originally written for a paper in Indiana, was picked up by a different paper and thereby it will likely show up in other papers as well. It was a good story with a sad story about a death, yet the details about HCM are amoung the best written on HCM in the past 2 years.

    I will call the report and family and let them know that CA has picked up the story!

    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

    Comment

    Today's Birthdays

    Collapse

    Working...
    X