If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

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  • Referral information

    [Referral information]

    Author: Lisa Salberg (208.47.172.---)

    Date: 07-17-02 13:54

    Hello,

    It is the policy of the HCMA to not give specific referral information on the message board. Many people have asked for this information and for many reasons we at the HCMA do not believe it serves our population well to make random referrals in this manner. Please allow me to review the process we use at the HCMA to help those with HCM locate specialists.

    1. A brief history is taken.

    2. We look for the most convenient location for you to travel to.

    3. We look for how many family members are involved to help limit the # of trips needed per family.

    4. We try to match (to some degree) those with HCM with those doctors who can not only best meet their medical needs but also those who have personality that are compatible.

    5. We try to make the best match for each person.

    6. ALL information received by the HCMA is 100% confidential.(Insurance companies, doctors nor employers have ANY access to our records) –some members have given individual authorization to discuss their situation with our medical advisory panel – this is done on a case by case basis.

    THE HCMA IS NOT RUN BY DOCTORS OR NURSES - WE ARE PATIENT ADVOCATES, MANY OF WHICH WITH HCM OURSELVES AND EXTENSIVE TRAINING IN THE AREA OF HCM.

    General names and centers may be seen on the message board, but no "referrals" are done via the message board.

    In the coming weeks we will add a LINKS page to several major centers and to companies providing products that serve our needs. This page will help you gain more information in a time efficient manner on many centers and products.

    We are working very hard every day to improve services and provide assistance to all those with HCM and those treating those with HCM. We hope you share your feed back and thought with us via the message board or email.

    Sincerely,

    Lisa Salberg

    President

    HCMA

    973-983-7429
    NOTE: This is a post from the previous forum message board.

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