If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Concerned Daughter

Collapse

About the Author

Collapse

HCMA FORUM ARCHIVE Find out more about HCMA FORUM ARCHIVE
This topic is closed.
X
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Concerned Daughter

    [Concerned Daughter]

    Author: Louise (---.rasserver.net)

    Date: 07-16-02 22:29

    My mother was diagnosed with IHSS - I have a few questions since this has presented concern for myself and my siblings ... I know this condition has no age - I am 34 years old and after 2 minutes of light jogging or cardiovascular (even brisk walking) I am completely winded - even when I worked out 6 days a week (after monitored tests including lung tests they could not provide any explanation - the gym technician indicated "at least you have a good recover rate or we would be concerned") I have had 2 echocardiograms (one in 1995 when they detected mitral valve prolapse) and one just a month ago (where they no longer found mitral valve prolapse) the Cardiologist has not detected any abnormalties. Should I be happy or sceptical? Has anyone ever had Mitral Valve Prolapse disappear? And should I be concerned about my shortness of breath? Lastly, any link with HCM and cholesterol? I appreciate your direction to resources and insights

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Concerned Daughter]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 07-17-02 08:30

    Should I be happy or sceptical? I would say sceptical at the moment.

    Has anyone ever had Mitral Valve Prolapse disappear? Not to my knowledge, but I am not a doctor and MVP is not my area...I do see a great deal of HCM with MV involvement often mistaken for MVP.

    And should I be concerned about my shortness of breath? Yes, I would want to follow up on it if I were you.

    Lastly, any link with HCM and cholesterol? HCM or not we are all at risk for other forms of heart disease.

    I would suggest you seek a 2nd opinion, if possible from someone who sees more than a handful of HCM patients in his/her practice.

    Best wishes,

    Lisa Salberg

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Concerned Daughter]

    Author: Sarah B-Board Moderator (---.28.42.40.Dial1.Chicago1.Level3.net)

    Date: 07-17-02 11:06

    Hi

    Have all your siblings been tested? They ought to be.

    You can call the HCMA office at 973-983-7429 to get the name of an HCM specialist near you.

    Sarah
    NOTE: This is a post from the previous forum message board.

Today's Birthdays

Collapse

Working...
X