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Concerned Daughter


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  • Concerned Daughter

    [Concerned Daughter]

    Author: Louise (---.rasserver.net)

    Date: 07-16-02 22:29

    My mother was diagnosed with IHSS - I have a few questions since this has presented concern for myself and my siblings ... I know this condition has no age - I am 34 years old and after 2 minutes of light jogging or cardiovascular (even brisk walking) I am completely winded - even when I worked out 6 days a week (after monitored tests including lung tests they could not provide any explanation - the gym technician indicated "at least you have a good recover rate or we would be concerned") I have had 2 echocardiograms (one in 1995 when they detected mitral valve prolapse) and one just a month ago (where they no longer found mitral valve prolapse) the Cardiologist has not detected any abnormalties. Should I be happy or sceptical? Has anyone ever had Mitral Valve Prolapse disappear? And should I be concerned about my shortness of breath? Lastly, any link with HCM and cholesterol? I appreciate your direction to resources and insights


    [Re: Concerned Daughter]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 07-17-02 08:30

    Should I be happy or sceptical? I would say sceptical at the moment.

    Has anyone ever had Mitral Valve Prolapse disappear? Not to my knowledge, but I am not a doctor and MVP is not my area...I do see a great deal of HCM with MV involvement often mistaken for MVP.

    And should I be concerned about my shortness of breath? Yes, I would want to follow up on it if I were you.

    Lastly, any link with HCM and cholesterol? HCM or not we are all at risk for other forms of heart disease.

    I would suggest you seek a 2nd opinion, if possible from someone who sees more than a handful of HCM patients in his/her practice.

    Best wishes,

    Lisa Salberg


    [Re: Concerned Daughter]

    Author: Sarah B-Board Moderator (---.28.42.40.Dial1.Chicago1.Level3.net)

    Date: 07-17-02 11:06


    Have all your siblings been tested? They ought to be.

    You can call the HCMA office at 973-983-7429 to get the name of an HCM specialist near you.

    NOTE: This is a post from the previous forum message board.