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Andrew's surgery is done


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Dolly (Andrew's mom) Find out more about Dolly (Andrew's mom)
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  • Andrew's surgery is done

    (Caution....long post!)
    Everything went well with the surgery and he was out of the OR in just under 2 hours! There was more damage to the meniscus plate then they were expecting. They ended up having to cut out 1/4 of the whole plate, no fix to it. This might cause arthritis problems in that knee later on. But everything with the bone and ligament harvesting, drilling, grafting, and placing the screws went well.

    We were told his heart did well during surgery also. As usual, he was longer then normal coming around from the anesthesia, but once he did, he was taken out of recovery and put into a post op step down unit. He was drinking some Sprite and becoming pretty alert. Things were looking like he would be discharged within an hour or two so my parents headed out. Not ten minutes after they left he took his "turn for the worse" that is common with him. His blood pressure plummeted and his heart rate nose-dived (down to 45 which is when his pacemaker is set to kick in) he became lethargic and his oxygen levels fell........... and all kinds of alarms went off. At this time his pacemaker part of his ICD kicked in and kept his rate paced above 45, but his blood pressure kept falling. The nurses called the post-op floor doc and they were preparing to page cardiology and transferring him to that floor. They waited 15 more minutes and checked his blood pressure again and it went up a very tiny bit and his heart rate was up to 49. So we continued the wait and watch mode for another 30 minutes. Everything gradually climbed back up. (Whew!)

    After an hour of staying stable at less critical levels they had him get up and try to urinate. Getting him out of bed, into a wheelchair, and standing in a bathroom was not an easy task. After all that we find out he couldn‘t urinate. So back to bed and drinking more fluids. An hour later, they said he had two bags of IV fluids in him, one 6 oz glass of water and a 4 oz Sprite so he should be able to urinate. Got him back up, wheeled him to the toilet, got him standing in front of it, he tried, still couldn't urinate, and then proceeded to get extremely dizzy and almost fainted. They grabbed him, set him back in the wheelchair where he then vomited! (I am thinking by now that we were staying the night!)

    They got him back to his bed and he practically passed out! They decided to scan his bladder to see if there were even any fluids in there. Nope! His bladder was empty, despite all the fluids he had in him. Obviously, he was extremely dehydrated!

    After some more time with IV solutions, he again started coming around. We got him sitting up and drinking more pop. His vitals improved again. They decided instead of keeping him there until he urinated they would release him and we could continue pushing the fluids at home. If he had not been able to urinate by that evening we were to call them back and take him back in...........So home we went.

    By 8:30 that evening his bladder was full and terribly uncomfortable and he was still unable to urinate. I called the urologist and he said since Andrew had a femoral nerve block in his groin, in addition to the anesthesia some of those nerves that get the urination process going might still be numb from the block. He said it should be wearing off by then though.

    He also said when some people go under anesthesia and come back out of it some of their organs don't always "wake up" like they are supposed to. Some organs need help getting started, such as a cath in this case. And he said since Andrew had to be cathed after his last surgery to get the bladder working again, it is probably going to be needed once this time as well.

    So off to the hospital we go. He was cathed and his bladder emptied. We were told that should get things jump-started. Also, by this time, the nerve block had worn off from his knee down and his knee pain was becoming quite severe. We were told if he still couldn’t urinate by morning and/or he was still numb in the thigh and groin, that we were to bring him back in.

    This morning (Wed. 20th) he was still numb in the thigh and groin area from the nerve block, and his bladder was still not functioning. So back in we go. They inserted a cath line and a urine bag. He will wear the cath and bag until his post-op appointments on Thursday afternoon. They think they will remove it then, and see if his bladder will start functioning on it‘s own. They are also hoping the groin and thigh numbness from the nerve block will be gone by then. (It should have been gone last night.)

    We have no idea how his incisions or knee are doing because his leg is wrapped in layers from groin to toe. We do know he is in a lot of pain! We will get our first look at it tomorrow (Thursday). Hopefully his bladder will start functioning on it’s own tomorrow too. He is one miserable kid right now!
    mom to Andrew(HCM) 21 years old
    Diagnosed \'95 age 5
    Myectomy \'96 age 6
    ICD implant \'99 age 9
    First ICD shock (X2) \'04
    ICD replacement surgery \'05 age 15

    *And aunt to 7 year old Kenny who had HCM and suffered sudden death in gym class. (2/20/87 - 4/6/94)

  • #2
    Poor kid and Mom. Hopefully by tomorrow all will turn around and he will start the road to recovery. Thanks for letting us know how he is.

    Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
    ICD&Pacemaker 1996
    Heart transplant March 19, 2004 @ Mayo Rochester
    Mom of Kaye.


    • #3
      Hi Dolly and Andrew

      I can't imagine a young man going through all that he has in such a short period of time. He is a very strong person.

      I hope that all goes well tomorrow. I can just imagine how miserable he is...I think we all would be under the circumstances.

      Please keep us posted when you know more.


      • #4

        Sorry to hear he is having such a tough time, this kid needs a break! Send our best wishes to him.

        Take care,
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)


        • #5
          hi dolly thats a lot for anyone to have to go through nevermind a fifteen your old boy,my heart goes out to you.lets pray that things will be good for a while after this(a long while!!!)take care and best wishes for you and your family. mike
          One day at a time.


          • #6
            Andrew's bladder finally started working again late Thursday (21st)evening! 60 hours after it first shut down. He had the second cath removed at about noon Thursday and it was 9 1/2 hours after that before he urinated. After that long I was preparing to take him back in to have a cath inserted again. Needless to say we were doing "snoopy dances" when it finally kicked in!

            He also had his first post-op appointment yesterday and they removed all the dressings. I was quite surprised at how large the incision is! The surgeon said everything looked really good and there were no signs of infection. It is very swollen and painful, but that is to be expected.

            In addition, he had his first physical rehab appointment yesterday. The best way to describe that is "OUCH!" Both myself and Bob sat in on that appointment and saw for ourselves how much work he has ahead of him to get that leg working again now. All of his muscles and nerves from the knee up are totally asleep! There is nothing reacting to commands there right now and he has a long road ahead to train them all to work again. But he is determined to get that leg back to good as new! We will be setting up a physical therapy schedule with our local therapy clinic next week. The months ahead of painful physical therapy will definitely be the most challenging time!

            So for now everything is finally going "as expected" and we are so relieved to have the bladder issues behind us now!
            mom to Andrew(HCM) 21 years old
            Diagnosed \'95 age 5
            Myectomy \'96 age 6
            ICD implant \'99 age 9
            First ICD shock (X2) \'04
            ICD replacement surgery \'05 age 15

            *And aunt to 7 year old Kenny who had HCM and suffered sudden death in gym class. (2/20/87 - 4/6/94)


            • #7
              Dolly ,

              Glad to hear Andrew is starting to do better. A lot for a young person to go through. I hope he continues to improve and the road to recovery is smoother from here on in.

              Dx @ 47 with HOCM & HF:11/00
              Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
              Lead failure,replaced 12/06.
              SF lead recall:07,extracted leads and new device 2012
              [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
              Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
              Genetic mutation 4/09, mother(d), brother, son, gene+
              Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin


              • #8
                I'm so glad he's doing so well. I know the next few months won't be easy but he's determined and he'll get that knee as good as new before you know it!


                Husband has HCM.
                3 kids - ages 23, 21, & 19. All presently clear of HCM.


                • #9
                  Please tell him we all admire his determination and strength!