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Is spelling the name right…enough? Without a Trace

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felixdacat
felixdacat
Ventricle
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    Toogoofy317
    Member of 1000 Post Club!

  • Toogoofy317
    replied
    Hey Jim.

    They can take a chapter out of my life with HCM to get a best seller! Ya thnk maybe. I know in the past two-three years I've been put through the wringer and have went from Full-time student, worker and EMT to barely get out of bed somedays. So yeah I think it can progress that way as well

    Mary S.

    Leave a comment:

  • Laoshur
    Member of 1000 Post Club!

  • Laoshur
    replied
    Hmm,
    Heck, give her CHF and let her bloat up for everyone to see.
    I wanna see the makeup for that!

    But, unfortunately, Reenie, mail service is expensive, slow, and not likely to get here. Also, if you sent me a video, we could not play it because they do not have vcr's here and if you sent me a DVD or VCD, it would probably get stollen so someone could copy it for sale!

    Rhoda

    Leave a comment:

  • Eileen2345
    Member of 1000 Post Club!

  • Eileen2345
    replied
    Jim,

    Good point!!

    You are right!

    I love the "Bring it on!"


    Leave a comment:

  • mtlieb
    Brave Heart

  • mtlieb
    replied
    Originally posted by Cynaburst
    It is not very interesting that I go to my doctor every few months, get an echo, and have him change my medicines around a bit which is the reality surrounding this disease... The producers are not in the business of making sure that they have the best HCM experts making treatment choices for this character. They just want to make sure it is believable to the public so they will watch.
    I agree with Cyn here...

    I'm not certain i understand where everyone is coming from in their critique of the show. All this time we've been trying to educate the public, our families, and our friends as to just how serious this disease is and how disabling and sometimes even deadly HCM can be. Yet now we're going to pick the show apart because they're being too dramatic? Good grief! This is not the time for that. Let the network put Vivian through the ringer!

    Much of the viewing public is just now hearing about HCM for the first time... do we really want them to think it's 'not that big of a deal'?

    "Tune in next week while Vivian checks her blood pressure!" LoL.

    As long as they don't go out of the realm of possibility with HCM, i hope the network gives Vivian every known symptom, medication side-effect, treatment catastrophe, or work-related issue they can conjur up. Heck, give her CHF and let her bloat up for everyone to see.

    Bring it on!

    Jim

    Leave a comment:

  • Midge Rollins
    Moderator

  • Midge Rollins
    replied
    At the end of last weeks show there was a little blurb that came up in memory of ??? did not catch or remember the name but I was wondering if someone on the show or associated with had died of HCM. Which would explain the story line. Also whom ever may have had it some time with a dx of IHSS as that was my dx. years ago. Just a thought.

    Leave a comment:

  • Eileen2345
    Member of 1000 Post Club!

  • Eileen2345
    replied
    Maybe there are contract negotiations going on between the CBS and the actress and the character's fate is still up in the air ?

    (My personal experience with Sudden Cardiac Death ...... Two years ago when I was 39 years old [before ICD implant], I was in my bedroom, I bent down to pick up my slippers and when I stood up, I felt my heart stop. It took about 4 seconds and everything went black and I hit the floor, I woke up to Ryan shaking me vigorously and yelling "Wake Up!")

    And if she does have surgery, I hope they use terms that the public can understand. People do not know what a Myectomy is, they need to explain it, I hope they do (or did) that in the show's script.

    I hope they contact Lisa to make sure it is not too Hollywood.


    Eve

    Leave a comment:

  • Cynaburst
    Senior Member

  • Cynaburst
    replied
    I just want to remind everyone here that this show is a drama on a major network. Its main purpose is to generate Nielsen ratings so that CBS can sell advertising and make money.

    While social responsibility is something that I am sure that the networks take seriously, they are first and foremost in the business of making creative choices that will entice viewers to watch which will raise its numbers which will result in $$$ to them.

    So, whatever choices that they make in the story arc on this show are the ones that work dramatically. It is not very interesting that I go to my doctor every few months, get an echo, and have him change my medicines around a bit which is the reality surrounding this disease.

    The producers are not in the business of making sure that they have the best HCM experts making treatment choices for this character. They just want to make sure it is believable to the public so they will watch.

    And by the way, we do have doctors out here that know what they are doing with regard to HCM.

    I just think that everyone here has to recognize that the format of one-hour dramas on television is designed to entertain...not to educate the masses on the nuances of HCM and its treatment.

    Leave a comment:

  • angall
    Member of 1000 Post Club!

  • angall
    replied
    Shirley.......
    I agree with you somewhat. When I was FIRST diagnosed with HCM, I held down two jobs, took care of a 3 yr. old daughter and did gardening. To me Without A Trace is portraying that Vivian can't do much of anything from when she was first diagnosed. For the majority of us, we can function almost normally in the beginning of our diagnosis, but as time goes on we can do less and less. I just don't want anyone to think "Oh my gosh,.....if I had that disease, I should just lie down and die". That isn't true.
    I do believe if they would get their facts right, people wouldn't be mislead,

    Leave a comment:

  • Pam Alexson
    Moderator

  • Pam Alexson
    replied
    I hear clearly what you are saying Shirley.

    There are several like yourself who have difficulty functioning in any normal fashion with HCM. The degree to how it effects us all is varied and different on any given day. Yesterday , I was able to go out to a restaurant with 2 dear old college friends and have a light lunch and conversation. By afternoon yesterday and starting today I am not worth much other then scuffling from room to room. I could no sooner hold down a job then get through each day without frequent rest periods including naps. I think it is very hard for those who have mostly challenging days to not strongly identify with the version of HCM that Vivian is appearing to exhibit.

    While watcing her on the last episode , I could not help but say to myself , "oh my she looks as tired , worn out and overwhelmed as I, you, and some others often report."

    I feel as with the portrayal of any disease in a concentrated form shown on television, the producers will follow a story line regarding a complex case of HCM.( For the audience it will evoke more interest and empathy). This does not however portray the vast array of variation of effect that each HCM individual faces uniquely nor does it serve to accurately educate the masses. I hope it serves to at least lead to more people looking into HCM and finding that there is a lot more to HCM then any fictional television version could exhibit.

    Pam

    Leave a comment:

  • Reenie
    Super Moderator

  • Reenie
    replied
    Originally posted by Laoshur
    Waaa... I feel cheated! All we get here are pirated versions of previous seasons and I love this show.

    Oh, well, at least I don't have to wait week after week to find out what happened next!

    Rhoda
    Can you get regular mail? I can tape a few episodes and mail them to you if you want.

    Reenie

    Leave a comment:

  • shirleymahoney
    Brave Heart

  • shirleymahoney
    replied
    Well i believe all of us with this disease are different in our own way, my brother died in his car on his way to work and he had the disease well was diagnosed with it for 8 years, and from what i have read there are people working and people that can't hold down a job like me, sometimes i wonder how my brother did it sometimes, i have done a couple loads of laundry today and feel like i could lay down and take a nap

    Shirley

    Leave a comment:

  • angall
    Member of 1000 Post Club!

  • angall
    replied
    I have faithfully watched every Without A Trace show since it first hit the air. I've gone to the site and read what is going to happen this season.

    The only problem I have, so far, is Vivian not going to work. In my opinion, this is misleading. How many of us DO work and continue with our every day chores too? Vivian doesn't seem to be in the "final stage".

    Lisa....I am so glad you have written to Without A Trace. Hopefully they will contact you and you can suggest a HCM specialist to contact to continue on in the right and correct direction with Vivians treatment and progress. If they really want to get rid of Vivian, I'm sure they won't want to hear any suggestions from people who have so much knowledge first hand.

    Here's hoping you do get connected.

    Leave a comment:

  • Lisa Salberg
    HCMA CEO and Founder

  • Lisa Salberg
    replied
    I have written to Without a Trace myself. I am waiting to hear back from them. I will keep you all posted.

    Thanks,
    Lisa

    Leave a comment:

  • Laoshur
    Member of 1000 Post Club!

  • Laoshur
    replied
    Waaa... I feel cheated! All we get here are pirated versions of previous seasons and I love this show.

    Oh, well, at least I don't have to wait week after week to find out what happened next!

    Rhoda

    Leave a comment:

  • Toogoofy317
    Member of 1000 Post Club!

  • Toogoofy317
    replied
    Felix,

    I've not watched this show either but have read the transcript from a recent episode. It seems they are actually approching it reasonably. She is on Beta-blockers and the options they are giving her are between myectomy and ablation. She also mentions that before anything will get done she will have a second opinion. So, at least they are not going completly off the deep end. As hollywood goes nothing ever gets perfect representation. What I see though is this 15 million people have now been exposed to the phrase "hypertrophic cardiomyopathy". The positive to that is when they type it in the HCMA is the second hit on the Google search engine. That is phenomonal!

    I"m guessing where the life or death spin comes into play will be during the myectomy. While, complications are rare it does happen. Paul can attest to that and I'm not sure if you were a member at the time one member did die from complications to the surgery. Although, both instances were not because of HCM it may be ths spin CBS goes for.

    Just my two cents on the matter,

    Mary S
    PS here is the HCM part of the transcript from 3/31/2005

    (The doctor puts a band-aid on Vivian's arm. Vivian sits on the exam table in a
    hospital gown.)

    LAB TECH: Okay, you are all set. Remember to make that follow-up with Dr.
    Marsh on your way out.

    VIVIAN: Thanks.

    (The lab tech takes his things and leaves.)

    MARCUS JOHNSON: Ooh ... you all right?

    VIVIAN: Yeah. I'm sure it will be a little stiff.

    (Marcus Johnson stands up and sits down on the exam table next to Viv.)

    MARCUS JOHNSON: I meant what Dr. Marsh said. Beta blocker's not working.

    VIVIAN: Maybe this new dosage will.

    MARCUS JOHNSON: Viv ... even he says that it's a long shot. And these other
    options - (reads off his notes) -- this septal ablation and the myectomy Honey,
    this is open heart surgery.

    VIVIAN: Yeah, which Dr. Marsh has performed more than any other surgeon in the
    city. Besides which, I won't do it until I get a second opinion.

    Leave a comment:

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