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After being diagnosed 30 years ago, myectomy will be next week at Mayo on Wed April 13, Still have to figure out transportation and stuff. My son has his defib changed her in Tulsa on the 22, so my wife is wishing she could be split in half but we will work it out. Just wanted to keep everyone updated.
Thanks,
Art
Thanks for the update! There must be a sale on myectomies this spring, we've had one right after another here lately. I'm glad to hear you'll be in the fine hands of the folks at Mayo. We'll all be looking forward to getting frequent updates from you and provide any assistance that we can.
Jim
"Some days you're the dog... some days you're the hydrant."
Yep Art, seems like everyone is going for a myectomy right now - I just did mine a couple of weeks ago! I'm sure you know, but Mayo is one of THE places to do it anywhere in the world so you will be in the best hands. Wishing you a smooth and successful operation and recovery.
Paul
(Myectomy 03/18/05, Melbourne Australia)
Age 38, dad of two young children, dx 1996, myectomy March 2005, a-fib issues, due for ICD soon.
Art -
I know this has been a long road for you - I hope your myectomy is the start of a new road!
Best wishes,
Lisa
Knowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
Art
I had my Myectomy @ Mayo July 2003. Let me know if you need any input/suggestions regarding hotels, transportation etc.
If your're scheduled for the 13th, you should be home by the 22nd. Is the 13th your actual Surgical date or the date of your pretests/meeting with the Docs?
Art - Just curious....what has changed with your situation to induce you to undergo a myectomy at this time in your life (as opposed to 10 years ago, or shortly after you were diagnosed)? Have your medications stopped working well? Have your symptoms worsened?
Daughter of Father with HCM
Diagnosed with HCM 1999.
Full term pregnancy - Son born 11/01
ICD implanted 2/03; generator replaced 2/2005 and 2/2012
Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.
When I was first diagnosed in 1976, my gradient was 10, septam measured 12 mm. I ran 2 miles a day and was asymtopmatic except for a couple of fainting spells. Over the last 10 yearsI have grown increaingly syptomatic (sob, chest pain, fatigue, chronic bronchitis, pneunomonia etc) and v-tach on holter and scd in the ep lab waitning for the ep to start. Since my symptoms were not being controlled after 30 years of beta blocker and 5 years of verapimil I went to Mayo and they advised me I was NYHA class 3, septum now measured 17-23mm and under valsava went to 45 and higher under exercise it was time to do myectomy.
Art
Why is everybody talking about myectomy? I don’t have no stinking Ectomy! You wanna talk? You talk about your Ectomy and leave my Ectomy alone. What do you think this is? Anyhow?
You say a myectomy is a heart shave? Wassa matta? Your face isn’t enough? Anna for you girls – I donno what you gonna shave next. Under you arms – over you legs – in summer you bikini lines. (Why you no buy a bikini what’s bald already?) So much I no understand about you crazy kids today.
I think I go listen to some Rudy Valley records. Anybody got a phonograph needle?
Burt
Best of luck, Art. I'll be following after you at Mayo Clinic in a couple months.
I cased out a couple places my husband might stay when we're there, let me know if you want to swap info. Wishing you an excellent surgery and recovery. Keep us posted.
(And who's turn is it anyway to keep an eye on Burt and his oxygen levels?? Did we slip up?)
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