If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

post myectomy

Collapse

About the Author

Collapse

progers Find out more about progers
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • progers
    replied
    Hi Shirley,

    You have it tougher than most, that's for sure.

    I will be seeing my GP today, then cardiologist on Wednesday so I'll get their feedback on what's going on with all my ailments. I'm waiting to report good news on my recovery to the Board, but progress is still very slow and sometimes I seem to be going backwards.

    Best wishes,

    Paul

    Leave a comment:


  • shirleymahoney
    replied
    Paul

    You can't go by me i'm the weird one here, but i have SOB still but my heart is very stiff and am told that is why i have shortness of breath, now right after my myectomy i was told i would get it from time to time but it would get better, but put it on your list for the doctor he needs to know anyway

    Shirley

    Leave a comment:


  • Burton Borrok
    replied
    OK Paul,
    I’ll grant you that you’re somewhat distracted at the present time, so I won’t hold anything against you, but your problem is that you’re reading pistol as one word.

    Well, maybe the use of that term isn’t so common among you Aussies. I really take you for good bloke and not a drongo. (Now I left the Yanks in the woods.)

    Does anybody speak English anymore?

    Hooroo mate,
    Burt

    Leave a comment:


  • progers
    replied
    Nice one Burt! Don't really get the pistols part though.

    Ronnie, when did you start feeling like you had your energy back after your myectomy?

    Cheers,

    Paul

    Leave a comment:


  • Toogoofy317
    replied
    Hey Burt,

    I've got some extra oxygen at home do you need it sent? Guess, its my day to watch you

    Paul, hang in there. I've never had a myectomy but I've had lots of bad things to over come and it will happen one day.Things will get better. TRUST ME!

    Mary S.

    Leave a comment:


  • Burton Borrok
    replied
    Yeah Paul,

    I hear you are joining the Pills and Pistol club with the rest of us,

    First you take the pills -
    Then you pistol the next time.

    But now is the time to rest and heal. Just sit there on Uranus and contemplate the cosmos - until you settle back to earth.

    (Boy, where is that oxygen tank when you really need it?)
    Burt

    Leave a comment:


  • Ronnie
    replied
    Paul-
    Thought I would join the choir of "Hang in there". I remember thinking , "I wish it were next week or next month already, so I could feel better". I would walk into my kitchen (to get a change of scenery & sit zoned out for an hour or 2. That's just your body trying to get thru the trauma it's been thru. Plus the Bypass machine does strange things to you.
    I bet you're a bit of a perfectionist & very demanding of yourself, in general. You're probably saying "hey, lots of other people have been thru this & they felt better than I do!" WE ALL FELT CRUMMY> give yourself a break. You don't have to be perfect & you will feel better, very soon (just not soon enough)

    I was sob after & it made me nervous too, but as long as your doc says it's ok, accept that. I still feel sob, but it's never as bad as it was. I remember that I had tons of fluid & it took several weeks to disapaite. I remember looking at my legs in the hospital & cringing, each of my legs was bigger than my whole body & my hands were huge also. I'm a tiny person, but after the Myectomy I felt as wide as I was tall. I continue to have fluid retention problems, I take 6 Bumex (lasix no longer works) a day & twice a week a Zyeroxolin booster twice a week. I remember, in the hospital every day they woukld wheel in the scale for me & write my weight on the blackboard & every day I got heavier! Good thing they wrote it in Kilos & I could not convert it to lbs. I eventually did loose the excess fluid. You will too.
    Be patient - you are the patient.

    Leave a comment:


  • progers
    replied
    Thanks Pam!

    I'm just hanging in there taking each day as it comes. The days are passing so maybe soon I will wake up and think, "wow, I feel good today".

    Take care Pam.

    Paul

    Leave a comment:


  • Pam Alexson
    replied
    Paul,

    I remember that feeling so well when I was having my complications. I use what I learned even today whenever there is something to go through , sort of a limbo time where life just is moving around me.

    I remember I would stare at the clock at intervals and pray to have time move forward faster because I knew that time would make a world of difference in my getting to feel more like myself. A lot of my energy was sapped during the process just trying to be patient to let time and my body do what it needed. I had to keep my mind away from it( limbo). It was so evident that my doctor( Dr. M. Maron ) was more then a little concerned. He saw that (away) part of me and one day verbalized his concern for my emotional distance. I informed him that " I " was still present , but i needed to do this to go through it. I gave him the analogy of an indian woman going into the woods all alone to give birth . ( It is a walk that anyone who has been through this goes totally alone on... I think it was a bit much mentally at times.) He laughed and said , I understand but would you please just smile so I know Pam is there . We both laughed and I made a point of showing him and others that I would be back soon. It is so important to keep the spirit positive and hopefull.

    I do see flickers of Paul coming back in your posts. I know you will continue to heal and feel better and better. I know this is not the type of slowing down you were thinking of when you first contemplated it. You are in my thoughts and prayers.

    Pam

    Leave a comment:


  • progers
    replied
    Thank you so much Reenie. I really do value your support. It is a very tough time for me right now. Logically, I know that this will all be behind me sooner or later. I am just hanging in there waiting to get better. Its 3 weeks tomorrow since the second surgery. It feels like 3 months though!
    I've always wanted to slow time down to enjoy my life but it always seems to fly. However, right now it has slowed down - its amazing. I just want to put this whole thing behind me and feel normal again.

    With deep thanks,

    Paul

    Leave a comment:


  • Reenie
    replied
    Hi Paul. I think about you daily and say a little prayer for you each time. I hope that you're on the upswing now and can't see it yet. I'm sure in the next few weeks life will get better for you. Hang in there.

    Reenie

    Leave a comment:


  • progers
    replied
    Hi Reenie,

    As it turned out, I ended up in the ER again yesterday after the cardiac rehab nurse noticed I wasn't looking so good. I told her I was just having a migraine, but because I was having visual disturbances (which is a sign of a stroke), she insisted I go to the ER. They did a whole range of tests and - on the orders of my surgeon - an echo. I've written about all this on another thread ('myectomy recovery'), but in short everything appears normal. My surgeon was in touch with the ER doctor and was concerned that I might have some cardiac effusion (fluid in the heart sack). However, all is apparently well.

    I'll post more in the days and weeks that follow. Hopefully then I will be able to report good news for a change!!

    Cheers,

    Paul

    Leave a comment:


  • Reenie
    replied
    Paul, if this continues please get checked out. Some of our myectomy vets have had problems with fluid around the lungs shortly after surgery. Pam, Bettie, and Lynn did but I'm not sure of others.

    Reenie

    Leave a comment:


  • Pam Alexson
    replied
    Paul, I posted in the other thread about this. I think it is still early , read my post there.

    Pam

    Leave a comment:


  • progers
    replied
    Hi Pam and Shirley.

    Did either of you guys experience SOB shortly after your myectomies? I can't be sure, but this last day or two I could swear there is that old breathing pressure sensation. Do you know what I mean? When I was in A-fib in the hospital I was having some SOB while lying down. This is slightly different and I can't tell if its simply just in my head or if the old SOB has returned.

    When I was in hospital my surgeon claimed that my pressure gradient was now only around 10 and that he knew that my heart function had improved after the myectomy, because it was handling continuous A-fib so well. But my deepest fear is that the SOB will return. I know this is possible because of diastolic dysfunction - Shirley knows all too well about this.

    Best wishes,

    Paul

    Leave a comment:

Today's Birthdays

Collapse

Working...
X