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  • #46
    Paul

    You can't go by me i'm the weird one here, but i have SOB still but my heart is very stiff and am told that is why i have shortness of breath, now right after my myectomy i was told i would get it from time to time but it would get better, but put it on your list for the doctor he needs to know anyway

    Shirley
    Diagnosed 2003
    Myectomy 2-23-2004
    Husband: Ken
    Son: John diagnosed 2004
    Daughter: Janet (free of HCM)

    Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

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    • #47
      Hi Shirley,

      You have it tougher than most, that's for sure.

      I will be seeing my GP today, then cardiologist on Wednesday so I'll get their feedback on what's going on with all my ailments. I'm waiting to report good news on my recovery to the Board, but progress is still very slow and sometimes I seem to be going backwards.

      Best wishes,

      Paul
      Age 38, dad of two young children, dx 1996, myectomy March 2005, a-fib issues, due for ICD soon.

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