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jkalpin Find out more about jkalpin
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  • pregnancy and HCM

    hi. I'm new to this site. I am a 29 yo female with HCM. My husband and I are at the point of making a decision about having children and what route to take. We have spent a lot of time trying to collect the information we want before coming to any conclusions. Does anyone have any insight or advice on giving birth with HCM?

    Thanks much!

    Jennie

  • #2
    Hi Jenny. Welcome to the HCMA. You can give Lisa Salberg a call at 973-983-7429 and she can help you a lot with questions you might have, but there are already several topics here you can read in the meantime. I wish you the best of luck. If your health is pretty good and you're stable you will probably have an uneventful pregnancy. Some have chosen not to take a chance at having a child who might develop HCM later. It's all up to you. Use the search engine at the top of this page to see some of the threads about pregnancy and HCM.

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

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    • #3
      Jennie, Welcome. I wish you the best in whatever you and your husband decide. You will soon be seeing postings from many with very different stories. Use the search feature for more info. As Reenie suggested, please call Lisa and talk with her. Hoping to hear more from you in the future, Linda

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      • #4
        Hi Jennie,
        I am 30 years old and 5 months pregnant right now. I found out I had HCM a year ago and was told people with this cant have children. I had a hard time believing that seeing as how I already had a 2 year old and had a picture perfect pregnancy! Lisa pointed me to a wonderful HCM specialist who did a thorough assessment of my condition and said it would be fine for me to have another child. I have noticed my heart flutter a little more often and I am tired alot but not bad enough to slow me down too much. I have noticed that I am extremely sensitive to caffeine now and it will cause my chest to hurt if I have some (that is one way to make a pregnant lady quit caffeine cold turkey ) Basically so far this has been an uneventful, easy pregnancy so far. I actually get to find out what I am having today and I am soooo excited!!
        My best advice to you is if you don't already see a specialist, get one they can tell you the best plan for you. Remember that there is a chance you may pass HCM on to your little one but that is a chance I am willing to take. Besides I am glad my mom had me even if I do have HCM. Most importantly don't let it get you down. There will probably be some who will answer this link who are adamant that we should not have kids, I encountered several as I was making my decision. I can respect their opinions but ultimately I know I have made the right decision for me. Use the knowledge you get here to make the right decision for you.
        If you ever have anymore questions about pregnancy and HCM I have done it twice now so I will be glad to tell you about my experiences, feel free to send me a private message and ask whatever. Best of luck to you as you make this important decision!

        Gayle
        2.6 Septal Measurement
        ICD Aug 2010 (pushed into it over 6 abnormal beats...hate it!!!)
        "I would rather have thirty minutes of wonderful than a lifetime of nothing special"
        ~Steel Magnolia's~

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        • #5
          I think Gayle said it all.

          Do you have a specialist taking care of your HCM at this point?

          Lisa
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

          Comment


          • #6
            Hi, Sorry I am posting so late, but I just saw this post.
            I had one child before being diagnosed and one child after. With my youngest(now 5) I actually felt MUCH better during the pregnancy then I did before. Both were uneventful and both my boys are healthy and HCM-free so far.

            My cardiologist told me after my son that was born that I was fine to have more kids but we chose not to. Well... "I" chose not to.
            Good luck, and be sure to be seen by an HCM specialist if you haven't already, they can give you the best advice regarding your current health status and how a pregnancy may or may not effect you.
            Best wishes,

            Pam
            It's not what you gather, but what you scatter that tells what kind of life you have lived.

            Dx in Feb/99. Obstructed. No ICD, no surgeries, no family history. 2 sons ages 14 and 6.

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            • #7
              Hi Jenny,
              I am a male so I didn’t have any pregnancy worries whatsoever, - but maybe that was because I wasn’t diagnosed until I was 71 years old. (However, I kind of suspect that if my mother was still alive when I was finally diagnosed she would have tried for an abortion. [She would have been a hundred and three by that time.])

              Obviously being a male precludes my having any kind of first hand experience with HCM and pregnancy. But those who do have first hand experiences and post to this board seem to think if you have expert guidance and care, it isn’t much different then if you had never heard of HCM. – Well, a few more doctor visits maybe, but generally nothing of real significance.

              Instead, I would like to address it from the child’s point of view. (I’m sure almost all the people on the board will testify to my many, many years of childhood.) What I want to say is that with possibly only one or two exceptions everybody I know who has this disease – even those at extremes who have had, or will soon have, a heart transplant – is eternally grateful to their mothers for having had them. I expect the same is true of the 50% who were born of an HCM parent but did not inherit the disease.

              Finally, I guess all I want to say is to take this whole prospective new branch of your family tree into consideration when making your decision. In your shoes I would make sure I had the proper medical care and advice and with a green medical light, I would definitely have the child. There is no way I would ever give up my own two children, and would hate to see someone miss out on such joy, unless it would be medically imprudent.
              Burt

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              • #8
                hcm and pregnancy

                Hi,
                I was diagnosed before I got pregnant. My daughter is now 14 years old, and she was diagnosed 2 years ago with HCM. My pregnancy was very good actually. My blood pressure stayed normal, and I didn't feel too bad. I did get tired alot and had to have naps, but nothing too serious. Because this disease is not known very good in Nova Scotia, they put me in the hospital when I was 5 months pregnant and I stayed there till 7 and half months. At least they were able to know for the next person, that they didn't need to hospitalize them just because they have HCM. It was worth staying in the hospital for though. She brings me great joy.
                Life is too short to worry about the trival things in life, So live life to the fullest.

                Comment

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