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[pregnancy and HOCM]
Author: Becky Sheets (---.dsl.lgnnmi.ameritech.net)
Date: 07-09-02 21:54
Hello everyone,
I just found this message board and would love some input. I was diagnosed with Hypertrophic Obstructive Cardiomyopathy when I was 2 months pregnant. Now in my 37th week, I am really having a hard time. I have been off work for 5 weeks due to shortness of breath, chest discomfort and palpatations. I even have the left arm and shoulder actually ache when this happens. What my cardiologist seems to think is strange is that most of this happens at night and keeps me from sleeping. I get the impression that he thinks I am crazy. I am taking one and a half tablets of toprol-xl 25 mg one time per day and every week when I go back to see him he is stunned that I am not feeling better! I am just praying to get through the next couple of weeks, deliver my child and maybe I will feel better. Has anyone else had any experiences with symptoms being like this during pregnancy? Has anyone ever had this worse at night like me? I feel like I am going crazy and maybe I am just making myself feel sick.
Looking for help!
Becky
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[Re: pregnancy and HOCM]
Author: susan (---.164.OVG.vol.com)
Date: 07-10-02 11:20
becky,
get a hcm specialist, i had problems like this with both my pregnancys. my obgyn did a lot of research on hcm when i was pregnant with my first child. take it easy and don't do to much. don't lay on your right side. i would quit breathing at nite. the reason was that your uterus will rise up and lay on your heart valves and cause you to stop breathing. or something like that. its been over 5 years since i was pregnant. but make sure you get a specialist and let him know what is going on
susan
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[Re: pregnancy and HOCM]
Author: Sarah B-Board Moderator (---.tnt3.chiega.da.uu.net)
Date: 07-10-02 23:13
Dear Becky
25mg is a tiny little dose. You need an ob/gyn who has handled higher risk patients before AND an electrophysiologist cardiologist. My mom had 4 babies and she had HCM. She was on more medication than you are we are all normal (2 of 4 have HCM).
You will also need to have your child tested every few years once he or she reaches 5 or 6.
good luck and the HCMA office is 973-983-7429 for doctor info.
Sarah
Author: Becky Sheets (---.dsl.lgnnmi.ameritech.net)
Date: 07-09-02 21:54
Hello everyone,
I just found this message board and would love some input. I was diagnosed with Hypertrophic Obstructive Cardiomyopathy when I was 2 months pregnant. Now in my 37th week, I am really having a hard time. I have been off work for 5 weeks due to shortness of breath, chest discomfort and palpatations. I even have the left arm and shoulder actually ache when this happens. What my cardiologist seems to think is strange is that most of this happens at night and keeps me from sleeping. I get the impression that he thinks I am crazy. I am taking one and a half tablets of toprol-xl 25 mg one time per day and every week when I go back to see him he is stunned that I am not feeling better! I am just praying to get through the next couple of weeks, deliver my child and maybe I will feel better. Has anyone else had any experiences with symptoms being like this during pregnancy? Has anyone ever had this worse at night like me? I feel like I am going crazy and maybe I am just making myself feel sick.
Looking for help!
Becky
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: pregnancy and HOCM]
Author: susan (---.164.OVG.vol.com)
Date: 07-10-02 11:20
becky,
get a hcm specialist, i had problems like this with both my pregnancys. my obgyn did a lot of research on hcm when i was pregnant with my first child. take it easy and don't do to much. don't lay on your right side. i would quit breathing at nite. the reason was that your uterus will rise up and lay on your heart valves and cause you to stop breathing. or something like that. its been over 5 years since i was pregnant. but make sure you get a specialist and let him know what is going on
susan
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: pregnancy and HOCM]
Author: Sarah B-Board Moderator (---.tnt3.chiega.da.uu.net)
Date: 07-10-02 23:13
Dear Becky
25mg is a tiny little dose. You need an ob/gyn who has handled higher risk patients before AND an electrophysiologist cardiologist. My mom had 4 babies and she had HCM. She was on more medication than you are we are all normal (2 of 4 have HCM).
You will also need to have your child tested every few years once he or she reaches 5 or 6.
good luck and the HCMA office is 973-983-7429 for doctor info.
Sarah