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  • % of the population

    [% of the population]

    Author: Bel (---.excel.net)

    Date: 07-03-02 13:56

    Hi Sarah and Lisa,

    My thanks for all your help over the last week or so and thanks for the call last night Lisa.

    I am wondering what percentage of the population has this disease when all's said and sifted. Any educated guesses out there? Thanks Bel

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    [Re: % of the population]

    Author: Larry (216.44.68.---)

    Date: 07-03-02 14:11

    Estimates range from 1 in 500 to 1 in 1000 births may be affected by HCM. This information is available on the homepage of this website if you may want to read more.

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    [Re: % of the population]

    Author: Lisa Salberg (208.47.172.---)

    Date: 07-03-02 14:49

    Yes, Larry is right 1 in 500 to 1 in 1000 people have HCM this means that nearly 500,000 people in the USA have HCM!

    Lisa

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    [Re: % of the population]

    Author: Bel (---.excel.net)

    Date: 07-03-02 16:20

    1 in 1000 or 500 births? Is it something that is normally screened for at birth and what about those who don't show up until later in life? I'm just trying to think of total figures. I'm looking for a way to make life insurance and the ability to obtain it one less hurdle for those who may have it. Bel

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    [Re: % of the population]

    Author: Board Moderator--Sarah Beckley (---.dsl.mindspring.com)

    Date: 07-03-02 17:27

    Dear Bel

    This is not something that is screened for at birth, nor will it be possible to do so until quick and easy blood tests for the genetics of it (which are very complicated and there are about 10 genetic variants discovered so far).

    I think of HCM as the disease that grows as you grow, which is why it is not symptomatic or discovered until the teens and 20s of most people. It is only after the heart has had the time to grow incorrectly that it is possible to screen for it.

    Good luck with your goal. Personally, I think life insurance companies would love to be able to deny all genetic defects from birth, but maybe someday things will turn around.

    Sarah
    NOTE: This is a post from the previous forum message board.

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