hi everyone I hope all is well.I just received a newsletter regarding a seminar at hofstra university on long Island.I would like to go ,and was wondering if anyone else out there was thinking about going.feel good mike OB. March 14, 4:30 pm
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hcma at hofstra
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I will be there! I hope to see many of you show up! I know it is a Monday and many of you have work and school - but heck play hookie and come see the Teague Ryan Act hit the press - we will also have some HCM docs on hand to answer some questions and families to share your experiences with.
hope to see you there,
LisaKnowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
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