It has been a long week, and I have hesitated posting about my appointment because it didn't go as I had hoped. We have been preoccupied with other things as well, so I have just yesterday been able to really let the whole situation sink in.
First off though I would like to say that sadly my husbands aunt, who had been very ill with breast cancer for several years passed away while we were in Toronto, so we flew home on Friday. She was only 54 and although we new she was not going to recover this time, it was still very difficult. Makes my problems seem small in comparison.
As for my appoinment, it could have been better. The day was long and exhausting. The walking took so much out of me. A LOT of walking and a LOT of waiting. The echo was over an hour long and so painful. My chest was still sore when we flew home on Friday (3 days later). By the time I saw Dr Wigle, I was tired, hurting and just feeling really horrible. I just wanted to go home.
There was no question of his knowledge on HCM and I am atleast comforted by knowing that I have been evaluated by a specialist.
I (as always) had a very hard time communicating with him, and I know I didn't convey to him just how symptomatic I am.
The only thing I did with my list of questions was wrinkle and twist it around my fingers.
I didn't look at it once, and didn't ask him a single question. Even when he suggested a med change-I didn't even ask him what he was switching me to. I just sat there looking stupid!!
On days like those I wonder how it is that I am able to walk upright.
So I don't know where I will go from here. It seems a long life to live like this, but I am not fond of my other option!!
On the upside, I was able to get out and enjoy some of my time while in Toronto, which was nice. Oddly it felt great to be out of my 'comfort zone'. And flying, which had been a huge fear of mine, turned out to be quite enjoyable. So all was not lost.
Well that about sums it up.
Take care all
Pam
First off though I would like to say that sadly my husbands aunt, who had been very ill with breast cancer for several years passed away while we were in Toronto, so we flew home on Friday. She was only 54 and although we new she was not going to recover this time, it was still very difficult. Makes my problems seem small in comparison.
As for my appoinment, it could have been better. The day was long and exhausting. The walking took so much out of me. A LOT of walking and a LOT of waiting. The echo was over an hour long and so painful. My chest was still sore when we flew home on Friday (3 days later). By the time I saw Dr Wigle, I was tired, hurting and just feeling really horrible. I just wanted to go home.
There was no question of his knowledge on HCM and I am atleast comforted by knowing that I have been evaluated by a specialist.
I (as always) had a very hard time communicating with him, and I know I didn't convey to him just how symptomatic I am.
The only thing I did with my list of questions was wrinkle and twist it around my fingers.

On days like those I wonder how it is that I am able to walk upright.

So I don't know where I will go from here. It seems a long life to live like this, but I am not fond of my other option!!

On the upside, I was able to get out and enjoy some of my time while in Toronto, which was nice. Oddly it felt great to be out of my 'comfort zone'. And flying, which had been a huge fear of mine, turned out to be quite enjoyable. So all was not lost.
Well that about sums it up.
Take care all
Pam
Comment