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My Great Neice

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shirleymahoney Born In Tulsa Oklahoma and have a wonderful husband and 2 great children Find out more about shirleymahoney
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  • #1

    My Great Neice

    Just to let everyone know my great neice is in the hospital 8 months pregnant and she is the one that has HCM Well she is in ICU in Tulsa Ok in heart failure the baby seems to be fine for now, i would like for everyone to keep her in your thoughts and prayers, she wasn't suposed to get pregnant but when the doctor told her this she was already pregnant, she said this time they are going to tie her tubes after the baby is born and baby is a boy

    Shirley
    Diagnosed 2003
    Myectomy 2-23-2004
    Husband: Ken
    Son: John diagnosed 2004
    Daughter: Janet (free of HCM)

    Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9
    Tags: None
  • #2
    I will be keeping your niece and her precious baby boy in my prayers. I know this is a difficult time for all, please send her and family our best wishes. Linda

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    • #3
      Shirley
      I will include your great niece in my prayers. May God watch over her and the baby.
      Esther

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      • #4
        May God grant mercy.
        Leon
        God Squad co-moderator
        Nothing is as gentle as strength and nothing is as strong as gentleness

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        • #5
          I pray all goes well and both mother and baby will be fine.

          Reenie
          Reenie

          ****************
          Husband has HCM.
          3 kids - ages 23, 21, & 19. All presently clear of HCM.

          Comment

          • #6
            I'll be praying, too. Please keep us updated.

            Rhoda

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            • #7
              I am praying for your great niece and her baby boy. May God shed His healing grace. Please keep us posted.

              Eileen
              49 yrs. old
              Diagnosed at 31.
              Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
              First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
              Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
              Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
              My brother passed away suddenly at 34 yrs old from HCM.
              2 teenage children, ages 17 and 15.

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              • #8
                Ok just to let everyone know my sister in law called lastnight and said my great neice will possibly get to go home tomorrow on bed rest until the baby is born, they did an Echo on her but are repeating it after the baby is born because there has been an increase in thickness and said it may go down after the baby is born they are concerned about thicknesss of her heart, but keep her in your thought please

                Shirley
                Diagnosed 2003
                Myectomy 2-23-2004
                Husband: Ken
                Son: John diagnosed 2004
                Daughter: Janet (free of HCM)

                Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

                Comment

                • #9
                  Shirley,

                  If she needs any help with consulting with a specialist - please pass on my number and I will do whatever I can to assist.

                  Best wishes,
                  Lisa
                  Knowledge is power ... Stay informed!
                  YOU can make a difference - all you have to do is try!

                  Dx age 12 current age 46 and counting!
                  lost: 5 family members to HCM (SCD, Stroke, CHF)
                  Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                  Therapy - ICD (implanted 97, 01, 04 and 11, medication
                  Currently not obstructed
                  Complications - unnecessary pacemaker and stroke (unrelated to each other)

                  Comment

                  • #10
                    Shirley - I had an increase in my septal thickness when i was pregnant that went back down after I delivered.
                    Daughter of Father with HCM
                    Diagnosed with HCM 1999.
                    Full term pregnancy - Son born 11/01
                    ICD implanted 2/03; generator replaced 2/2005 and 2/2012
                    Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

                    Comment

                    • #11
                      Shirley,

                      I am a little late coming in here . I hope everything continues to go well and your niece and her expected son are in my thoughts and prayers.

                      Pam
                      Dx @ 47 with HOCM & HF:11/00
                      Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                      Lead failure,replaced 12/06.
                      SF lead recall:07,extracted leads and new device 2012
                      [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                      Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                      Genetic mutation 4/09, mother(d), brother, son, gene+
                      Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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