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Trip to Mayo.

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Art Geddes Find out more about Art Geddes
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  • Trip to Mayo.

    Well after 29 years of this disease, I finally have an appt with a specialist. I will be going to Mayo on March 9-10. Will be driving from Oklahoma about 10 hours so am praying for good weather. Any hints what to expect? I kind of wanted them to do an exercise echo because my gradient changes dramatically with exercise. I also think my ddd pacing mask symptoms. But it is a sttart in the right direction . I have my lastest echo and a thalium scan.. The notes on the thalium say that my EF is down to 45-50 and states that I am compromised for age and gender. I will get copies of all my echos from the last 10 years to take also. Lisa, thanks for encouraging me in this direction, it feels beter just to have made the decision.

    Art

  • #2
    Art,
    I am very happy to hear that you are taking the step to head to a specialist for your care. I hope it is a productive trip that helps to improve your quality of life and understanding of your own health!

    Best wishes,
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

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