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Book about HCM

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Janet McClure Single mother to two amazing kids. James is 13 and has HCM. Emily is 11 and recovering from TBI. Find out more about Janet McClure
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  • Book about HCM

    I was just wandering how you get that book about HCM. Do you get it with your membership. I had joined a couple of weeks ago and want to get one. If I have to buy it I will be glad too. I am anxious to get it and read it. Thanks for this wonderful website. I go to it everyday and learn so much about people's experiences.

    It's great to feel like you have such a source of support literally at your fingertips! Thanks to all! Janet
    My son James, Age 18, diagnosed in January, 05. AICD - 4/5/05 at Tufts NEMC. Myectomy -1/25/06 at NEMC. Currently having heart failure issues. James' father and uncle both have HCM and AICDs. James dad, Carlton, had Myectomy at Cleveland on 4/10/06. James Medtronic recalled lead fractured 5/26/11. Had Biventricular Cardiac Resynchronization AICD put in on 6/3/11 Emory Midtown.

  • #2
    Hello Janet,
    Yes, according to the web page on "membership" the HCM book is included

    Membership includes a copy of
    HCM for Patients, Their Families and Interested Physicians
    by Dr. B.J. Maron and L. Salberg.
    Please be patient. In any small grass roots non-profit organization our work time is limited to our number of volunteers, the hours in the day, the priorities of our HCMA families and/or projects, and on & on... I'm sure that Kelly (HCMA Office Wizard, person with many hats) has a list of people that are anticipating arrival of this wonderful book. You can email her or call the office on Monday to make sure you are on the list.

    It is a great book! Thank you for the inquiry.

    Best Regards,
    Sharon

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    • #3
      Janet,
      I will check with Kelly and make sure she processed your membership - but the book IS part of the membership so one will bo to you very soon!

      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

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      • #4
        Thanks! No hurry! I just wanted to make sure I was going to get one. I appreciate your responses! Janet
        My son James, Age 18, diagnosed in January, 05. AICD - 4/5/05 at Tufts NEMC. Myectomy -1/25/06 at NEMC. Currently having heart failure issues. James' father and uncle both have HCM and AICDs. James dad, Carlton, had Myectomy at Cleveland on 4/10/06. James Medtronic recalled lead fractured 5/26/11. Had Biventricular Cardiac Resynchronization AICD put in on 6/3/11 Emory Midtown.

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