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Now my heart is worse than before

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Eileen2345 Find out more about Eileen2345
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  • #1

    Now my heart is worse than before

    For the past 5 days I had been having long runs of PVCs, but they would stop for a little while and then start up again. Now they are constant, my heart is in a constant state of PVCs. I have syncope and SOB.

    My blood pressure is 80/50 and my heart rate is 50.
    I may go back to the hospital today.

    I don't why this is happening, I have not been upset for a while and my husband is being nice now. But my heart is so messed up.

    I cannot post until this goes away, too many white-outs.

    Thank you to everyone. I'll post when I can.

    Hugs to All

    Eileen
    49 yrs. old
    Diagnosed at 31.
    Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
    First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
    Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
    Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
    My brother passed away suddenly at 34 yrs old from HCM.
    2 teenage children, ages 17 and 15.
    Tags: None
  • #2
    Eileen, it's time to get help. Let us know when you have things under control, but take care of this now. Thinking of you, Linda

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    • #3
      Eileen

      You go back to the hospital and don't leave until it is taken care of they have to get that under control, please try to keep in touch ok


      Shirley
      Diagnosed 2003
      Myectomy 2-23-2004
      Husband: Ken
      Son: John diagnosed 2004
      Daughter: Janet (free of HCM)

      Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

      Comment

      • #4
        I'm still having these runs of PVCs and then I have moments of Bigeminy (sp?)

        I'll be okay, but boy I am so exhausted.

        Hugs,
        Eileen
        49 yrs. old
        Diagnosed at 31.
        Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
        First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
        Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
        Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
        My brother passed away suddenly at 34 yrs old from HCM.
        2 teenage children, ages 17 and 15.

        Comment

        • #5
          Eileen,
          can you call me later today?
          Lisa
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

          Comment

          • #6
            Eileen

            I just thought of something are you taking potassium and if you are how much because it is just as dangerous to take too much potassium as it is to take too little and taking too much can give you rhythm problems
            Diagnosed 2003
            Myectomy 2-23-2004
            Husband: Ken
            Son: John diagnosed 2004
            Daughter: Janet (free of HCM)

            Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

            Comment

            • #7
              Hi everyone,

              Yes, Lisa I can call you today. I hate to keep bugging you though.

              Hi Shirley,
              When I went to the hosptial on Friday night, they did blood work and said that everything came back normal. Thank you Shirely for your help and for thinking of me.

              The PVCs are a little better today, I'll be okay. However, now, I feel as though I am coming down with a cold. Maybe that had something to do with yesterday's problem.

              Thank you everyone for your concern. You guys are so great.

              Hugs,
              Eileen
              49 yrs. old
              Diagnosed at 31.
              Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
              First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
              Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
              Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
              My brother passed away suddenly at 34 yrs old from HCM.
              2 teenage children, ages 17 and 15.

              Comment

              • #8
                Take it easy and let us know what they decide what's going on with you.

                Reenie
                Reenie

                ****************
                Husband has HCM.
                3 kids - ages 23, 21, & 19. All presently clear of HCM.

                Comment

                • #9
                  Eilleen,

                  I hope you soon feel better. I am sorry you are having these problems.

                  Pam
                  Dx @ 47 with HOCM & HF:11/00
                  Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                  Lead failure,replaced 12/06.
                  SF lead recall:07,extracted leads and new device 2012
                  [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                  Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                  Genetic mutation 4/09, mother(d), brother, son, gene+
                  Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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