Hi Everyone
I went to the new cardiologist yesterday and he was better than the last 2 I have seen. (I think, I hope this doctor knows what he is doing.)
The new doctor, Dr. Maki said that I should not take Cardizem, that it dilates the blood vessels too much and is not good for this condition. Is he right? (The last cardiologist gave me Cardizem.)
He gave me a prescription for Verapamil 120mg. I will take this. I need to now.
He said that he wants to have my heart paced 100% of the time with my ICD. I told him I was not sure I wanted to do that.
I think I remember reading here that it is not always a good thing.
I would like to know what you here think and know about that first, before I agree to that.
I gave him a copy of my last echo report and he did an EKG. He said that the EKG was very abnormal (I'm sure that's common with HCM). He listened to my heart and all the usual stuff.
He said I have diastolic heart failure and that I should have no problem getting disability. That is good news because then after 2 years I can get on Medicare (because I have no insurance, no one will insure me).
He does not want me to take a diuretic yet, he said that since my lungs are clear, he does not want me to get dehydrated at all.
He said that deydration causes more obstruction because it shrinks the ventricle (?)
I still have to watch my salt, he said that I do need salt though in order to maintain fluid balance. I can have about 3,000 mg a day.
But anyway, back to the question... again, what does anyone here think about being paced 100% of the time?
Thank you so much for any replies and information.
Hugs to All
Eileen

I went to the new cardiologist yesterday and he was better than the last 2 I have seen. (I think, I hope this doctor knows what he is doing.)
The new doctor, Dr. Maki said that I should not take Cardizem, that it dilates the blood vessels too much and is not good for this condition. Is he right? (The last cardiologist gave me Cardizem.)
He gave me a prescription for Verapamil 120mg. I will take this. I need to now.
He said that he wants to have my heart paced 100% of the time with my ICD. I told him I was not sure I wanted to do that.
I think I remember reading here that it is not always a good thing.
I would like to know what you here think and know about that first, before I agree to that.
I gave him a copy of my last echo report and he did an EKG. He said that the EKG was very abnormal (I'm sure that's common with HCM). He listened to my heart and all the usual stuff.
He said I have diastolic heart failure and that I should have no problem getting disability. That is good news because then after 2 years I can get on Medicare (because I have no insurance, no one will insure me).
He does not want me to take a diuretic yet, he said that since my lungs are clear, he does not want me to get dehydrated at all.
He said that deydration causes more obstruction because it shrinks the ventricle (?)
I still have to watch my salt, he said that I do need salt though in order to maintain fluid balance. I can have about 3,000 mg a day.
But anyway, back to the question... again, what does anyone here think about being paced 100% of the time?
Thank you so much for any replies and information.
Hugs to All
Eileen
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