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Size of heart

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bryan Find out more about bryan
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  • Size of heart

    Please forgive my spelling for size my button is broken and I was only able to change it cause of the trusty spell checker. With HCM is your heart always enlarged? I know that the best way to find out is by an ECHO. I was just wondering cause while in California last week we took my daughter to the ER for an upper respiratory infection and we explained how she was tested, but we are currently seeking a second opinion. Well they x rayed her to rule out pneumonia and said her her lungs where clear and her heart was fine, cause it wasn't enlarged, it was normal size on the xray. How can they say that without an echo?

  • #2
    I don't think that the heart always looks enlarged on an xray. Sounds to me that they weren't sure what they were talking about. You should still get her screened with echos and EKG's annually.

    Reenie

    PS: I fixed your title for you.
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

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    • #3
      reenie,
      Thanks for fixing that for me.. after my post I beat the keyboard and got it to work, z. I wasn't to sure either if they knew exactly what they were talking about. We are waiting to get her screened again till she will actually let them do the ECHO on her. We've tried it twice with no success. They wanted to sedate her but we talked to Dr M Maron and he didn't feel we needed to do that at this time. Hopefully soon she will actually have it done without fuss, but only time will tell.

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      • #4
        How old is your child? I had an echo done on my 3 year old son last month. I didn't think that he would stay still, but I explained it all to him ahead of time, and showed him the machine, and told him how it worked ahead of time, and he was just fine. And this is a kid who has a fit over getting his haircut and brushing his teeth.

        It was a short echo...only five or so minutes, but it showed enough so they could get a good look.

        He also had one at 1 and for that one, I kept him up all morning with no nap, and he slept through the echo.
        Daughter of Father with HCM
        Diagnosed with HCM 1999.
        Full term pregnancy - Son born 11/01
        ICD implanted 2/03; generator replaced 2/2005 and 2/2012
        Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

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        • #5
          Bryan,

          I am pretty sure I am right about my answer here: Having a normal-sized heart is a good thing, but does not answer the question of whether there is HCM present or not. The thing that is thickened in HCM is the ventricular septum. It can be thickened and cause considerable problem without the entire heart being enlarged. So, it sounds like they were barking up the wrong tree to me.

          Rhoda

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          • #6
            Most are normal size - just THICK. An x-ray is not reallly a good diagnostic tool.

            Lisa
            Knowledge is power ... Stay informed!
            YOU can make a difference - all you have to do is try!

            Dx age 12 current age 46 and counting!
            lost: 5 family members to HCM (SCD, Stroke, CHF)
            Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
            Therapy - ICD (implanted 97, 01, 04 and 11, medication
            Currently not obstructed
            Complications - unnecessary pacemaker and stroke (unrelated to each other)

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            • #7
              Cynaburst,
              She is only 17 months so it wouldn't be so easy to explain to her. The no nap in the morning thing sounds good except we are 40 miles away from where we would have it done and she would fall asleep. We are gonna wait alittle while and see if we can do it again.

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              • #8
                Bryan,

                Here's what you do. Schedule the appt. at around 3:00 p.m. Then keep her up all morning. When its time for the appt., have someone ride in the back seat with her and keep her awake (you only have to do it for part of the ride). Dress her in a button down the front shirt, so you don't have to totally remove it. When you get to the place, transfer her into her stroller (make sure you have one that lies flat). Let her sleep, and they can do the echo with her asleep in the stroller. You just unbutton the shirt. My son never even knew it happened. He was fine.

                Good luck.

                Cynthia
                Daughter of Father with HCM
                Diagnosed with HCM 1999.
                Full term pregnancy - Son born 11/01
                ICD implanted 2/03; generator replaced 2/2005 and 2/2012
                Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

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