If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

boys tested

Collapse

About the Author

Collapse

HCMA FORUM ARCHIVE Find out more about HCMA FORUM ARCHIVE
This topic is closed.
X
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • boys tested

    [boys tested]

    Author: Debbie (---.glen-net.ca)

    Date: 06-21-02 15:43

    I thought some people might like a bit of good news today! Our 2 sons had their echo's yesterday and neither one showed any signs of hcm. They are only 6 and 8 so I know that they are not out of danger yet but for us this was a very good day. We will take any positive news right now!

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: boys tested]

    Author: Lisa Salberg (208.47.172.---)

    Date: 06-21-02 16:05

    I know you must feel a little bit of relief now... but please remember to screen them again when they reach puberty and then every 12-18 months until age 20 - then every 5 years.

    But for now... I am happy for you!

    Best wishes to the entire family,

    Lisa

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: boys tested]

    Author: Debbie (---.glen-net.ca)

    Date: 06-22-02 16:50

    I was just reading another post, and you recommeded seeing a pediatric spec. My boys were tested at the same place as my husband. They do not generally do children but did because I was very worried and the wait at the children's hosp. was very very long. One of my sons has a heart murmur and the other one had a murmur until he was 2. Do you think that we should still get an appt. at the children's hosp.

    thanks for any info.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: boys tested]

    Author: Board Moderator--Sarah Beckley (---.dsl.mindspring.com)

    Date: 06-22-02 18:51

    Dear Debbie

    I think seeing a pediatric HCM specialist would be in everyone's best interest. Please call the office at 973-983-7429 to get the name of a pediatric specialist.

    take care

    sarah

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: boys tested]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 06-23-02 11:34

    well, this is a choice you will have to make... and make it one that allows you to sleep at night. If the kids have clear echos at this time , they are most likely OK - for now...however the murmurs are a bit of a twist. If it makes you feel better to have an expert review it, then make an appointment, or call and ask if they will review the records - workinging through your current dr. -

    seeing a ped. card.with expertise in HCM is not all that easy and doing so simply for diagnosis may not change much ...at this time. Once / IF the kids are diagnosied than a review be a specailist is a great idea.

    Best wishes,

    Lisa
    NOTE: This is a post from the previous forum message board.

Today's Birthdays

Collapse

Working...
X